The stakeholders' views on and experiences with the use of telemedicine to improve palliative care in rural areas – a study protocol for a mixed methods study

Bollig, Georg; Brink, Anette; Skjøt‐Arkil, Helene; Fredskild, Trine Ungermann; Bachmann, Kirsten Helene; Sørensen, Thomas Lund

doi:10.13070/rs.en.4.2409

Cited by 3 publications

(7 citation statements)

References 8 publications

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“…Almost all informants had a computer and internet access at home. This shows that a "bring your own device" (BYOD) approach is feasible in the rural area of Southern Denmark, as planned for our ongoing project [13]. This situation might be similar to most European and Western countries.…”

Section: Discussionmentioning

confidence: 73%

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Palliative Patients’ and Relatives’ Views on Using Telemedicine in Palliative Care – A Pilot Study from Southern Denmark

Bachmann

Bollig

Brink

2019

ARC Journal of Nursing and Healthcare

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Background: Many people want to die at home. Telemedicine could probably provide better access to specialised palliative care especially in rural areas. Method: A qualitative study with interviews of patients and relatives. The informants were asked for their opinion about telemedicine and their interest in participation in consultations via telemedicine. 15 palliative patients (7 women and 8 men aged 29-80 years) and 5 relatives were included. Results: Most participants from our study are positive about using telemedicine in palliative care. Besides the more personal contact, another advantage might be that relatives and other health carers may also participate in video-consultations. Most men stated that it would be easier to show bodily changes and that the contact could be more personal. Many women prefer consultations by phone. Many informants state that telemedicine could not replace a face-to-face meeting, but would be superior compared to a phone call. Conclusion: Our pilot study suggests that the overall idea of using telemedicine in palliative care is acceptable for almost all patients and relatives. Nevertheless, many women from our pilot study would prefer a telephone consultation without a camera. Future research should aim to investigate patients' and relatives' experiences with telemedicine in palliative care.

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Section: Discussionmentioning

confidence: 73%

“…The presented pilot study was the first part of an ongoing project [13]. It was designed as a qualitative pilot-study with telephone and face-to face interviews of patients and relatives about their views on the use of telemedicine and video communication in palliative care without having any prior practical experience with it.…”

Section: Methodsmentioning

confidence: 99%

Palliative Patients’ and Relatives’ Views on Using Telemedicine in Palliative Care – A Pilot Study from Southern Denmark

Bachmann

Bollig

Brink

2019

ARC Journal of Nursing and Healthcare

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“…Interpretive description acknowledges subjective and experiential knowledge as fundamental sources of applied practice and insight and that human experiences are constructed within a social context to which they are connected (13). The current study is situated within a larger project concerning telemedicine in palliative care in South Jutland, Denmark (14). By conducting focus group interviews and participant observations, district nurses' and specialised palliative care team (SPCT) teachers' experiences, shared and individual, are described and interpreted.…”

Section: Methodsmentioning

confidence: 99%

“…District nurses who took part in the programme were invited to participate in the study via e-mails from nursing managers acting as gatekeepers. The gatekeepers were also representatives from the four municipalities in the research project's steering group (14). A sample was recruited aiming for maximum variation for age, municipality, postgraduate education, years of experience in health care and years of experience in palliative care.…”

Section: Participantsmentioning

confidence: 99%

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District nurses’ views on and experiences with a telemedicine educational programme in palliative care

Bauer

Bollig

Dieperink

2020

Scandinavian Caring Sciences

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District nurses' views on and experiences with a telemedicine educational programme in palliative care Background: Medical advancements, limited resources and shifting demographics have increased the number of patients with palliative care needs in primary care. To address educational needs, the specialised palliative care team of South Jutland, Denmark, created a telemedicine educational programme in palliative care to empower district nurses. Aim: The study aimed to explore district nurses' views on and experiences with a telemedicine educational programme in palliative care. Research methods: A qualitative explorative study based on interpretive description was conducted. Data collection consisted of four focus group interviews with district nurses from three municipalities, supplemented by participant observations and a focus group interview with teachers from the specialised palliative care team. Data were analysed using predominately inductive thematic analysis. Results: District nurses (n = 15) who participated in the programme and members of the specialised palliative care team (n = 6) who taught the programme were included. Analysis revealed the following advantages: reaffirming and updating existing knowledge, reduced professional isolation and creation of a forum to promote knowledge dissemination. A disadvantage was limited interaction between teachers and district nurses, questioning suitability for teaching complex palliative care. Initial technical problems affected motivation to participate. Organisational support differed between participating municipalities resulting in varying degrees of programme integration. Despite advantages of IT-expert-led sessions, key-nurse-led sessions in smaller groups proved more beneficial, suggesting a combination of IT support and key-nurse management to maximise benefits. Conclusion: The use of an inter-professional telemedicine educational programme to teach palliative care to district nurses is beneficial. However, programmes should be designed for interactivity and address varying educational needs. Key-nurse roles require managerial and IT support to optimise knowledge dissemination. Further research on implementation of telemedicine education in palliative care is needed.

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Patients’ and Relatives’ Preferences for a Palliative/Oncology Day Ward and Out-of-Hours Telemedicine—An Interpretive Description

et al. 2021

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Demographical challenges require adaptation and tailoring of services to suit palliative patients’ and relatives’ needs. Therefore, an interpretive descriptive study was performed to explore patients’ and relatives’ preferences for the establishment of a day ward and out-of-hours telemedicine. Semi-structured interviews were performed, and data were analysed using thematic analysis. Participants included patients (n = 12) and relatives (n = 5). Three themes emerged: (1) ‘Transport burden’ relates to transition from home-to-hospital-to-home and acknowledges the strain placed on patients and relatives. (2) ‘Role of relatives’ contemplates how the role of families in patient care influences patient preferences. (3) ‘Telemedicine—preferences and concerns’ covers preferences and concerns related to telemedicine in palliative care. The burden of transport and living alone play substantial roles in preferences for place of treatment. Relatives of palliative patients who avail of a day ward and telemedicine may experience an increase in the burden of care. Recognition of concerns pertinent to palliative patients and relatives is an important step in planning new services in palliative care. Concerns may be mitigated by rethinking referral guidelines, incorporating voluntary services, early integration of telemedicine into palliative care and examining patients and relatives’ expectations to care, but requires further research.

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The stakeholders' views on and experiences with the use of telemedicine to improve palliative care in rural areas – a study protocol for a mixed methods study

Cited by 3 publications

References 8 publications

Palliative Patients’ and Relatives’ Views on Using Telemedicine in Palliative Care – A Pilot Study from Southern Denmark

Palliative Patients’ and Relatives’ Views on Using Telemedicine in Palliative Care – A Pilot Study from Southern Denmark

District nurses’ views on and experiences with a telemedicine educational programme in palliative care

Patients’ and Relatives’ Preferences for a Palliative/Oncology Day Ward and Out-of-Hours Telemedicine—An Interpretive Description

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