The Sibling Center: A Pilot Program for Siblings of Children and Adolescents with a Serious Medical Condition

Validity of the revised Impact on Family (IOF) scale

“…1,7,[18][19][20][21][22][23][24][25][26][27][28][29] Measures or instruments that can be used to assess the impact of a broad range of pediatric chronic conditions on the family are central to the provision of appropriate health care to children and families and are needed for research. Measures that can be used to assess or evaluate interventions designed to ameliorate or alleviate the negative effects of chronic illness or disability on families and children are very welcome.…”

“…Measures that can be used to assess or evaluate interventions designed to ameliorate or alleviate the negative effects of chronic illness or disability on families and children are very welcome. 4,5,[26][27][28][29] The revised IOF should be added to the armamentarium of such measures. The results of this analysis suggest that this instrument can be used to generate such a measure with considerable confidence.…”

“…A simple form such as the revised IOF, for example, might be used to evaluate effects of services on families using sibling centers, recently described in this Journal. 29 …”

Developmental Disabilities: Effects on Well Siblings

“…In some studies, sibling behavior problems were in the clinical range (2 SDs above the mean) on a standardized instrument (Laufersweiler-Plass et al, 2003;Lobato, Barbour, Hall & Miller, 1987). For these siblings and families, crisis intervention strategies and health services have been described (Dattilio & Freeman, 2000;Fanos, Fahner, Jelveh, King & Taeda, 2005). It is noted also that a recent study by Williams et al (2009) found that parents' descriptions reflected mainly negative effects (74.7%) in siblings of children with cystic fibrosis and cancer, with 24.2% reflecting some positive effects and only 1.1% of parents reporting "no effects."…”

Siblings of children with cystic fibrosis: quality of life and the impact of illness

“…Studies have shown that siblings may experience psychological problems (Lobato & Kao 2002; Sharpe & Rossiter 2002; Williams et al . 2002; Fanos et al . 2005; Tsuchie et al .…”