The quality of information received by parents of children with chronic ill health attending hospitals as indicated by measures of illness uncertainty

Al‐Yateem, Nabeel; Docherty, Charles; Altawil, Hanan; Al-Tamimi, Muna; Ahmad, Alaa

doi:10.1111/scs.12405

Cited by 8 publications

(3 citation statements)

References 45 publications

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“…Low SOC was also associated with negative outcomes such as emotional problems, conduct problems, peer relationship problems, low self‐efficacy, poor adherence to treatment and frequent health complications at school. These results are consistent with existing evidence that suggests that the manageability/comprehensibility of illness and life with illness may influence quality of life and coping among adolescents with long‐term health conditions (Al‐Yateem, Docherty, Altawil, et al, 2017; Nogueira et al, 2009; Tiggelman et al, 2014). Interventions such as teaching skills to manage illness (Barton et al, 2003), cognitive behavioural therapy (Kashikar‐Zuck et al, 2013) and improving SOC (Elfassi et al, 2016; Elissa et al, 2020; Moksnes & Haugan, 2015; Tiggelman et al, 2014; Viswanath & Krishna, 2015) improved coping and boosted psychosocial resources among children and adolescents and were effective in reducing symptoms and psychological distress.…”

Section: Discussionsupporting

confidence: 91%

Assessing sense of coherence as an element of primary‐focused health services in schools for children and adolescents with complex health care needs

Al‐Yateem

Fakhry

Saifan

et al. 2021

J Nursing Management

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Aim: This study aimed to clarify if sense of coherence (SOC) could be used as an element of primary-focused health services in schools. Background:The United Arab Emirates (UAE) is striving to develop a high-quality, primary-focused health care system. School health care services are well established in the UAE but have not yet been fully used to play a key role in this development.Methods: This is a cross-sectional survey study to explore adolescents' SOC and their behavioural, psychosocial and clinical outcomes.Results: A total of 408 adolescents participated in this study. Compared with others, adolescents with higher SOC had better adherence to treatment, fewer visits to the school nurse, better self-efficacy, fewer hyperactivity problems, fewer emotional problems, more prosocial behaviours and fewer conduct problems. Conclusion: Implementing interventions that improve SOC may support improvedwell-being among adolescents. The findings also support the use of SOC and salutogenesis as a framework to reinforce primary health care services for this population.Implications for Nursing Management: Health service managers can utilize SOC as a framework to focus service on illness prevention and health promotion, they should collaborate with education authorities to include more health-related topics as part of school curricula to promote students' SOC and, finally, they should assess and build awareness of SOC and associated tools among school nurses and primary health care providers.

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Section: Discussionsupporting

confidence: 91%

Assessing sense of coherence as an element of primary‐focused health services in schools for children and adolescents with complex health care needs

Al‐Yateem

Fakhry

Saifan

et al. 2021

J Nursing Management

Self Cite

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“…Parents of newly diagnosed cancer children reported emotional experiences such as shock, fear, hopelessness, and feeling overwhelmed (Benedetti et al, 2014 ; Lewandowska, 2021 ). In addition, parents feel guilty for blaming their child’s illness on their actions and are concerned about their child’s future (Al Yateem et al, 2017 ). On the other hand, uncertainty changes over time and is accompanied by negative emotions, making unpleasant events more unpleasant (Bar-Anan et al, 2009 ).…”

Section: Concept Analysis Of Uncertaintymentioning

confidence: 99%

Uncertainty of parents due to having children with cancer: A concept analysis

Nurhidayah¹,

Nurhaeni²,

Allenidekania³

et al. 2023

Belitung Nurs J

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Background: Parents of newly diagnosed cancer children often experience significant concerns about the implications of the diagnosis. They find themselves in challenging decision-making situations, navigating through uncertain conditions following the disclosure. Uncertainty is a prevailing issue in healthcare, yet its interpretation and application within the context of health and nursing practice exhibit multiple meanings and variations. Objective: This study aimed to clarify the concept of parental uncertainty arising from having children with cancer. Methods: The concept analysis followed the steps outlined by Walker and Avant. A thorough literature search was conducted using the Embase, CINAHL, and MEDLINE databases to identify articles published between 1980 and 2022. Results: The literature search yielded 147 articles from various disciplines, including health, nursing, medicine, psycho-oncology, and management. After analysis, 20 articles were selected for inclusion. This study identified four key attributes of parental uncertainty associated with having a child with cancer: (1) emotional disturbance, (2) unpredictability, (3) insufficient information, and (4) problems with decision-making. The antecedents of parental uncertainty encompassed the complexity of the disease, the diagnostic and treatment processes, the hospital environment, communication, and support from credible authorities. The consequences of parental uncertainty included the pursuit of new information, parental adaptability to their role, and parental distress. Conclusion: Understanding the four attributes of parental uncertainty, along with their antecedents and consequences, can facilitate the future development and operational translation of the concept of uncertainty in nursing practice. This concept is valuable in the evidence-based provision of nursing care to parents of children with cancer, enabling comprehensive recognition and assessment of parental uncertainty and the implementation of appropriate interventions that are sensitive to parental experiences. Ultimately, this approach promotes the adaptation of both the child and the parent.

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“…Negative coping refers to using fear, escape, and other emotions to deal with pressure, allowing things to develop further, and inability to find ways to solve the problem, which increases the malignant development of stressful events[ 6 ]. Some previous research has shown that coping styles can improve patients’ abilities to seek social support and overcome negative emotions, such as depression[ 7 ]. During stroke patients’ treatment and rehabilitation, an active coping style can help them confront their illness more proactively and promote long-term resilience.…”

Section: Introductionmentioning

confidence: 99%

Uncertainty in illness and coping styles: Moderating and mediating effects of resilience in stroke patients

Han¹,

Zhang²,

Wang³

et al. 2021

WJCC

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BACKGROUND Stroke has a great influence on the patient’s mental health, and reasonable psychological adjustment and disease perception can promote the recovery of mental health. AIM To explore the relationships among resilience, coping style, and uncertainty in illness of stroke patients. METHODS A retrospective study was used to investigate 154 stroke patients who were diagnosed and treated at eight medical institutes in Henan province, China from October to December 2019. We used the Mishel Uncertainty in Illness Scale, the Connor-Davidson Resilience Scale, and the Medical Coping Modes Questionnaire to test the uncertainty in illness, resilience, and coping style, respectively. RESULTS Resilience had a significant moderating role in the correlation between coping style and unpredictability and information deficiency for uncertainty in illness ( P < 0.05). Further, the tenacity and strength dimensions of resilience mediated the correlation between the confrontation coping style and complexity, respectively ( P < 0.05). The strength dimension of resilience mediated the correlation between an avoidance coping style and the unpredictability of uncertainty in illness ( P < 0.05), as well as correlated with resignation, complexity, and unpredictability ( P < 0.05). CONCLUSION Resilience has moderating and mediating roles in the associations between coping style and uncertainty in illness, indicating that it is vital to improve resilience and consider positive coping styles for stroke patients in the prevention and control of uncertainty in illness.

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The quality of information received by parents of children with chronic ill health attending hospitals as indicated by measures of illness uncertainty

Cited by 8 publications

References 45 publications

Assessing sense of coherence as an element of primary‐focused health services in schools for children and adolescents with complex health care needs

Assessing sense of coherence as an element of primary‐focused health services in schools for children and adolescents with complex health care needs

Uncertainty of parents due to having children with cancer: A concept analysis

Uncertainty in illness and coping styles: Moderating and mediating effects of resilience in stroke patients

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