The self-management abilities test (SMAT): a tool to identify the self-management abilities of adults with bronchiectasis

Abstract

Bronchiectasis is an increasingly common chronic respiratory disease which requires a high level of patient engagement in self-management. Whilst the need for self-management has been recognised, the knowledge and skills needed to do so— and the extent to which patients possess these—has not been well-specified. On one hand, understanding the gaps in people’s knowledge and skills can enable better targeting of self-management supports. On the other, clarity about what they do know can increase patients’ confidence to self-manage. This study aims to develop an assessment of patients’ ability to self-manage effectively, through a consensus-building process with patients, clinicians and policymakers. The study employs a modified, online three-round Delphi to solicit the opinions of patients, clinicians, and policymakers (N = 30) with experience of bronchiectasis. The first round seeks consensus on the content domains for an assessment of bronchiectasis self-management ability. Subsequent rounds propose and refine multiple-choice assessment items to address the agreed domains. A group of ten clinicians, ten patients and ten policymakers provide both qualitative and quantitative feedback. Consensus is determined using content validity ratios. Qualitative feedback is analysed using the summative content analysis method. Overarching domains are General Health Knowledge, Bronchiectasis-Specific Knowledge, Symptom Management, Communication, and Addressing Deterioration, each with two sub-domains. A final assessment tool of 20 items contains two items addressing each sub-domain. This study establishes that there is broad consensus about the knowledge and skills required to self-manage bronchiectasis effectively, across stakeholder groups. The output of the study is an assessment tool that can be used by patients and their healthcare providers to guide the provision of self-management education, opportunities, and support.

Educação Em Saúde Na Qualidade De Vida Em Pacientes Com Bronquiectasias: Uma Revisão Sistemática

“…Pois, as intervenções de autogestão são potencialmente importantes para capacitar as pessoas com bronquiectasias a gerenciar sua condição de forma mais eficaz e a procurar atendimento em tempo hábil. As estratégias de educação em saúde, além de esclarecer as mudanças psicológicas e físicas que a doença pode provocar, ensinam a lidar adequadamente com elas e estimulam à adesão do paciente ao tratamento (ARAÚJO, 2022& SMALLEY, 2022.…”

“…Além disso, os pacientes com bronquiectasias descrevem a falta de informações confiáveis disponíveis para eles além daquelas obtidas na clínica e confessam o papel da informação do paciente no desenvolvimento das aptidões e confiança necessários para conviver com ela e administrar sua condição de vida. Permitir que os pacientes se automedicam com segurança por meio de educação de autocuidado, serviços similares ou outro suporte é essencial para os sistemas de saúde (HESTER, 2020& SMALLEY, 2022.…”

Telehealth interventions for transition to self‐management in adolescents with allergic conditions: A systematic review

“…Although the language and concepts of self‐management and transition were referenced in many articles, and outcomes measured contribute to their attainment, 72,73 no study measured these explicitly as outcomes. To the best of our knowledge, no appropriate measure of self‐management itself for adolescents is available, although these exist in adult fields 74,75 . Generic transition readiness assessment questionnaires are available, 76,77 however, no study used these.…”

“…To the best of our knowledge, no appropriate measure of self-management itself for adolescents is available, although these exist in adult fields. 74,75 Generic transition readiness assessment questionnaires are available, 76,77 however, no study used these. This may be linked to the lack of use of the language of transition in these articles, which is unsurprising given that Khaleva et al identified a lack of training of allergy and asthma HCPs in the area of transition.…”