The Effectiveness of Self-care Program on the Life Quality of Patients with Multiple Sclerosis in 2015

Seifi, Kimia; Moghaddam, Hossein Ebrahimi

doi:10.1016/j.jnma.2017.01.010

Cited by 4 publications

(11 citation statements)

References 18 publications

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“…The included studies were published between 1996 and 2021, with 70% of studies published after 2010 and 33% of studies published after 2016. The highest proportion (35%) of included studies were conducted in the USA ( n = 20) [ 40 , 41 , 47 – 49 , 51 – 53 , 59 , 60 , 63 , 74 , 81 , 83 – 86 , 88 , 91 , 93 ] followed by 28% in Europe ( n = 16; Belgium, Italy, Netherlands, Slovenia, Denmark, Germany, Turkey, Finland, Norway and Switzerland) [ 39 , 42 , 43 , 45 , 46 , 50 , 55 , 61 , 62 , 64 – 66 , 68 , 71 , 73 , 77 ], 16% in Asia ( n = 9; Iran and India) [ 55 , 57 , 58 , 69 , 70 , 72 , 75 , 82 , 92 ] and 9% in both Australia ( n = 5) [ 55 , 56 , 78 – 80 ] and UK ( n = 5) [ 38 , 67 , 76 , 89 , 90 ]. In total, 70% ( n = 40) of included studies were of experimental study designs of which 85% ( n = 34) were RCT's [ 38 , 43 – 46 , 50 , 51 , 53 – 56 , 59 , 60 – 63 , 66 ...…”

Section: Resultsmentioning

confidence: 99%

“…In total, 70% ( n = 40) of included studies were of experimental study designs of which 85% ( n = 34) were RCT's [ 38 , 43 – 46 , 50 , 51 , 53 – 56 , 59 , 60 – 63 , 66 – 76 , 83 , 84 , 86 , 88 – 91 ]. The remaining 30% of studies were of an observational study design including case–control ( n = 8) [ 40 , 41 , 52 , 65 , 71 , 81 , 92 , 93 ], cohort ( n = 7) [ 37 , 39 , 64 , 78 – 80 , 87 ] and cross sectional analysis ( n = 2) [ 47 , 48 ] studies. The duration of the studies ranged from one week to five years.…”

Section: Resultsmentioning

confidence: 99%

“… Access to messaging system did not lead to the expected improvements in patient outcomes. Seifi et al [ 92 ](Iran) Longitudinal cohortstudy N = 28 Female 18, Male 10, Mean age 38 (24 - 55) c 2x 45 min self- care sessions for controlling symptoms. None Symptom and medical management (Continence management, diet, exercise, energy preservation) QOL (WHOQOL) Mean difference (standard error) before and after self- care program: Physical health: -15.02 (2.72)*Psychological: 23.36 (2.42)*Social: -13.54 (2.78)*Living: -8.37 (1.70)**Significant difference (P < 0.001).…”

Section: Resultsmentioning

confidence: 99%

“…The impact of symptom and medical management on QOL was assessed in three studies [ 92 , 94 ]. Participants followed either a symptom self-care program [ 91 , 92 ] or program combining medication management and education [ 93 ].…”

Section: Resultsmentioning

confidence: 99%

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Understanding lifestyle self-management regimens that improve the life quality of people living with multiple sclerosis: a systematic review and meta-analysis

Wills

Probst

2022

Health Qual Life Outcomes

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Background Lifestyle self-management as an intervention for people living with multiple sclerosis (plwMS) is an emerging area of research. Previous reviews have highlighted a need to systematically identify effective self-management regimens that influence the health and well-being of plwMS using a common metric of success. Objectives To examine the effectiveness of lifestyle self-management strategies and interventions aimed at improving the quality of life (QOL), and/or disability of plwMS. The review also aimed to narratively explore common elements of self-management interventions that were effective at improving the outcomes of interest. Methods A systematic search was performed using five scientific databases. The review process followed the Cochrane Handbook for Systematic Reviews of Interventions and was registered with PROSPERO (Ref: CRD42021235982). Results A total of 57 studies including 5830 individuals diagnosed with MS, met the inclusion criteria. Self-management interventions included physical activity, fatigue, dietary, stress/coping, emotional, symptom and medical management, and lifestyle and wellbeing programs. Self-reported QOL improved in 35 of 47 studies. Dietary intervention had no statistically significant overall effect on reducing MS disability, (P = 0.18). Heterogeneity limited the ability to pool the effects from a large number of eligible studies of the same design. Conclusion Multicomponent self-management interventions, multimodal delivery methods, and cognitive behavioural theory principles were common elements of self-management interventions that improved the QOL of plwMS. However, these results should be interpreted with caution and care should be taken in its clinical application. This review has the potential to inform future management practices for plwMS and has revealed a significant gap in the literature, warranting high-quality, large-scale experimental, and observational studies that address lifestyle management.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Understanding lifestyle self-management regimens that improve the life quality of people living with multiple sclerosis: a systematic review and meta-analysis

