The EORTC information questionnaire, EORTC QLQ-INFO25. Validation study for Spanish patients

Arrarás, Juan Ignacio; Gorostiaga, Arantxa; Hernández, Berta; Vega, F. Arias de la; Martínez, Maite; Vila, M.T.; Eito, C.; Vera, Ruth; Dominguez, Miguel A.

doi:10.1007/s12094-011-0674-1

Cited by 22 publications

(36 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…For instance, a study on cancer patients observed age and gender not to be related to QoL [5]. In contrast, few studies detected differences in QoL in relation to age [31][32][33] and gender [31]. The difference in OHRQoL between the genders might be due to the difference in influences during the life course [34].…”

Section: Discussionmentioning

confidence: 99%

Oral-health-related quality of life in patients with cancer: cultural adaptation and the psychometric testing of the Persian version of EORTC QLQ-OH17

Yekaninejad

Pakpour

Tadakamadla

et al. 2014

Support Care Cancer

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Oral-health-related quality of life in patients with cancer: cultural adaptation and the psychometric testing of the Persian version of EORTC QLQ-OH17

Yekaninejad

Pakpour

Tadakamadla

et al. 2014

Support Care Cancer

View full text Add to dashboard Cite

show abstract

“…(7,8) One form of clinical, diagnostic and social approach is to use adapted scales and questionnaires. (9) To assess the amount of information the patients with different types of cancer receive during the phases of the diagnosis and treatment process, as well as for clinical and research purposes, the Quality of Life Group of the European Organization for Research and Treatment of Cancer (EORTC) developed the QLQ INFO 25 questionnaire, (10,11) which was validated for the Brazilian context by Monique Silva Carvalho concerning the semantic equivalence; and by Claudia Fernandes Rodrigues concerning the test-retest reliability (unpublished).…”

Section: Introductionmentioning

confidence: 99%

Quality of information given to surgical patients with abdominal cancer

Silva

Souza²,

Martins³

et al. 2017

Invest Educ Enferm

View full text Add to dashboard Cite

Article linked to research: Cross-cultural adaptation of measuring instruments in oncology care practice. Conflict of interests: none to declare. Results. In general, for most items, the patients showed satisfaction with the amount of information received. The items referring to the disease, examinations, treatment and general information stand out, with an average score of more than 80%. For some items, however, there is dissatisfaction with the amount of information received, especially those related to the cause of the disease, aspects of out-of-hospital and home care, different places of care and aspects of self-help, with a satisfaction level of less than 40%. Conclusion.Despite the high level of satisfaction with the information received, it was observed that almost all patients would like more information, which makes us recommend that, as part of the care, the information offered to these patients about the treatment and the evolutionary process of the disease should be enhanced.Descriptors: abdominal neoplasms; oncology nursing; patient satisfaction. Calidad de la información ofrecida a los pacientes quirúrgicos com cáncer abdominalObjetivo. Evaluar la necesidad de información en pacientes con tumores abdominales como proceso continuo para su cuidado. Métodos. La muestra consistió en 100 pacientes ingresados en la sala de cirugía, destinada a pacientes con cáncer abdominal del Instituto José de Alencar Gomes da Silva / Instituto Nacional de INCA, entre junio y diciembre de 2016. Para la colección de datos se utilizó la versión portuguesa del cuestionario QLQ-INFO25 la EORTC. Resultados. En general, para la mayoría de los artículos, los pacientes se mostraron satisfechos con la cantidad de información recibida. Cabe destacar los artículos relacionados con la enfermedad, examen, tratamiento, e información general, con más del 80% de la media. Sin embargo, para algunos artículos hay insatisfacción en la cantidad de información recibida, especialmente los vinculados a la causa de la enfermedad, los aspectos del hospital y el lugar de cuidado, así como los diferentes sitios de atención y aspectos de autoayuda, con un grado de satisfacción inferior al 40%. Conclusión. A pesar del alto nivel de satisfacción de la información recibida, se observó que casi todos los pacientes les gustaría obtener aún más, lo que nos lleva a creer que proporcionar continuamente información sobre el tratamiento y el proceso de evolución de la enfermedad debe ser un proceso constante en el cuidado de estos pacientes.Descriptores: neoplasias abdominales; enfermería oncológica; satisfacción del paciente. Qualidade da informação oferecida a pacientes cirúrgicos com câncer abdominalObjetivo. Avaliar a necessidade de informação em pacientes portadores de neoplasias abdominais. Método. A amostra foi composta por 100 pacientes internados em enfermaria cirúrgica, destinada aos pacientes portadores de neoplasias abdominais do Instituto Nacional do Câncer José de Alencar Gomes da Silva/INCA, no período entre junho e dezembro de 2016. Para a ...

show abstract

“…Polish doctors seem to shy away from informing the patients of the diagnosis and treatment options, finding it easier to talk to the family, which often leaves them with a feeling of guilt and helplessness. This attitude has been recently changing, also in other European countries, especially among younger professionals, although communication skills are not included in postgraduate medical training (Arraras et al 2011; Bracci et al 2008; Degner et al 1998; Kotlinowska and Wilusz 2010). There is a need to adapt shared information depending on the recipient (eg.…”

Section: Introductionmentioning

confidence: 99%

“…However, the existing ones are focused mainly on patients’ satisfaction or needs (Arraras et al 2011; Bonevski et al 2000; Degner et al 1998; Mesters et al 2001; Thomas et al 2004). …”

Section: Introductionmentioning

confidence: 99%

Pilot Testing and Preliminary Psychometric Validation of the Polish Translation of the EORTC INFO25 Questionnaire

Püsküllüoğlu

Tomaszewski

Zygulska

et al. 2013

Applied Research Quality Life

View full text Add to dashboard Cite

The quality of information that oncological patients receive from health care professionals is an underestimated issue in Poland and Eastern European countries. There is lack of sufficient data on this subject. The European Organization for Research and Treatment of Cancer (EORTC) supplies a new tool for measuring the quality of information provided to cancer patients. The purpose of the study is the translation into Polish, pilot testing and preliminary validation of the EORTC information module (INFO25). Following the EORTC translation procedures, forward and back translations of the questionnaire were performed (English → Polish, Polish → English). The intermediate version of the INFO25 was pilot-tested together with the general questionnaire of quality of life (EORTC QLQ-C30). Reliability, validity and known-group comparison tests were performed. A total of 21 patients with different cancer diagnoses were recruited into the study (7 women and 14 men; mean age of 60,2 years, age range 25–73 years). Apart from filling out the INFO25, patients were interviewed about the difficulties with answering every questionnaire item. Patients' comments were analyzed and minor language changes were made to the initial translation. The internal consistency of the INFO25 showed a reliability of 0,78. The final version of the Polish translation of the INFO25 module was obtained and approved by the EORTC Quality of Life Department. It can now be used in clinical setting and for scientific purposes.

show abstract

The EORTC information questionnaire, EORTC QLQ-INFO25. Validation study for Spanish patients

Abstract: The EORTC QLQ-INFO 25 is a reliable and valid instrument when applied to a sample of Spanish cancer patients. These results are in line with those of the EORTC validation study.

Cited by 22 publications

References 28 publications

Oral-health-related quality of life in patients with cancer: cultural adaptation and the psychometric testing of the Persian version of EORTC QLQ-OH17

Oral-health-related quality of life in patients with cancer: cultural adaptation and the psychometric testing of the Persian version of EORTC QLQ-OH17

Quality of information given to surgical patients with abdominal cancer

Pilot Testing and Preliminary Psychometric Validation of the Polish Translation of the EORTC INFO25 Questionnaire

Contact Info

Product

Resources

About