The ELSI Virtual Forum, 30 Years of the Genome: Integrating and Applying ELSI Research

Abstract

This paper reports our analysis of the ELSI Virtual Forum: 30 Years of the Genome: Integrating and Applying ELSI Research, an online meeting of scholars focused on the ethical, legal, and social implications (ELSI) of genetics and genomics. The proceedings and published literature demonstrate how justice in the implementation of genome science can be realized in two contexts: 1) by attending to equity in our decisions about how we allocate clinical and research resources, and 2) by attending to the equitable distribution of the benefits and risks of sharing genomic data. We conclude that members of the ELSI and genomics communities must work to ensure that human biases are not implemented along with genomic medicine.