Towards developing a bilingual treatment summary and survivorship care plan responsive to Spanish language preferred breast cancer survivors

Ashing, Kimlin Tam; Serrano, Mayra; Weitzel, J. N.; Lai, Lily; Paz, Benjamin; Vargas, Roberto

doi:10.1007/s11764-014-0363-5

Cited by 9 publications

(18 citation statements)

References 25 publications

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“…Low health literacy among rural residents is a significant issue such that cancer patients in rural regions had a 33% likelihood of lower health literacy as compared to their urban counterparts [ 25 ]. The SCP was perceived to be important to fill the informational needs which is critical for successful recovery after treatment, which has been found in previous studies [ 26 ]. This finding amplifies the need for the development of a linguistically and culturally relevant SCP for Latina BC patients.…”

Section: Discussionmentioning

confidence: 56%

Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region

Cárdenas

Zúñiga

et al. 2021

IJERPH

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Rural US Latina breast cancer patients experience language barriers, health literacy issues, and limited access to health care resources that negatively impact survivorship care. This study explored the challenges to survivorship care for rural Latina breast cancer (BC) patients and approaches to supporting survivorship care plans (SCP) from the stakeholders’ perspectives. Data were collected via eight focus groups (n = 40) and individual interviews (n = 4) with Latina BC patients, family caregivers, and health care professionals in a rural US-Mexico Border region. Interviews were audio-taped, transcribed, translated, and analyzed using thematic analysis. Themes related to the patient’s SCP challenges included: (1) lack of knowledge of treatment information, (2) lack of proactive health behavior, (3) gaps in information for care coordination, (4) psychological distress, and (5) difficulty retaining health information. Respondents expressed that the SCP document could fill patient information gaps as well as support patient communication with their clinicians and family. Rural BC patients demonstrated an acute need for information and active engagement in their survivorship care. The findings indicate the importance of addressing challenges for survivorship care on multiple dimensions: Cognitive, behavioral, social, and structural. Developing a culturally tailored SCP intervention will be imperative to support survivorship care.

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Section: Discussionmentioning

confidence: 56%

Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region

Cárdenas

Zúñiga

et al. 2021

IJERPH

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“…Similar approaches are increasingly common in adapting health interventions for new target cultural and linguistic populations [ 21 – 23 ]. Some researchers and health communication specialists have adopted the term “transcreation” to refer to a process that incorporates translation and the creation of an new intervention adapted to the target audience [ 22 , 24 , 25 ].…”

Section: Methodsmentioning

confidence: 99%

Usability evaluation and adaptation of the e-health Personal Patient Profile-Prostate decision aid for Spanish-speaking Latino men

Berry

Halpenny

Bosco

et al. 2015

BMC Med Inform Decis Mak

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BackgroundThe Personal Patient Profile-Prostate (P3P), a web-based decision aid, was demonstrated to reduce decisional conflict in English-speaking men with localized prostate cancer early after initial diagnosis. The purpose of this study was to explore and enhance usability and cultural appropriateness of a Spanish P3P by Latino men with a diagnosis of prostate cancer.MethodsP3P was translated to Spanish and back-translated by three native Spanish-speaking translators working independently. Spanish-speaking Latino men with a diagnosis of localized prostate cancer, who had made treatment decisions in the past 24 months, were recruited from two urban clinical care sites. Individual cognitive interviews were conducted by two bilingual research assistants as each participant used the Spanish P3P. Notes of user behavior, feedback, and answers to direct questions about comprehension, usability and perceived usefulness were analyzed and categorized.ResultsSeven participants with a range of education levels identified 25 unique usability issues in navigation, content comprehension and completeness, sociocultural appropriateness, and methodology. Revisions were prioritized to refine the usability and cultural and linguistic appropriateness of the decision aid.ConclusionsUsability issues were discovered that are potential barriers to effective decision support. Successful use of decision aids requires adaptation and testing beyond translation. Our findings led to revisions further refining the usability and linguistic and cultural appropriateness of Spanish P3P.

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“…Organizações, como o Institute of Medicine (IOM), a Comissão Americana de Cirurgiões do Câncer do American College, a National Coalition for Cancer Survivorship (NCCS) e a ASCO se envolveram com o tema sobrevivência, tendo como recomendação a implementação de planos de cuidados que envolvem diretrizes para a assistência ao sobrevivente, com objetivos de melhorar a vigilância, a qualidade assistencial após o tratamento e cuidados relacionados à saúde. Esses planos incluem o resumo do tratamento, os efeitos colaterais potenciais, as diretrizes de vigilância, cuidados de acompanhamento, avisos de saúde e problemas que afetam a QV 34,35 .…”

Section: Discussionunclassified

Análises das Demandas e Cenários de Apoio para Sobreviventes de Câncer: Revisão Integrativa

Rocha

Lee

Reis

et al. 2021

Rev. Bras. Cancerol.

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Introdução: A sobrevivência do câncer é um processo que começa no diagnóstico e continua por toda a vida, trazendo uma série de desafios adicionais à saúde. Objetivo: Analisar as demandas e o modelo de atendimento para o apoio ao sobrevivente de câncer. Método: Revisão integrativa de literatura sobre demandas e cenários de apoio para sobreviventes de câncer, nas bases de dados LILACS, MEDLINE, IBECS, SciELO e Biblioteca Cochrane, que buscou artigos publicados entre janeiro de 2015 a março de 2020. Resultados: Foram encontrados 90 artigos, sendo 20 compatíveis com o objetivo do estudo. A estrutura necessária para apoiar o sobrevivente de câncer é múltipla e dela participam: hospitais, centros oncológicos e espaços na comunidade. Houve unanimidade em relação a intervenções clínicas e educativas solicitadas pelos pacientes. Estudos apontam atuação multidisciplinar, com presença de sintomas nos domínios físico, psicológico e socioecológico. A atuação do enfermeiro foi citada por 19 estudos e envolveu desde o cuidado clínico até a coordenação e atuação quanto ao aconselhamento e orientação para a mudança de comportamentos prejudiciais à saúde. Verificaram-se oito estudos que citaram a American Society of Clinical Oncology como entidade norteadora das intervenções. Conclusão: As demandas dos sobreviventes incluem acompanhamento clínico, apoio psicológico, orientações de cuidados primários e estilo de vida saudável. As redes de apoio devem ser amplas e conduzidas principalmente por enfermeiros, embasadas em diretrizes sustentadas por evidências científicas e ou entidades especializadas com foco nos sintomas relacionados aos domínios físico, psicológico e socioecológico.

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Towards developing a bilingual treatment summary and survivorship care plan responsive to Spanish language preferred breast cancer survivors

Abstract: These data support the development and evaluation of a TSSCP targeted to an underserved, high-risk population, LCAs. Identifying methods to improve surveillance and follow-up guideline adherence may lead to improved clinical cancer outcomes and quality of life.

Cited by 9 publications

References 25 publications

Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region

Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region

Usability evaluation and adaptation of the e-health Personal Patient Profile-Prostate decision aid for Spanish-speaking Latino men

Análises das Demandas e Cenários de Apoio para Sobreviventes de Câncer: Revisão Integrativa

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