The DALY, context and the determinants of the severity of disease: an exploratory comparison of paraplegia in Australia and Cameroon

Allotey, Pascale; Reidpath, Daniel D.; Kouamé, Aka; Cummins, Robert A.

doi:10.1016/s0277-9536(02)00463-x

Cited by 96 publications

(56 citation statements)

References 14 publications

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“…Three papers [54][55][56] were rejected because qualitative research comprised a mere adjunct to a predominantly quantitative study. The question posed at the outset -Is this really qualitative research?…”

Section: Resultsmentioning

confidence: 99%

Quality of life after spinal cord injury: a meta-synthesis of qualitative findings

Hammell¹

2006

Spinal Cord

167

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Study design: Meta-synthesis of qualitative research. Objectives: To identify, compare and synthesize the factors found to contribute to, or detract from the experience of a life worth living following spinal cord injury (SCI). Methods: Published articles were identified from the Medline, CINAHL and Sociological Abstracts databases, a hand search through selected journals published since 1990, and from reference lists. These were assessed for their relevance to the focus of interest and appraised for rigour and quality. The key themes that emerged from the data were summarized, compared and synthesized. Results: The search located 64 papers and four books, of which seven papers met the review criteria for relevance and rigour, and in which 10 main concepts were identified: (1) body problems, (2) loss, (3) relationships, (4) responsibility for, and control of one's life, (5) occupation, and ability to contribute, (6) environmental context, (7) new values/perspective transformation, (8) good and bad days, (9) self-worth, (10) self-continuity. Conclusions: This study demonstrates the utility of synthesizing qualitative research to provide a greater depth of insight into the factors that contribute to, and detract from, quality of life (QOL) after SCI. It also provides a more nuanced understanding of the experience of QOL following SCI than is achievable by quantitative methods. Future qualitative research is required to probe further the concepts and connections identified in this study, and to identify how rehabilitation services might best address these issues. Sponsorship: N/A. The vast majority of research into QOL following SCI has adopted a quantitative approach, 3 reflecting researchers' assumptions that quality can be measured quantitatively; that the determinants of QOL following SCI can be reliably predicted by able-bodied researchers; and that the subjective experience of a life can be objectively and accurately discerned by another person. These assumptions have been challenged [5][6][7][8][9][10] and it has been argued that the results of these studies are both misleading and of questionable value. 11 Indeed, it has been suggested that how someone attempts to 'measure' QOL says more about their own values, priorities and fundamental orientation to life than it does about the QOL of the people whose lives are ostensibly being studied. 3,12 Quantitative research is hypothesis-driven, requiring researchers to predetermine the variables to be measured and thus to identify in advance those factors that are relevant and important to the issue under investigation. This inevitably limits the range of possible findings. For example, if 'pain' is not included as a variable in a quantitative study of QOL then pain will not be found to influence QOL. Quantitative methods are therefore Recognizing the inherent problems with attempts to quantitatively measure QOL among people with SCI many researchers have advocated the use of qualitative methods that can explore both the meaning of QOL for people with SCI and the f...

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Section: Resultsmentioning

confidence: 99%

Quality of life after spinal cord injury: a meta-synthesis of qualitative findings

Hammell¹

2006

Spinal Cord

167

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“…In SCI, it seems obvious that ''paraplegia of like clinical severity can be fatal in one environment and not in another'' (Allotey et al 2003). Yet the existing evidence is weak and sometimes conflicting (Allotey et al 2003;Dijkers et al 2002).…”

Section: Introductionmentioning

confidence: 99%

Functioning and disability in people living with spinal cord injury in high- and low-resourced countries: a comparative analysis of 14 countries

