Those that Urbanization Left Behind: A Case Study of Spatial Disparities and Rising Dependency in Coastal Areas in Mindanao, the Philippines

et al. 2020

Int J Ment Health Syst

Background: The generation of people getting older has become a public health concern worldwide. People aged 65 and above are the most at risk for Alzheimer's disease which is associated with physical and behavioral changes. This nurtures informal support needs for people living with dementia where their families together with other community members are the core providers of day to day care for them in the rural setting. Despite global concern around this issue, information is still lacking on informal support delivered to these people with dementia. Objective: Our study aimed at establishing the nature of informal support provided for people with dementia (PWDs) and its perceived usefulness in rural communities in South Western Uganda. Methods: This was a qualitative study that adopted a descriptive design and conducted among 22 caregivers and 8 opinion leaders in rural communities of Kabale, Mbarara and Ibanda districts in South Western Uganda. The study included dementia caregivers who had been in that role for a period of at least 6 months and opinion leaders in the community. We excluded trained health workers. Results: The study highlights important forms of informal support offered to PWDs such as support in activities of daily living, enabling access to medical attention, recovering misplaced items, provision of herbal remedy, informal counseling, and sourcing carers from other families to offer presence and support in the hope to impact positively on behavioral outbursts and the frustration of living with dementia. Conclusion: The study revealed various forms of informal support that are available for PWDs in South Western Uganda and stressed the role of caregivers and the perceived usefulness of the care provided.

Section: International Journal Of Mental Health Systemsmentioning

confidence: 99%

Informal support for people with Alzheimer’s disease and related dementias in rural Uganda: a qualitative study

et al. 2020

Int J Ment Health Syst

“…Based on this culture, the aged including those with dementia, were given home care by the young ones in the family who provided them direct support in the family and lived with them at all times. With new changes in the socio-economic patterns and with children leaving to urban settings to earn a living, the elderly and PWDs are left in the care of the sons and daughters-inlaw and grandchildren who may not provide adequate care for many reasons (10). With that background, our study set out to explore the nature of informal support provided to people with dementia in rural communities in Southwestern Uganda.…”

Section: Mental Healthiness Services Have Not Been Fully Established mentioning

confidence: 99%

Informal support for people with Alzheimer’s Disease and related dementias in rural Uganda: A qualitative study

et al. 2020

Preprint

Background The generation of people getting older has become a public health concern worldwide. People aged 65 and above are the most at risk for Alzheimer’s disease which is associated with physical and behavioral changes. This nurtures informal support needs for people living with dementia where their families together with other community members are the core providers of day to day care for them in the rural setting. Despite global concern around this issue, information is still lacking on informal support delivered to these people with dementia. Objective Our study aimed at establishing the nature of informal support provided for people with dementia (PWDs) and its perceived usefulness in rural communities in South Western Uganda. Methods This was a qualitative study that adopted a descriptive design and conducted among 22 caregivers and 8 opinion leaders in rural communities of Kabale, Mbarara and Ibanda districts in South Western Uganda. The study included dementia caregivers who had been in that role for a period of at least six months and opinion leaders in the community. We excluded trained health workers. Results The study highlights important forms of informal support offered to PWDs such as support in activities of daily living, enabling access to medical attention, recovering misplaced items, provision of herbal remedy, informal counseling, and sourcing carers from other families to offer presence and support in the hope to impact positively on behavioral outbursts and the frustration of living with dementia. Conclusion The study revealed various forms of informal support that are available for PWDs in South Western Uganda and stressed the role of caregivers and the perceived usefulness of the care provided.

“…Based on this culture, the aged including those with dementia, were given home care by the young ones in the family who provided them direct support in the family and lived with them at all times. With new changes in the socio-economic patterns and with children leaving to urban settings to earn a living, the elderly and PWDs are left in the care of the sons and daughters-inlaw and grandchildren who may not provide adequate care for many reasons (11). With that background, our study set out to explore the nature of informal support provided to people with dementia in rural communities in Southwestern Uganda.…”

Section: Introductionmentioning

confidence: 99%

Informal Support for People With Alzheimer’s Disease and Related Dementias in Rural Uganda: A Qualitative Study

et al. 2020

Preprint

Background: The generation of people getting older has become a public health concern worldwide. People aged 65 and above are the most at risk for Alzheimer’s disease which is associated with physical and behavioral changes. This nurtures informal support needs for people living with dementia where their families together with other community members are the core providers of day to day care for them in the rural setting. Despite global concern around this issue, information is still lacking on informal support delivered to these people with dementia. Objective: Our study aimed at establishing the nature of informal support provided for people with dementia (PWDs) and its perceived usefulness in rural communities in South Western Uganda. Methods: This was a qualitative study that adopted a descriptive design and conducted among 22 caregivers and 8 opinion leaders in rural communities of Kabale, Mbarara and Ibanda districts in South Western Uganda. The study included dementia caregivers who had been in that role for a period of at least six months and opinion leaders in the community. We excluded trained health workers. Results: The study highlights important forms of informal support offered to PWDs such as support in activities of daily living, enabling access to medical attention, recovering misplaced items, provision of herbal remedy, informal counseling, and sourcing carers from other families to offer presence and support in the hope to impact positively on behavioral outbursts and the frustration of living with dementia.Conclusion: The study revealed various forms of informal support that are available for PWDs in South Western Uganda and stressed the role of caregivers and the perceived usefulness of the care provided.