Translation to Spanish and Validation of the Specific Saint George's Questionnaire for Idiopathic Pulmonary Fibrosis

Capparelli, Ignacio; Fernández, Martín Tejedor; Otero, Marcela Saadia; Steimberg, Jimena; Brassesco, María; Campobasso, Ana; Palacios, Sandra; Caro, Fabián; Alberti, María Laura; Rabinovich, Roberto; Paulín, Francisco

doi:10.1016/j.arbr.2017.09.011

Cited by 8 publications

(10 citation statements)

References 27 publications

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“…12 studies made use of the ILD-specific King A limited number of studies used disease-specific (IPF) instruments, although many of the studies were conducted after their development in 2010. Of these, five studies [52,[70][71][72][73] used the disease-specific format of the SGRQ, the SGRQ-I, and three used "A Tool to Assess Quality of life in IPF" (ATAQ-IPF) [44,48,74]. supplementary material S9.…”

Section: Hrqol Measurement Instrumentsmentioning

confidence: 99%

Health-related quality of life of patients with idiopathic pulmonary fibrosis: a systematic review and meta-analysis

et al. 2020

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Idiopathic pulmonary fibrosis (IPF) is one of the most common forms of interstitial lung disease presenting in persons 50 years and older. Through a comprehensive review of available studies, we aimed to assess health-related quality of life (HRQoL) of people living with IPF and the instruments used in this assessment.Searches were conducted up to May, 2020. Quality appraisal and data extraction were performed using pre-designed forms. Narrative synthesis approach was used to report results of the systematic review and a random effects model was used for the meta-analysis. A leave-one-out sensitivity analysis was performed, and a trim and fill method was used to assess publication bias.The review included 134 studies. The most used instruments to measure HRQoL were St George's Respiratory Questionnaire (SGRQ), Short Form 36 (SF36) and EuroQoL (EQ5D). Standardised mean scores (95% confidence interval) for these instruments were as follows: SGRQ total score: 44.72 (42.21–47.22); SF36 physical component score (PCS): 37.00 (34.74–39.26) SF36 mental component score (MCS): 50.18 (48.41–51.95); King's Brief Interstitial Lung Disease questionnaire total score: 58.38 (55.26–61.51); and EQ5D utility: 0.73 (0.68–0.79). Analysis of standardised means for both SGRQ and SF36 demonstrated worse scores in physical health domains as compared to mental health domains.This systematic review confirms that IPF negatively affected HRQoL, mostly impacting the physical health domains. This study also demonstrated that a diverse number of instruments are used to evaluate HRQoL. In view of this diversity, a standardised approach to measurement of HRQoL for IPF is important to ensure that comparisons made are reliable.

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Section: Hrqol Measurement Instrumentsmentioning

confidence: 99%

Health-related quality of life of patients with idiopathic pulmonary fibrosis: a systematic review and meta-analysis

et al. 2020

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“…Table 1 shows the characteristics of the included studies. Of the 40 studies, 11 studies [ 9 , 21 , 34 , 35 , 37 , 46 , 49 – 52 , 58 ] were intervention studies, 13 studies [ 3 , 7 , 8 , 22 , 29 , 30 , 33 , 36 , 41 , 43 , 47 , 54 , 56 ] were cohort studies and 16 studies [ 4 , 5 , 10 , 31 , 32 , 38 – 40 , 42 , 44 , 45 , 48 , 53 , 55 , 57 , 59 ] were cross-sectional studies. Of the 16 cross-sectional studies, one was a validation study of a PA questionnaire [ 8 ].…”

Section: Resultsmentioning

confidence: 99%

Physical activity measurements in individuals with interstitial lung disease: a systematic review and meta-analysis

et al. 2023

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BackgroundPhysical activity (PA) measurements are becoming common in interstitial lung disease (ILD); however, standardisation has not been achieved. We aimed to systematically review PA measurement methods, present PA levels and provide practical recommendations on PA measurement in ILD.MethodsWe searched four databases up to November 2022 for studies assessing PA in ILD. We collected information about the studies and participants, the methods used to measure PA, and the PA metrics. Studies were scored using 12 items regarding PA measurements to evaluate the reporting quality of activity monitor use.ResultsIn 40 of the included studies, PA was measured using various devices or questionnaires with numerous metrics. Of the 33 studies that utilised activity monitors, a median of five out of 12 items were not reported, with the definition of nonwear time being the most frequently omitted. The meta-analyses showed that the pooled means (95% CI) of steps, time spent in moderate to vigorous PA, total energy expenditure and sedentary time were 5215 (4640–5791) steps·day−1, 82 (58–106) min·day−1, 2130 (1847–2412) kcal·day−1and 605 (323–887) min·day−1, respectively, with considerable heterogeneity.ConclusionThe use of activity monitors and questionnaires in ILD lacks consistency. Improvement is required in the reporting quality of PA measurement methods using activity monitors.

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“…Symptom assessment, such as dyspnoea, can be done with the modified Medical Research Council (mMRC) scale, as previously discussed. (21) With regard to quality of life, validated questionnaires for patients with ILD, such as the Saint George Respiratory Questionnaire (SGRQ-I), (33) or the King's Brief Interstitial Lung Disease Questionnaire (K-BILD) can be used. (34) Finally, the psychological impact can be measured using the Hospital Anxiety and Depression Scale (HADS), or the Beck Depression Inventory (BDI).…”

Section: R8 the Rheumatology Nurse Must Educate The Patient On Infect...mentioning

confidence: 99%

Openreuma Consensus on the role of nursing in the care of patients with rheumatoid arthritis and diffuse interstitial lung disease

García¹,

Yébenes²,

Vázquez³

et al. 2022

Invest. Educ. Enferm.

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Objective. To develop practical recommendations, based on the best available evidence and experience, on the nursing management of patients with rheumatoid arthritis (RA) and interstitial lung disease (ILD). Methods. The usual consensus methodology was used, with a nominal group, systematic reviews (SRs), and Delphi survey. The expert panel, consisting of rheumatology nurses, rheumatologists, a psychologist, a physiotherapist, and a patient, defined the scope, the users, the topics on which to explore the evidence and on which to issue recommendations. Results. Three PICO questions evaluated the efficacy and safety of pulmonary rehabilitation and non-pharmacological measures for the treatment of chronic cough and gastroesophageal reflux by means of SR of the literature. With the results of the reviews, 15 recommendations were established for which the degree of agreement was obtained with a Delphi survey. Three recommendations were rejected in the second round. The 12 recommendations were in patient assessment (n=4); patient education (n=4); and risk management (n=4). Only one recommendation was based on available evidence, while the remaining were based on expert opinion. The degree of agreement ranged from 77% to 100%. Conclusion. This document presents a series of recommendations with the aim of improving the prognosis and quality of life of patients with RA-ILD. Nursing knowledge and implementation of these recommendations can improve the follow-up and prognosis of patients with RA who present with ILD.

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Translation to Spanish and Validation of the Specific Saint George's Questionnaire for Idiopathic Pulmonary Fibrosis

Cited by 8 publications

References 27 publications

Health-related quality of life of patients with idiopathic pulmonary fibrosis: a systematic review and meta-analysis

Health-related quality of life of patients with idiopathic pulmonary fibrosis: a systematic review and meta-analysis

Physical activity measurements in individuals with interstitial lung disease: a systematic review and meta-analysis

Openreuma Consensus on the role of nursing in the care of patients with rheumatoid arthritis and diffuse interstitial lung disease

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