To tell or not to tell: attitudes of transplant surgeons and transplant nephrologists regarding the disclosure of recipient information to living kidney donors

Abstract

While virtually all respondents support disclosing recipient information directly relevant to graft and patient survival to prospective living donors, they are divided about sharing other recipient health, health behavior, and/or lifestyle information.

Attitudes of Lay Stakeholders and Transplant Professionals About Disclosure to Living Kidney Donors in Exchanges and Chains

“…Full methodologies are given in earlier publications that focused on attitudes regarding disclosure in directed donations by NKF donors and recipients (hereinafter referred to as lay stakeholders) and transplant professionals, respectively. 12,15 The 20 overlapping items between the 2 surveys focused on attitudes about disclosing to an exchange/chain donor A information about her or his exchange/chain donor B and exchange/chain recipient B. Eight questions asked about what donor health and health behavior information should be disclosed to donor A about a prospective exchange/chain donor (donor B) who would be donating to donor A's paired recipient (recipient A).…”

“…Full methodologies are given in earlier publications that focused on attitudes regarding disclosure in directed donations by NKF donors and recipients (hereinafter referred to as lay stakeholders) and transplant professionals, respectively. 12,15…”

“…[12][13][14] One previous study has shown that health professionals also believe this. 15 However, no study to date has examined disclosure issues in exchanges and chains. There are no data with regard to what the various transplant stakeholders believe a prospective living donor (donor A) should know about his or her exchange/chain recipient (recipient B) nor what a living donor in an exchange/chain (donor B) should be told about the exchange/chain donor (donor A) who is giving a kidney to her or his paired recipient (recipient B).…”

Non‐simultaneous kidney exchange cycles in resource‐restricted countries without non‐directed donation – a prospective single‐center cohort study

“…The standard practice in the developed world is anonymous allocation for kidney exchange [20][21][22][23][24][25][26][27][28][29][30]. However, we practice non-anonymous allocation to increase trust and transparency among the hospital team and the DRPs [13,14].…”