Wills

Probst

2022

Health Qual Life Outcomes

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“…Whilst the WHOQOL-BREF has previously been applied in varied MS populations in observational and interventional studies and to validate novel measures [37][38][39] , to our knowledge this is the first study to apply modern methods to investigate the psychometric properties of the scale in a population with MS. In addition, the study has provided a novel concept for using the scale.…”

Section: Discussionmentioning

confidence: 99%

The WHOQOL-BREF: a modern psychometric evaluation of its internal construct validity in people with multiple sclerosis

et al. 2020

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Purpose Symptoms of Multiple Sclerosis (MS) differentially impact upon quality of life (QoL) and a comprehensive measure is required for use in observational and interventional studies. This study examines the abbreviated World Health Organisation Quality of Life tool (WHOQOL-BREF) which was designed to be used as a broad measure of QoL across different cultures and diseases. Methods Data were collected from 3186 subjects as part of the TONiC study in MS and was examined with a systematic, iterative approach using Rasch analysis to investigate the internal construct validity of the WHOQOL-BREF. Results Mean age was 49.8 years (SD 11.8), disease duration was 11.2 years (SD 9.6) and 73.2% were female. Subjects represented all stages of MS with EDSS scores of 0-4, 4.5-6.5, 7-7.5 and ≥ 8 seen in 49.8%, 38.5%, 6.8% and 4.9% of patients, respectively. Using a super-item approach, it was possible to demonstrate fit to the assumptions of the Rasch model for 3 of the 4 domains of the WHOQOL-BREF (physical, psychological and environment) as well as a broad 24-item total score. In addition, item subsets derived from the stem of each question were shown to function as novel scales measuring impact and life satisfaction. We have provided transformation tables from ordinal raw scores to interval scales where data are complete. Conclusions The validation of multiple conceptual frameworks validates the WHOQOL-BREF as a powerful and flexible end-point for use in clinical trials and in testing conceptual models of factors influencing QoL in MS.

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The Effectiveness of Personalized Nursing on Quality of Life in Cardiovascular Disease Patients: A Systematic Review and Meta‐analysis

Yang

Ta²,

Bai³

et al. 2023

Evidence-Based Complementary and Alternative Medicine

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Aims. This study aimed to examine the potential effectiveness of personalized nursing interventions on improving the heart-related quality of life of patients with CVDs versus an usual care. Design. A systematic review and meta-analysis. Data Sources. The study researched the article between January 2011 and December 2021 from four electronic databases: PubMed, Embase, Cochrane library, and Web of Science. Review Methods. Randomized controlled trials (RCTs) related to personalized nursing in CVDs population were included. The main variables were analyzed by standardized mean differences with 95% confidence intervals and heterogeneity was used by the I2 test and P value. Results. Of 734 studies, fourteen articles were eligible for this study. Personalized nursing significantly improved the quality of life [SMD = 0.39, 95% CI (0.29, 0.49)] with obvious heterogeneity ( P = 0.000 , I2 = 66.1%) which needs to be further subgroup analyzed. The nurse-led intervention was considered the main-related effect to influence the heterogeneity with value of 0.39 (I2 = 66.1%, P = 0.000 ; Group 1: I2 = 48.4%, P = 0.071 , and Group 2: I2 = 0.0%,. In addition, related results of athletic ability and mental health and follow-up and education in the intervention had higher level of quality of life compared to the control group [SMD = 0.27, 95% CI (0.10, 0.44); SMD = 0.21, 95% CI (0.04, 0.37); SMD = 0.39, 95% CI (0.29, 0.49) and SMD = 0.28, 95% CI (0.11, 0.44)]. Conclusion. Effectiveness studies of personalized care focus on more relevant outcomes have higher health outcomes, whereas evidence of the effectiveness of personalized nursing approach is still limited. Therefore, more and more high-quality RCT are needed.

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The Effectiveness of Self-care Program on the Life Quality of Patients with Multiple Sclerosis in 2015

Cited by 4 publications

References 18 publications

Understanding lifestyle self-management regimens that improve the life quality of people living with multiple sclerosis: a systematic review and meta-analysis

Understanding lifestyle self-management regimens that improve the life quality of people living with multiple sclerosis: a systematic review and meta-analysis

The WHOQOL-BREF: a modern psychometric evaluation of its internal construct validity in people with multiple sclerosis

The Effectiveness of Personalized Nursing on Quality of Life in Cardiovascular Disease Patients: A Systematic Review and Meta‐analysis

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