The Experience of Bereaved South Asian Family Caregivers of Adult Family Members: An Interpretive Description

Kulasegaram, Pereya; Kaasalainen, Sharon; Ploeg, Jenny; Wahoush, Olive

doi:10.1016/j.jpainsymman.2018.10.323

Cited by 1 publication

(23 citation statements)

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“…In total, 26/33 articles (79%) reported that caregiving at the EOL led to psycho-socio-spiritual health challenges among ICs. 13 , 15 - 20 , 22 , 24 - 41 …”

Section: Resultsmentioning

confidence: 99%

“… 15 , 18 , 25 - 26 , 28 , 30 , 34 , 36 - 39 Two studies in particular suggested that traditional gender role norms and expectations reinforced the ideology that women were “natural” care providers. 18 , 39 These predisposed female caregivers to significantly greater levels of strain compared to male caregivers because they generally set higher standards of care provision for themselves, were more likely to have multiple dependents to care for, less likely to receive support or recognition from family and friends, and were more likely to have other roles or responsibilities to maintain outside of care-giving for the dying person. 18 , 25 - 26 , 28 , 34 , 36 - 38 …”

Section: Resultsmentioning

confidence: 99%

“… 18 , 24 , 26 , 30 , 39 ICs reported feeling unprepared to manage new caregiving tasks, helpless when unable to control medical crises, and uncertain about their abilities to fulfill their role as a caregiver successfully. 13 , 16 - 19 , 22 , 24 , 26 - 28 , 30 - 31 , 33 – 35 , 39 - 41 …”

Section: Resultsmentioning

confidence: 99%

“…In total, 26/33 articles (79%) reported that caregiving at the EOL led to psycho-socio-spiritual health challenges among ICs. 13,[15][16][17][18][19][20]22,[24][25][26][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41] Gender. Thirty-three percent (11/33) of the articles reported ICs experiencing gendered challenges.…”

Section: Physical Health Challengesmentioning

confidence: 99%

“…15,[17][18]20,24,[30][31]35,[39][40] Furthermore, ICs also reported feeling ''overlooked'' when others did not express appreciation for their work or did not provide an adequate amount of assistance and support. 18,31,35,39 Confronting deterioration and death. Twenty-seven percent (9/33) of the articles reported ICs experiencing difficulties confronting the deterioration and impending death of their loved one.…”

Section: Physical Health Challengesmentioning

confidence: 99%

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Informal Caregiving for People With Life-Limiting Illness: Exploring the Knowledge Gaps

et al. 2021

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Background: People with life-limiting illness are increasingly having more care provided to them by informal caregivers (ICs) such as family members and friends. Although there is a substantial amount of literature surrounding informal caregiving, there is a paucity of research from a hospice palliative care angle. To address this knowledge gap, this scoping review explored the effects of/challenges to informal caregiving at the end of life in Canada. Methods: Scoping review of the literature following Arksey and O’Malley’s framework. Key healthcare and social sciences databases alongside the gray literature were searched. Relevant scholarly and gray literature sources from 2005 to 2019 were screened for inclusion criteria, and a thematic content analysis employed to summarize findings. Results: Of 2,717 initial search results, 257 distinct full text articles were obtained. Following deduplication and screening, 33 met inclusion criteria. Four major themes were identified: (1) Physical health challenges, (2) Psycho-socio-spiritual health challenges, (3) Financial issues, and (4) Health system issues. Gender of ICs was also found to be an important contributor to the differing effects of providing support. Conclusions: This review raises awareness toward ICs regarding the numerous physical, psycho-socio-spiritual, financial, and health system challenges faced during care for people with life-limiting illness. The knowledge gained will inform and advance future practice, policy, and research. Application to interventions (such as caregiver benefits) will assist to improve informal caregiving experiences and outcomes alongside quality of life. Further research is required to understand these unique experiences and the challenges of minority IC populations.

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“…In total, 26/33 articles (79%) reported that caregiving at the EOL led to psycho-socio-spiritual health challenges among ICs. 13 , 15 - 20 , 22 , 24 - 41 …”

Section: Resultsmentioning

confidence: 99%