The Jacki Jacket after mastectomy with reconstruction: a randomized pilot study

Berry, Donna L.; Blonquist, Traci M.; Halpenny, Barbara; Hong, Fangxin; Morrison-Ma, Samantha C; McCullough, Michele C; Carelli, Katherine; Dominici, Laura; King, Tari A.

doi:10.1007/s10549-019-05465-9

Cited by 4 publications

(9 citation statements)

References 29 publications

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“…Of the 96 publications included in the scoping review,11 13 publications (14%) contained no information that was relevant to the objectives of this study and were therefore excluded. Thus, our analysis included 83 publications, reporting on 21 patient-driven innovations 18–100. The publications that were excluded concerned the two innovations ( DIY-APS 101–107 and PatientsLikeMe 108–113) that accounted for most of the publications included (n=49, 59%).…”

Section: Resultsmentioning

confidence: 99%

“…In addition to self-care monitoring support, the patient-driven innovations comprised a variety of non-technological products to support physical functioning and participation in social activities. Examples of such self-care management innovations are the Upsee harness that supports gait training for children with cerebral palsy,21 22 and the Jacki Jacket that helps patients with breast cancer to hide drainage tubes 19. We also found how patient innovators came up with new creative self-care methods that involved no or little product development.…”

Section: Methodsmentioning

confidence: 95%

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Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review

et al. 2023

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ObjectivesThe aim of this study was to gain a deeper understanding of the objectives and outcomes of patient-driven innovations that have been published in the scientific literature, focusing on (A) the unmet needs that patient-driven innovations address and (B) the outcomes for patients and healthcare that have been reported.MethodsWe performed an inductive qualitative content analysis of scientific publications that were included in a scoping review of patient-driven innovations, previously published by our research group. The review was limited to English language publications in peer-reviewed journals, published in the years 2008–2020.ResultsIn total, 83 publications covering 21 patient-driven innovations were included in the analysis. Most of the innovations were developed for use on an individual or community level without healthcare involvement. We created three categories of unmet needs that were addressed by these innovations: access to self-care support tools, open sharing of information and knowledge, and patient agency in self-care and healthcare decisions. Eighteen (22%) publications reported outcomes of patient-driven innovations. We created two categories of outcomes: impact on self-care, and impact on peer interaction and healthcare collaboration.ConclusionsThe patient-driven innovations illustrated a diversity of innovative approaches to facilitate patients’ and informal caregivers’ daily lives, interactions with peers and collaborations with healthcare. As our findings indicate, patients and informal caregivers are central stakeholders in driving healthcare development and research forward to meet the needs that matter to patients and informal caregivers. However, only few studies reported on outcomes of patient-driven innovations. To support wider implementation, more evaluation studies are needed, as well as research into regulatory approval processes, dissemination and governance of patient-driven innovations.

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Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 95%

Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review

et al. 2023

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“…The 20 identified innovations addressed the unmet needs of patients and family caregivers with diabetes (7 innovations, 46 publications18–63); cancer (1 innovation, 1 publication64); rare diseases (3 innovations, 5 publications65–69); gastrointestinal diseases (2 innovations, 4 publications70–73); disabilities (2 innovations, 3 publications74–76); Parkinson’s disease (2 innovations, 3 publications77–79) and mental illness (1 innovation, 2 publications80 81). There were also innovations targeting unmet needs of multiple conditions (2 innovations, 32 publications82–113).…”

Section: Resultsmentioning

confidence: 99%

Patient-driven innovations reported in peer-reviewed journals: a scoping review

et al. 2022

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BackgroundAwareness of patients’ innovative capabilities is increasing, but there is limited knowledge regarding the extent and nature of patient-driven innovations in the peer-reviewed literature.ObjectivesThe objective of the review was to answer the question: what is the nature and extent of patient-driven innovations published in peer-reviewed scientific journals?Eligibility criteriaWe used a broad definition of innovation to allow for a comprehensive review of different types of innovations and a narrow definition of ‘patient driven’ to focus on the role of patients and/or family caregivers. The search was limited to years 2008–2020.Sources of evidenceFour electronic databases (Medline (Ovid), Web of Science Core Collection, PsycINFO (Ovid) and Cinahl (Ebsco)) were searched in December 2020 for publications describing patient-driven innovations and complemented with snowball strategies.Charting methodsData from the included articles were extracted and categorised inductively.ResultsA total of 96 articles on 20 patient-driven innovations were included. The number of publications increased over time, with 69% of the articles published between 2016 and 2020. Author affiliations were exclusively in high income countries with 56% of first authors in North America and 36% in European countries. Among the 20 innovations reported, ‘Do-It-Yourself Artificial Pancreas System‘ and the online health network ‘PatientsLikeMe’, were the subject of half of the articles.ConclusionsPeer-reviewed publications on patient-driven innovations are increasing and we see an important opportunity for researchers and clinicians to support patient innovators’ research while being mindful of taking over the work of the innovators themselves.

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“…During mastectomy, drains are placed in the chest to allow fluid that accumulates under the mastectomy flap to escape and prevent seroma formation 9. A postoperative drain is usually made up of a drain tube that empties into a bulb.…”

mentioning

confidence: 99%

“…In order to diminish discomfort, nurses and patients anchor the drains in many ways. Securing and supporting drains is one reason to use a postoperative bra 9. Anchoring the drain using a supportive device such as a postoperative bra can increase comfort.…”

mentioning

confidence: 99%