There Is Much to Learn When You Listen: Exploring Citizen Engagement in High- and Low-Income Countries

Ellen, Moriah; Shach, Ruth; Kok, Maryse; Fatta, Katherine

doi:10.12927/whp.2017.25307

Cited by 9 publications

(12 citation statements)

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“…This study found that the contextual and conceptual factors pertinent to consider when integrating CE into EIP in LMICs and NDSs related to the willingness and capacity of both citizens and policy-makers to engage in the process. Therefore, the claim that a different approach to CE was required in LMICs [ 21 ] was found not to be due to a country’s financial capabilities (as this labels implies), but in their political culture [ 32 ]. Specifically, sufficient trust between citizens and policy-makers was identified as a necessary prerequisite to develop the willingness of each to faithfully engage in CE mechanisms and avoid negative effects upon democratization and health outcomes [ 46 ].…”

Section: Discussionmentioning

confidence: 99%

“…In order to consider the practicalities of implementing CE in practice, we took a context-specific approach to considering the social, economic and political characteristics of one region [ 17 , 21 ]. We considered it important for that region to have an established culture of EIP in order to consider the integration of CE specifically, as opposed to EIP more generally.…”

Section: Methodsmentioning

confidence: 99%

“…The importance of taking a context-specific approach to the implementation of CE has been emphasized, suggesting that the selection of appropriate mechanisms may depend on a state’s social, economic and political characteristics [ 17 , 21 ]. While CE in EIP proliferates in high-income countries (HICs) [ 11 ], less is known regarding its implementation in low- and middle-income countries (LMICs) and newly democratic states (NDSs).…”

Section: Introductionmentioning

confidence: 99%

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Integrating citizen engagement into evidence-informed health policy-making in eastern Europe and central Asia: scoping study and future research priorities

Macaulay

Reinap

Wilson

et al. 2022

Health Res Policy Sys

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Background The perspectives of citizens are an important and often overlooked source of evidence for informing health policy. Despite growing encouragement for its adoption, little is known regarding how citizen engagement may be integrated into evidence-informed health policy-making in low- and middle-income counties (LMICs) and newly democratic states (NDSs). We aimed to identify the factors and variables affecting the potential integration of citizen engagement into evidence-informed health policy-making in LMICs and NDSs and understand whether its implementation may require a different approach outside of high-income western democracies. Further, we assessed the context-specific considerations for the practical implementation of citizen engagement in one focus region—eastern Europe and central Asia. Methods First, adopting a scoping review methodology, we conducted and updated searches of six electronic databases, as well as a comprehensive grey literature search, on citizen engagement in LMICs and NDSs, published before December 2019. We extracted insights about the approaches to citizen engagement, as well as implementation considerations (facilitators and barriers) and additional political factors, in developing an analysis framework. Second, we undertook exploratory methods to identify relevant literature on the socio-political environment of the focus region, before subjecting these sources to the same analysis framework. Results Our searches identified 479 unique sources, of which 28 were adjudged to be relevant. The effective integration of citizen engagement within policy-making processes in LMICs and NDSs was found to be predominantly dependent upon the willingness and capacity of citizens and policy-makers. In the focus region, the implementation of citizen engagement within evidence-informed health policy-making is constrained by a lack of mutual trust between citizens and policy-makers. This is exacerbated by inadequate incentives and capacity for either side to engage. Conclusions This research found no reason why citizen engagement could not adopt the same form in LMICs and NDSs as it does in high-income western democracies. However, it is recognized that certain political contexts may require additional support in developing and implementing citizen engagement, such as through trialling mechanisms at subnational scales. While specifically outlining the potential for citizen engagement, this study highlights the need for further research on its practical implementation.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Integrating citizen engagement into evidence-informed health policy-making in eastern Europe and central Asia: scoping study and future research priorities

Macaulay

Reinap

Wilson

et al. 2022

Health Res Policy Sys

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“…P&O health care providers have a unique opportunity to challenge this by engaging patients, who may be lifelong users of their services, and working together in partnership. Translating this co-production approach, more commonly used in HICs and in technology development, into LRSs could give PWD the opportunity to act as role models, improve empowerment and work together with health care providers to shape services that meet their needs and improve their outcomes (Ellen et al, 2017). As well as service users, opportunities also exist, and are welcomed, for engagement with government.…”

Section: Overall Discussionmentioning

confidence: 99%

Engaging multisector stakeholders to identify priorities for global health innovation, change and research: an engagement methodology and application to prosthetics service delivery in Cambodia

Metcalf¹,

Ostler²,

Thor³

et al. 2021

Preprint

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A novel engagement methodology is presented for working with multi-sector stakeholders. The proposed methodology can be used to determine barriers and facilitators to translational research within a country-specific context by working with stakeholders in a responsive and collaborative way. A values-based stakeholder ethos throughout a research project lifecycle. This approach ensures the suitability and sustainability of research programmes being implemented within a complex ecosystem. A theoretical basis, drawn from academic and business innovation sectors, has been consolidated and adapted for practical application to design, direct and inform research in low resource settings; a complete engagement methodology is defined. The benefit of advocating an holistic approach and embedding stakeholder engagement has been applied in the prosthetics and orthotics sector in Cambodia. Considering these issues affects the legacy of any proposed change from a research programme, supporting capacity building, sector influence and ensuring relevance to partners; promoting trust for future collaborations.

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“…If an individual's financial situation can be a determinant of their health-seeking behavior, then it follows that it can also affect their engagement in research [23,29,30]. Patients often incur out-of-pocket medical costs for diagnosis, travel to healthcare facilities, and treatment [31], which places a high burden on patients of low socioeconomic status.…”

Section: Low Socioeconomic Statusmentioning

confidence: 99%

Lessons for Patient Engagement in Research in Low- and Middle-Income Countries

Janic

Kimani

Olembo³

et al. 2020

Ophthalmol Ther

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Patient engagement in research is marked by partnership between clinicians, scientists, and people with lived experience of a disease, who jointly develop and implement research and disseminate results. Patient engagement in research has been shown to lead to more impactful and relevant findings. There is a global need for quality research contextualized for lowand middle-income countries (LMICs). Patient involvement in research could address this need, yet it remains a practice more commonly employed in high income countries. In this paper, the authors explore LMIC-specific challenges and opportunities for patient engagement in research. Limitations to patient engagement in research include gaps in health infrastructure, socioeconomic status, cultural stigma, and uncertain roles. Potential solutions to address these challenges include strategic national and international research partnerships, initiatives to combat stigma, and sensitization and training of stakeholders in patient engagement in research.Reflecting on their patient engagement experience with eye cancer research in Canada and Kenya, and supported by evidence of patient engagement in other low-resource settings, the authors provide a roadmap for patient engagement in research in LMICs.

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There Is Much to Learn When You Listen: Exploring Citizen Engagement in High- and Low-Income Countries

Cited by 9 publications

References 0 publications

Integrating citizen engagement into evidence-informed health policy-making in eastern Europe and central Asia: scoping study and future research priorities

Integrating citizen engagement into evidence-informed health policy-making in eastern Europe and central Asia: scoping study and future research priorities

Engaging multisector stakeholders to identify priorities for global health innovation, change and research: an engagement methodology and application to prosthetics service delivery in Cambodia

Lessons for Patient Engagement in Research in Low- and Middle-Income Countries

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