Telehealth and CFTR modulators: Accelerating innovative models of cystic fibrosis care

Prickett, Michelle; Flume, Patrick A.; Sabadosa, Kathryn A.; Tran, Quynh; Marshall, Bruce C.

doi:10.1016/j.jcf.2022.07.002

Cited by 19 publications

(21 citation statements)

References 30 publications

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“…is a part of primary care that is provided by CF care teams. 5,[8][9][10][11][12] This statement is corroborated by a survey conducted by…”

Section: Discussionsupporting

confidence: 61%

“…As stated in a recent article by Prickett et al as well as published care guidelines, the CF care center model is evolving and healthcare maintenance (e.g., immunizations, etc.) is a part of primary care that is provided by CF care teams 5,8–12 . This statement is corroborated by a survey conducted by Haywood and Goralski which found that 59% (51/92) of PwCF at their CF center did not have an identified primary care physician (PCP) or had the CF provider listed as the PCP 18 .…”

Section: Discussionmentioning

confidence: 84%

“…Improvements in our understanding of the underlying disease process have led to advancements in chronic medication therapy which has resulted in increasing the median survival of CF patients 1,2 . Care for PwCF is highly complex and requires a multi‐disciplinary approach where an integrated pharmacy team (pharmacists and pharmacy technicians) play a key role 3–8 …”

Section: Introductionmentioning

confidence: 99%

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Implementation of a comprehensive pharmacy‐driven immunization care process model in a pediatric cystic fibrosis clinic

Zobell

Moss

Creelman

et al. 2023

Pediatric Pulmonology

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Introduction: Members of an integrated pharmacy team (pharmacists and pharmacy technicians) have roles that have been identified in the literature as part of the multi-disciplinary cystic fibrosis (CF) care team. One role that has not specifically addressed is the administration of routine and recommended immunizations to people with CF (PwCF). According to care guidelines, PwCF of all ages should be provided all age-appropriate and recommended immunizations. Pharmacists and pharmacy technicians can administer immunizations per state laws. The Primary Children's CF Center decided to implement a comprehensive pharmacy-driven immunization care process model to impact immunization rates. Methods: A 24-month retrospective analysis was conducted with pediatric (≤18 years) PwCF at the Primary Children's CF Center. The primary outcome measures were the percentage (%) of PwCF who received PPSV23, and/or HPV, and/or meningococcal conjugate vaccine (MCV) immunizations 1-year post-care process model implementation (October 1, 2021, to September 30, 2022) as compared to baseline values. The secondary outcome measures are the total number of immunizations, the number of each immunization provided, and the financial impact of pharmacy-driven immunization care process model 1-year post-implementation. Results: During the 1-year post-care process model implementation (October 1, 2021, to September 30, 2022), a total of 523 immunizations were provided to 243 pediatric PwCF. The most frequent immunizations provided were PPSV23 (160/523, 31%) and Coronavirus Disease 2019 (COVID-19) (154/523, 29%). The baseline percentages of eligible PwCF of PPSV23, HPV, and MCV were 27% (58/217), 43%(32/74), and 24% (8/34), respectively. The 1-year post-implementation percentages of PPSV23, HPV, and MCV were 99% (217/218, p < 0.00001), 91% (67/74, p < 0.00001), and 97% (33/34, p < 0.00001), respectively. For COVID-19 immunizations, 56% of eligible PwCF (181/321) have received their first dose. Of these 181 PwCF, 70% (126/181) have received at least one dose of their primary series or

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“…is a part of primary care that is provided by CF care teams. 5,[8][9][10][11][12] This statement is corroborated by a survey conducted by…”

Section: Discussionsupporting

confidence: 61%

Section: Discussionmentioning

confidence: 84%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Implementation of a comprehensive pharmacy‐driven immunization care process model in a pediatric cystic fibrosis clinic

Zobell

Moss

Creelman

et al. 2023

Pediatric Pulmonology

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“…Other initiatives include pragmatic considerations for facets of telehealth and remote monitoring to enhance clinical care and patient experience 29,56‐58 . This work will be vital to contribute to the evolution of the care model 13 …”

Section: Discussionmentioning

confidence: 99%

“…Health priorities and care needs among PwCF are shifting as the result of aging and more diverse subpopulations, improving health status, and rapid changes to care delivery from the SARS‐CoV‐2 pandemic. Traditional care standards require ongoing scrutiny to provoke learning of what is best practice 13 …”

Section: Introductionmentioning

confidence: 99%

Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data‐driven improvement at scale

Ong

Albon²,

Amin

et al. 2022

Learning Health Systems

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Introduction: A learning health network is a type of learning health system in which stakeholders use network organization to improve health and health care. Building on existing resources in the cystic fibrosis (CF) community, the Cystic Fibrosis Learning Network (CFLN) was designed to improve medical outcomes and quality of life through an intentional focus on achieving reliable evidence-based chronic care delivery and creating a system for data-driven collaborative learning. Methods:We describe the development and growth of the CFLN considering six domains of a Network Maturity Grid: system leadership; governance and policy management; quality improvement (QI); engagement and community building; data and analytics; and research. We illustrate the impact of the CFLN experience on chronic care processes and indicators of collaborative infrastructure. Results: The CFLN represents 36 accredited care centers in the CF Foundation Care Center Network caring for over 6300 patients. Of 6779 patient clinical care visits/quarter, 77% are entered into the CF Foundation Patient Registry within 30 days, providing timely means to track outcomes. Collaborative visit planning is occurring in 93% of clinical care visits to share agenda setting with patients and families. Almost all CFLN teams (94%, n = 34) have a patient/family partner (PFP), and 74% of PFPs indicate they are actively participating, taking ownership of, or leading QI initiatives with the interdisciplinary care team. In 2022, 97% of centers reported

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The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact

Citters

Buus‐Frank

King

et al. 2022

Learning Health Systems

Self Cite

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Introduction:The Cystic Fibrosis (CF) Foundation sponsored the design, pilot testing, and implementation of the CF Learning Network (CFLN) to explore how the Foundation's Care Center Network (CCN) could become a learning health system. Six years after the design, the Foundation commissioned a formative mixed methods evaluation of the CFLN to assess: CFLN participants' understanding of program goals, attributes, and perceptions of current and future impact.Methods: We performed semi-structured interviews with CFLN participants to identify perceived goals, attributes, and impact of the network. Following thematic analyses, we developed and distributed a survey to CFLN members and a matched sample of CCN programs to understand whether the themes were unique to the CFLN.Results: Interviews with 24 CFLN participants were conducted. Interviewees identified the primary CFLN goal as improving outcomes for people living with CF, with secondary goals of providing training in quality improvement (QI), creating a learning community, engaging all stakeholders in improvement, and spreading best practices to the CCN. Project management, use of data, common QI methods, and the learning community were seen as critical to success. Survey responses were collected from 103 CFLN members and 25 CCN members. The data revealed that CFLN respondents were more likely than CCN respondents to connect with other CF programs, routinely use data for QI, and engage patient and family partners in QI.Conclusions: Our study suggests that the CFLN provides value beyond that achieved by the CCN. Key questions remain about whether spread of the CFLN could improve outcomes for more people living with CF.

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Telehealth and CFTR modulators: Accelerating innovative models of cystic fibrosis care

Cited by 19 publications

References 30 publications

Implementation of a comprehensive pharmacy‐driven immunization care process model in a pediatric cystic fibrosis clinic

Implementation of a comprehensive pharmacy‐driven immunization care process model in a pediatric cystic fibrosis clinic

Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data‐driven improvement at scale

The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact

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