The Burden of Families Coping with the Mentally III: An Invisible Crisis

Thompson, Edward H.; Doll, William

doi:10.2307/584170

Cited by 278 publications

(179 citation statements)

References 32 publications

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“…Caregiver burden has also sometimes been associated with frequency of patient hopitalizations. [9][10][11][12] Providing any care for an adult relative is an unexpected event, but parents are expected to be responsible for the care of their minor children. Emotional and financial hassles are part of the normal parenting process.…”

Section: Introductionmentioning

confidence: 99%

Perceived parental burden and service use for child and adolescent psychiatric disorders.

Angold¹,

Messer²,

Stangl³

et al. 1998

Am J Public Health

451

349

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OBJECTIVES: Pediatric chronic physical illness and adult psychiatric disorders are substantial sources of burden for family care-takers, but little attention has been paid to parental burden resulting from children's or adolescents' psychiatric disorders. This paper describes the predictors of perceived parental burden and its impact on the use of specialty mental health and school services. METHODS: A representative general population sample of 1015 9-, 11-, and 13-year-olds and their parents completed structured psychiatric diagnostic interviews and the Child and Adolescent Burden Assessment. RESULTS: Weighted estimates indicated that 10.7% of parents in the general population perceived burden resulting from their children's symptomatology. Significant predictors of perceived burden were levels of child symptomatology and impairment and parental mental health problems. Children's depressive and anxiety disorders were associated with less burden than other diagnoses. The effects of child disorder severity on specialty mental health service use appeared to be mediated by the level of burden induced. CONCLUSIONS: Substantial levels of parental burden resulted from child psychiatric disorders and were a major reason for specialist mental health service use.

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Section: Introductionmentioning

confidence: 99%

Perceived parental burden and service use for child and adolescent psychiatric disorders.

Angold¹,

Messer²,

Stangl³

et al. 1998

Am J Public Health

451

349

View full text Add to dashboard Cite

show abstract

“…They may experience objective burdens, such as financial hardship, role strains, disruption of family and social routines, as well as strain related to the need for increased supervision of the ill relatives (Thompson & Doll, 1982). In addition, family members may experience subjective burdens, attributable to the ongoing emotional strain of having the ill relative at home.…”

Section: Perceived Burden Of Care Givingmentioning

confidence: 99%

“…The major problems and needs of these families (Biegel & Yamatani, 1986;Grad & Sainsbury, 1963;Lamb, 1982;Leff, 1983;Spaniol & lung, 1987;Thompson & Doll, 1982), are summarised as follows:…”

Section: Perceived Burden Of Care Givingmentioning

confidence: 99%

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Mental Illness and Families in Contemporary Hong Kong: an Ethnography of Mental Illness and Chinese Families in Hong Kong at the Time of Transition of Sovereignty

Yau¹

2003

Aus Occup Therapy J

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“…Family members of individuals with mental illness often experience significant hardships that include objective burdens (practical, financial, and logistic aspects of caring for the individual with the mental illness) and subjective burdens (psychological, social, emotional, and relational difficulties) (Hinshaw 2005). Families report that subjective burdens, which include the challenges of mental health stigma, are greater than the objective ones (Thompson and Doll 1982). Family members of individuals with mental illness are likely to encounter courtesy stigma, which is the extension of stigmatizing beliefs and attitudes to close others based on mere association (Corrigan and Miller 2004;Mehta and Farina 1988).…”

Section: Beliefs About Close Family Members or Associates Of Individumentioning

confidence: 99%

Conceptualizing Culturally Infused Engagement and Its Measurement for Ethnic Minority and Immigrant Children and Families

Yasui

Pottick

Chen

2017

Clin Child Fam Psychol Rev

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Despite the central role culture plays in racial and ethnic disparities in mental health among ethnic minority and immigrant children and families, existing measures of engagement in mental health services have failed to integrate culturally specific factors that shape these families' engagement with mental health services. To illustrate this gap, the authors systematically review 119 existing instruments that measure the multi-dimensional and developmental process of engagement for ethnic minority and immigrant children and families. The review is anchored in a new integrated conceptualization of engagement, the culturally infused engagement model. The review assesses culturally relevant cognitive, attitudinal, and behavioral mechanisms of engagement from the stages of problem recognition and help seeking to treatment participation that can help illuminate the gaps. Existing measures examined four central domains pertinent to the process of engagement for ethnic minority and immigrant children and families: (a) expressions of mental distress and illness, (b) causal explanations of mental distress and illness, (c) beliefs about mental distress and illness, and (d) beliefs and experiences of seeking help. The findings highlight the variety of tools that are used to measure behavioral and attitudinal dimensions of engagement, showing the limitations of their application for ethnic minority and immigrant children and families. The review proposes directions for promising research methodologies to help intervention scientists and clinicians improve engagement and service delivery and reduce disparities among ethnic minority and immigrant children and families at large, and recommends practical applications for training, program planning, and policymaking.

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The Burden of Families Coping with the Mentally III: An Invisible Crisis

Cited by 278 publications

References 32 publications

Perceived parental burden and service use for child and adolescent psychiatric disorders.

Perceived parental burden and service use for child and adolescent psychiatric disorders.

Mental Illness and Families in Contemporary Hong Kong: an Ethnography of Mental Illness and Chinese Families in Hong Kong at the Time of Transition of Sovereignty

Conceptualizing Culturally Infused Engagement and Its Measurement for Ethnic Minority and Immigrant Children and Families

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