The relationship between parental overprotection and health-related quality of life in pediatric cancer: the mediating role of perceived child vulnerability

Abstract

The findings highlight the need to assess for these discrete parenting variables in parents of children with cancer and to develop interventions to target parental perceptions of vulnerability.

Cuidador familiar del niño con cáncer: un rol en transición

“…La relación con el niño con cáncer, en varias ocasiones, tiene matices de sobreprotección que pueden llevar a un vínculo patológico en el que no solo se ve afectado el sano desarrollo de la personalidad del niño, sino también los sentimientos y metas del cuidador en su rol parental (Hullmann et al, 2010;Tillery et al, 2014). La relación con el resto de la familia se ve afectada por el aislamiento del cuidador, que dedica gran parte de su tiempo, atención, motivación y energía al cuidado del niño enfermo, dejando de lado la relación con su cónyuge u otros hijos (Rech et al, 2013;Williams et al, 2014;Zegaczewski et al, 2016).…”

Effect and Process Evaluation of e-Powered Parents, a Web-Based Support Program for Parents of Children With a Chronic Kidney Disease: Feasibility Randomized Controlled Trial (Preprint)

“…Child's quality of life was measured using the validated Dutch version [17] of the Child Vulnerability Scale (CVS) [18], a proxy instrument measuring the parental perceptions of the child's vulnerability, which is related to the child's Health Related Quality of Life (HRQoL) [19]. Each of the eight items is scored on a four point Likert scale (0 = 'definitely true'; 3 = 'definitely false').…”

Health-Related Quality of Life in Children with Cancer

“…Studies that have assessed the impact of cancer diagnosis on HRQOL have conflicting results, with some studies showing a significant effect of diagnosis on HRQOL, and others reporting the cancer diagnosis as having little impact on HRQOL. 7,8,13,15,16,[39][40][41][42][43][44][45][46][47] Two studies found that children with ALL tend to report higher HRQOL than children with solid tumors or central nervous system (CNS) tumors, 13,15,39 while another study reported that children with ALL experience a lower HRQOL than other groups. 8 The poorest HRQOL was reported in children with AML and solid tumors, 15,48 while other studies reported finding no correlation between the type of cancer and HRQOL of children.…”

“…8 The poorest HRQOL was reported in children with AML and solid tumors, 15,48 while other studies reported finding no correlation between the type of cancer and HRQOL of children. 7,13,16,[39][40][41][42]46,49 Most of these studies measured HRQOL in a mixed sample of multiple, small diagnostic groups, thus proving difficult to interpret the effects of cancer type on the HRQOL outcome.…”

“…Age was one of the frequently mentioned factors measured in children with cancer. [7][8][9]13,16,39,40,42,[44][45][46][47]49,50 However, of the 17 studies that measured age as a variable of HRQOL, only four identified age as having a significant impact on HRQOL during treatment. 9,13,44,46 Young children generally reported lower procedural anxiety and treatment anxiety than adolescents, 9 while older children reported better social HRQOL and communication that younger children.…”