The Second International Workshop on the Evaluation and Management of Hypoparathyroidism

Khan, Aliya; Bilezikian, John P.; Brandi, Maria Luisa; Clarke, B.L.; Potts, John J; Mannstadt, Michael

doi:10.1002/jbmr.4671

Cited by 5 publications

(3 citation statements)

References 11 publications

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“…Various guidelines and consensus statements recommend assessing blood serum levels of calcium, phosphate, magnesium, and creatinine at least every 6 months (3–12 months depending on the guideline) if the patient is on a stable treatment regimen [ 8 , 10 , 11 , 33 – 35 ]; 24-h urine calcium excretion should be measured annually to identify hypercalciuria and other potential renal impairments [ 8 , 10 , 11 , 33 – 35 ]. For calcium blood concentrations, an acceptable share of 73.8% of the patients in our study reported having measurements at least every 6 months.…”

Section: Discussionmentioning

confidence: 99%

Hypoparathyroidism – management, information needs, and impact on daily living from the patients’ perspective: results from a population-based survey

Büttner¹,

Krogh

Führer

et al. 2023

Hormones

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Purpose Hypoparathyriodism (hypoPT) is a rare endocrine disorder. It is not known how hypoPT is managed in Germany or whether patients have unmet information needs or impairments in their daily living. Methods HypoPT patients at a minimum of 6 months’ post-diagnosis were invited to participate in an online survey through their treating physician or through patient organizations. An extensive questionnaire, which was developed and pilot-tested with hypoPT patients, was administered. Results A total of 264 patients with a mean age of 54.5 years (SD: 13.3), 85.2% female and 92% with postsurgical hypoPT, participated in the study. In total, 74% of the patients reported regular monitoring of serum calcium at least every 6 months, with lower control frequencies for phosphate (47%), magnesium (36%), creatinine (54%), and parathyroid hormone (50%), and 24-h urine calcium excretion (36%) on a yearly basis. Information on symptoms of hypo- and hypercalcemia was available in 72 and 45% of the patients. Information needs were related to the disease and its treatment as well as to nutrition, physical activities/sports, and support opportunities. Statistically significant differences for all information needs in association with symptom burden were observed. Hospitalization for hypocalcemia was reported by 32%, nutritional impairments (38%) or impact on work ability (52%) was available among patients with hypoPT. Conclusion HypoPT patients experience impairments in daily living and report unmet information needs. Patient and physician education regarding hypoPT is one of the key concepts for improving the management of patients with hypoPT.

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Section: Discussionmentioning

confidence: 99%

Hypoparathyroidism – management, information needs, and impact on daily living from the patients’ perspective: results from a population-based survey

Büttner¹,

Krogh

Führer

et al. 2023

Hormones

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show abstract

“…(22)(23)(24)(25)(26)(27)(28) In the commentary introducing those reports, we gratefully acknowledge those who were involved in that major effort. (29) Ever mindful of this international effort, we have reached out to many organizations, societies, and patient advocacy groups. We requested their review and incorporated their valuable suggestions.…”

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confidence: 99%

“…( 22‐28 ) In the commentary introducing those reports, we gratefully acknowledge those who were involved in that major effort. ( 29) …”

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confidence: 99%

The Fifth International Workshop on the Evaluation and Management of Primary Hyperparathyroidism

Bilezikian

Khan

Clarke

et al. 2020

Journal of Bone and Mineral Research

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New insights into the vitamin D/PTH axis in endocrine-driven metabolic bone diseases

di Filippo,

Bilezikian,

Canalis

et al. 2024

Endocrine

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The Second International Workshop on the Evaluation and Management of Hypoparathyroidism

Cited by 5 publications

References 11 publications

Hypoparathyroidism – management, information needs, and impact on daily living from the patients’ perspective: results from a population-based survey

Hypoparathyroidism – management, information needs, and impact on daily living from the patients’ perspective: results from a population-based survey

The Fifth International Workshop on the Evaluation and Management of Primary Hyperparathyroidism

New insights into the vitamin D/PTH axis in endocrine-driven metabolic bone diseases

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