The Lived Experience of Patients and Family Caregivers in Managing Pneumoconiosis

Li, Polly W.C.; Yu, Doris S.F.; Tam, Samuel Y S

doi:10.1177/10497323211002819

Cited by 4 publications

(2 citation statements)

References 51 publications

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“…Meanwhile, their wives experience jeopardised physical, emotional, and social well-being from the demanding and overloaded care burden. 10,24 These findings suggest that future research on the family-oriented management of pneumoconiosis is needed to improve the health and lives of both pneumoconiosis patients and their caregivers.…”

Section: Discussionmentioning

confidence: 99%

The impact of community-based pulmonary rehabilitation on the health and lives of migrant workers with pneumoconiosis in China: a qualitative study exploring patient experience

Nagamatsu

2023

Journal of Global Health Reports

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Background Globally, China has the highest prevalence and incidence of pneumoconiosis, which mainly occurs among migrant workers employed in dusty work environments. Pulmonary rehabilitation (PR) is recommended as the most effective therapeutic strategy in managing chronic obstructive pulmonary disease, and recent quantitative studies have validated PR’s effect on the health outcomes of patients with pneumoconiosis. However, qualitative evidence regarding PR’s impact on pneumoconiosis patients’ health and lives is lacking in the literature. Therefore, this study aimed to address this knowledge gap by exploring the experience of pneumoconiosis patients in community-based PR (CBPR). Methods A qualitative study based on the phenomenological perspective was conducted. The convenience　sampling method was used to recruit pneumoconiosis patients attending a CBPR program supported by a patient advocacy non-governmental organisation. Web-based semi-structured interviews were conducted using a self-made interview guide. Thematic analysis was performed to analyse the interview data. This study was conducted after gaining ethical approval and informed consent from all participants. Results Fifteen migrant workers with pneumoconiosis patients aged 49 to 71 years old (median: 54 years old) participated in this study. Four themes were identified from the interview data: triggering of a difficult life, reconstruction of life, sense of empowerment, and gaps in PR. Pneumoconiosis severely impaired participants’ well-being, and it triggered heavy financial strain and care burden in their families. The CBPR program allowed them to restore their physical and psychosocial health, and they achieved reconstructing their lives by leading a PR-centred life. Participating in the CBPR program, pneumoconiosis patients recognised multiple supports and were empowered with enhanced disease-coping abilities and strengthened hope to survive. Overall, participants reflected on their positive experience in the CBPR program, despite their unmet needs and existing barriers in PR. Conclusions The CBPR program integrating multiple supports empowered the vulnerable migrant workers with pneumoconiosis and facilitated their health transition and life reconstruction experience. To optimise their PR experience and improve their QoL, health service addressing their unmet needs and barriers in PR is needed. PR for pneumoconiosis patients with different sociodemographic characteristics and family-oriented management of pneumoconiosis should be explored in future research.

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Section: Discussionmentioning

confidence: 99%

The impact of community-based pulmonary rehabilitation on the health and lives of migrant workers with pneumoconiosis in China: a qualitative study exploring patient experience

Nagamatsu

2023

Journal of Global Health Reports

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“…Pneumoconiosis patients engage in less physical activity due to dyspnea and to avoid experiencing pulmonary symptoms during physical activity ( 43 ). This leads to a reduction in skeletal muscle strength, making it more challenging for them.…”

Section: Introductionmentioning

confidence: 99%

Pulmonary Rehabilitation Strategies for the Treatment of Pneumoconiosis: A Narrative Review

Zhou,

Fu,

Yan

et al. 2023

ijph

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Pneumoconiosis is a collection of lung diseases caused by inhaling mineral dust that poses an important risk to public health worldwide. Effective clinical treatments are currently limited, but pulmonary rehabilitation (PR) has shown promise in treating respiratory diseases. This review aims to assess the effectiveness of PR strategies for treating pneumoconiosis. We searched research studies that investigated the effectiveness of PR interventions for pneumoconiosis patients in international scientific databases and comprehensively reviewed PR strategies for the treatment of pneumoconiosis. Pneumoconiosis patients are increasingly being treated with a multimodal PR program. PR interventions could save healthcare costs, reduce dyspnea, improve exercise performance, and enhance overall health-related quality of life in patients with pneumoconiosis. PR interventions are effective in improving respiratory function and quality of life in patients with pneumoconiosis. However, further research is needed to determine the optimal PR strategies for pneumoconiosis patients and to investigate the long-term effects of these interventions.

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Depression and quality of life in older adults with pneumoconiosis: The mediating role of death anxiety

Cho¹,

Cho

2022

Geriatric Nursing

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The Lived Experience of Patients and Family Caregivers in Managing Pneumoconiosis

Cited by 4 publications

References 51 publications

The impact of community-based pulmonary rehabilitation on the health and lives of migrant workers with pneumoconiosis in China: a qualitative study exploring patient experience

The impact of community-based pulmonary rehabilitation on the health and lives of migrant workers with pneumoconiosis in China: a qualitative study exploring patient experience

Pulmonary Rehabilitation Strategies for the Treatment of Pneumoconiosis: A Narrative Review

Depression and quality of life in older adults with pneumoconiosis: The mediating role of death anxiety

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