Team Approach for Education and Support of Postoperative Pediatric Cerebellar Mutism Syndrome in the Preoperative and Immediately Postoperative Phase

Abstract

Purpose Postoperative pediatric cerebellar mutism syndrome (CMS) is a known complication following surgical resection of posterior fossa tumors. However, minimal information exists describing the progression of the syndrome and how to best support these patients. At Ann & Robert H. Lure Children's Hospital of Chicago, the brain tumor team has been fortunate enough to work together for years. Throughout the time that this particular team has been collaborating, a typical protocol has been developed for children at most risk for postoperative pediatric CMS, refined with each patient experience, to the current model. Much of what has been written about postoperative pediatric CMS (and varying terminology) has focused on potential risk factors, surgical approach, and causes, as well as definitively defining the syndrome. We would like to focus on the impact the mutism has on this constellation of symptoms. We would like to focus on the patient and family and how we as caregivers can prepare, educate, and support the family throughout this difficult diagnosis and early management of mutism. Conclusions There is much work to be done in describing and quantifying postoperative pediatric CMS. In the care of children with pediatric brain tumors in the preoperative and immediately postoperative phase, a team approach is paramount. When discussing expectations following surgery, consistent message and communication of hope are essential.