2024
DOI: 10.1007/s40489-024-00440-7
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Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

Kate Simpson,
Jessica Paynter,
Marleen Westerveld
et al.

Abstract: This review examines methods used to report on the QoL and/or well-being of autistic people. A search of four databases (June 2023) identified 256 studies that reported on the Qol and/or well-being of at least one autistic person. The quality of studies varied. Results were synthesised on who reported, who was reported on, how information was obtained including accommodations and community involvement. One-third used proxy informants, over 80% used generic measures of QoL and/or well-being, autistic people wit… Show more

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Cited by 6 publications
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