Telephone based survey in adults with congenital heart disease during COVID-19 pandemic

Frogoudaki, Alexandra; Farmakis, Dimitrios; Tsounis, Dimitrios; Liori, Sotiria; Stamoulis, Konstadinos; Ikonomidis, Ignatios; Filippatos, Gerasimos; Parissis, John

doi:10.5603/cj.a2020.0092

Cited by 8 publications

(10 citation statements)

References 5 publications

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“…Although not reported by all, these findings are concerning because the ACHD population is already at risk for adverse psychosocial outcomes including poor quality of life. This pandemic-related stressor has been postulated, 3 , 10 , 11 but not previously reported in this population, and may be similarly experienced by other chronic illness populations.…”

Section: Discussionsupporting

confidence: 55%

“…Children’s decreased physical activity during the pandemic 12 has been postulated to create concern for future quality of life and cardiovascular risk. Additionally, three studies conducted outside the USA 11 , 13 , 14 describe harmful impacts of pandemic isolation on patients’ emotional states. In a report from the APPROACH-IS II study, Moons et al describe worry, stress, and fear felt by patients related to the pandemic, though effects on patient-reported outcome scores were minimal.…”

Section: Discussionmentioning

confidence: 99%

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COVID-19 impact on adults with congenital heart disease self-perceived vulnerability and coping

Steiner

Baden

Blakeney

et al. 2022

European Journal of Cardiovascular Nursing

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The COVID-19 pandemic poses risk for worsened quality of life in patients with adult congenital heart disease. In a qualitative thematic analysis of semi-structured interviews conducted July 2020 to August 2021, we examined the pandemic’s impact on participants’ (N = 25) experiences with self-perception and coping. All had moderate or complex disease; median age 32 years. The pandemic altered some participants’ self-perception, including increased vulnerability beyond heart-attributed risk. Restrictions frequently prevented participants from using their usual coping strategies, forcing use of alternative methods. For an already at-risk population, these findings suggest the need for increased mental health awareness, assessment, and support.

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Section: Discussionsupporting

confidence: 55%

Section: Discussionmentioning

confidence: 99%

COVID-19 impact on adults with congenital heart disease self-perceived vulnerability and coping

Steiner

Baden

Blakeney

et al. 2022

European Journal of Cardiovascular Nursing

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“…32 In a study of Greek adults with CHD, 18.9% reported that their emotional state was severely impacted during lockdown, and 51.6% said that it had a moderate impact on their mood. 14 Public health lockdowns also impacted physical health. For example, British adults with CHD reported lower levels of physical activity during lockdown compared to the pre-pandemic era.…”

Section: Discussionmentioning

confidence: 99%

“… 13 Among Greek patients, about 75% experienced a moderate to severe impact on their mood. 14 The possibility of inter-country variation in psychological impact of the first wave has been suggested. 13 …”

Section: Introductionmentioning

confidence: 99%

The COVID-19 pandemic as experienced by adults with congenital heart disease from Belgium, Norway, and South Korea: impact on life domains, patient-reported outcomes, and experiences with care

Kovacs

Budts²,

Goossens

et al. 2021

European Journal of Cardiovascular Nursing

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Aims The coronavirus disease-2019 (COVID-19) pandemic poses significant challenges to many groups within societies, and especially for people with chronic health conditions. It is, however, unknown whether and how the pandemic has thus far affected the physical and mental health of patient populations. Therefore, we investigated how the pandemic affected the lives of adults with congenital heart disease (CHD), compared pre- and peri-pandemic patient-reported outcome measures (PROMs) and a patient-reported experience measure (PREM), and investigated whether having had COVID-19 impacted pre-/peri-pandemic differences of the PROMs and PREM. Methods and results As part of the ongoing APPROACH-IS II project, we longitudinally surveyed 716 adults with CHD from Belgium, Norway, and South Korea. Pre-pandemic measures were administered from August 2019 to February 2020 and the peri-pandemic surveys were completed September 2020–April 2021. The majority of patients indicated that their social lives (80%), mental health (58%), and professional lives/education (51%) were negatively impacted by the pandemic. Patients felt worried (65%), were afraid (55%), reported the pandemic felt ‘close’ to them (53%), and were stressed (52%). However, differences between pre- and peri-pandemic scores on the PROMs and PREM were negligibly small (Cohen’s d < 0.20). Across measures, 5.8–15.8% of patients demonstrated changes (improved or worsened scores) that exceeded the minimal clinically important difference. There were no difference-in-differences for PROMs and PREM between patients who did vs. did not have COVID-19. Conclusions Although the COVID-19 pandemic has been disruptive in many ways, pre- to peri-pandemic changes in PROMs and PREM of adults with CHD were negligibly small.

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“…It was found that the COVID-19 pandemic resulted in a severe mood change in 18.9% and moderate in 51.6%. 55 This has specifically affected patients with CHD who require regular follow-ups. A lack of these could potentially result in delayed diagnosis of CHD complications and loss of follow-up during the transition from paediatric to adult care.…”

Section: Service Provision and Telemedicine For Chd Patientsmentioning

confidence: 99%

COVID-19 and congenital heart disease: an insight of pathophysiology and associated risks

et al. 2020

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Objective: We aimed to examine the literature to determine if both paediatric and adult patients diagnosed with congenital heart disease (CHD) are at a higher risk of poor outcomes if they have the coronavirus disease 2019 (COVID-19), compared to those without CHD. Methods: A systematic review was executed using the Preferred Reporting Items for Systematic Reviews and Meta-analysis (PRISMA) guidelines. To identify articles related to COVID-19 and CHD, an extensive literature search was performed on EMBASE, Medline, Scopus, and Global Health databases using keywords and MeSH terms. Results: A total of 12 articles met the inclusion criteria and were included for analysis in this systematic review. Two themes were identified for data extraction: evidence supporting higher risks in CHD patients and evidence against higher risks in CHD patients. After combining the data, there were 99 patients with CHDs out of which 12 required admissions to ICU. Conclusion: This systematic review suggests that CHD may increase the risk of poor outcomes for those with COVID-19, but also highlights the necessity for more research with larger sample sizes in order to make a more justified conclusion, as the majority of papers that were analysed were case series and case reports. Future research should aim to quantify the risks if possible whilst accounting for various confounding factors such as age and treatment history.

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Telephone based survey in adults with congenital heart disease during COVID-19 pandemic

Cited by 8 publications

References 5 publications

COVID-19 impact on adults with congenital heart disease self-perceived vulnerability and coping

COVID-19 impact on adults with congenital heart disease self-perceived vulnerability and coping

The COVID-19 pandemic as experienced by adults with congenital heart disease from Belgium, Norway, and South Korea: impact on life domains, patient-reported outcomes, and experiences with care

COVID-19 and congenital heart disease: an insight of pathophysiology and associated risks

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