The German Multicenter Registry for ME/CFS (MECFS-R)
Hannah Hieber,
Rafael Pricoco,
Katrin Gerrer
et al.
Abstract:Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating multi-systemic disease characterized by a complex, incompletely understood etiology. To facilitate future clinical and translational research, a multicenter German ME/CFS registry was established to collect comprehensive, longitudinal, clinical, epidemiological, and laboratory data from adults, adolescents, and children in a web-based multilayer-secured database. Here, we present the research protocol and first results of a pilot coh… Show more
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