Reinhardt

Mansmann

Fellinghauer

et al. 2010

Int J Public Health

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Objectives We examined whether persons with spinal cord injury (SCI) from countries with differential resources and resource distribution differ in the level and structure of functioning and disability. Methods We analysed cross-sectional data of 1,048 persons with SCI from 14 countries based on the International Classification of Functioning, Disability and Health (ICF). We used penalized logistic regression to identify ICF categories distinguishing lower-and higher-resourced countries. Hierarchical linear models were employed to predict the number of problems in functioning. The association structure of ICF categories was compared between higher-and lower-resourced countries using graphical models.Results A total of 96 ICF categories separated lower-and higher-resourced countries. Differences were not univocal. Lower resources and unequal distribution were predictive of more functional problems in persons with higher age or tetraplegia. In the graphical models, few associations between ICF categories persisted across countries. Conclusion Higher-resourced countries do not score higher in all ICF categories. Countries' economic resources and their distribution are significant predictors of disability in vulnerable groups such as tetraplegics and the elderly. Functioning is multi-dimensional and structures of association suggest that country-specific pathways towards disability exist.

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“…In the selected international literature, it was found a study 20 that measured the burden of disease from DALY in paraplegia, bringing the effects of these data For example, this indicator can be used for survival demonstration. In GBD2013 10 the increasing sociodemographic status was associated with a change in Years of Life Lost (YLL) -for YLD, driven by declines in YLLs and YLD increases of musculoskeletal disorders, neurological diseases and mentally disorders caused by the use of chemicals.…”

Section: Studymentioning

confidence: 99%

Aplicabilidade dos estudos de carga de doença nos distúrbios fonoaudiológicos

Goulart

Oenning

2016

Rev. CEFAC

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The burden of disease methodology is composed by the calculation of specific indicators, and proposes to measure the effects of diseases on the physical, emotional and social welfare, either from the effects of premature death and morbidity, as well as comorbidities on the health conditions of the population. This study aimed to verify the possibility of application of the concept of the burden of disease in the study of human communication disorders in an attempt to introduce new methodologies and better characterize the setting of these diseases. This study involved an integrative literature review in Scielo, Lilacs and Pubmed bases, with presentation of concepts and a critical analysis of burden of disease's indicators and their potential applications in the field of speech, language and hearing sciences. The findings indicate a lack of studies using the concepts related to burden of disease as applied to human communication and its disorders as well as their implications on the life of the subject according to the methodology proposed by the World Health Organisation. There are opportunities to apply the burden of disease concept and methodology in the field of communication disorders, both, to identify the impact of diseases on the individual, as for the evaluation of the quality and also to measure the effectiveness of interventions in the field of speech-language disorders. Keywords: Speech, Language and Hearing Sciences; Quality-Adjusted Life Years; Prevalence; Incidence; Review RESUMO A metodologia de mensuração da carga de doença, composta pelo cálculo de indicadores específicos, propõe mensurar os efeitos de agravos (ou de doenças) sobre o bem estar físico, emocional e social, seja a partir dos efeitos da morte prematura e da morbidade, bem como de comorbidades sobre as condições de saúde da população. O estudo teve como objetivo verificar a possibilidade de aplicação dos conceitos de carga de doença no estudo das metodologias e melhor caracterização do cenário de agravos fonoaudiológicos. O estudo envolveu revisão integrativa da literatura nas bases Scielo, Lilacs e Pubmed, com apresentação de conceitos e uma análise crítica dos indicadores de carga de doença e suas potenciais aplicações no campo da fonoaudiologia. Os achados indicam que existe uma carência de estudos utilizando os conceitos relacionados à carga de doença aplicados à comunicação humana e seus distúrbios, bem como às implicações destas na vida do sujeito a partir da metodologia proposta pela Organização Mundial da Saúde. Há oportunidades de aplicação da metodologia foco da pesquisa, tanto para que forneça o impacto dos agravos no indivíduo, como para a avaliação da qualidade de vida e para a mensuração da efetividade das intervenções no campo dos distúrbios fonoaudiológicos.

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The DALY, context and the determinants of the severity of disease: an exploratory comparison of paraplegia in Australia and Cameroon

Cited by 96 publications

References 14 publications

Quality of life after spinal cord injury: a meta-synthesis of qualitative findings

Quality of life after spinal cord injury: a meta-synthesis of qualitative findings

Functioning and disability in people living with spinal cord injury in high- and low-resourced countries: a comparative analysis of 14 countries

Aplicabilidade dos estudos de carga de doença nos distúrbios fonoaudiológicos

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