Trends and Issues Related to Studies on Cancer Patient Empowerment

Hagiwara, Eiko; Futawatari, Tamae

doi:10.2974/kmj.61.367

Cited by 3 publications

(1 citation statement)

References 22 publications

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“…Findings are consistent with the principles and approaches of patient-centered care, as the conceptual map describes that healthcare providers adopt a partnership style with patients, and provide healthcare that is respectful of patients to support informed patient decision-making. Considering the lack of consensus identified in this study about what patient empowerment means to clinicians, patients and researchers [ 41 , 42 ], the conceptual map presented here contributes to a clearer understanding of patient empowerment for LTCs.…”

Section: Discussionmentioning

confidence: 99%

Conceptualising patient empowerment: a mixed methods study

Bravo

Edwards

Barr

et al. 2015

BMC Health Serv Res

313

325

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BackgroundIn recent years, interventions and health policy programmes have been established to promote patient empowerment, with a particular focus on patients affected by long-term conditions. However, a clear definition of patient empowerment is lacking, making it difficult to assess effectiveness of interventions designed to promote it. The aim in this study was to develop a conceptual map of patient empowerment, including components of patient empowerment and relationships with other constructs such as health literacy, self-management and shared decision-making.MethodsA mixed methods study was conducted comprising (i) a scoping literature review to identify and map the components underpinning published definitions of patient empowerment (ii) qualitative interviews with key stakeholders (patients, patient representatives, health managers and health service researchers) to further develop the conceptual map. Data were analysed using qualitative methods. A combination of thematic and framework analysis was used to integrate and map themes underpinning published definitions of patient empowerment with the views of key UK stakeholders.ResultsThe scoping literature review identified 67 articles that included a definition of patient empowerment. A range of diverse definitions of patient empowerment was extracted. Thematic analysis identified key underpinning themes, and these themes were used to develop an initial coding framework for analysis of interview data. 19 semi-structured interviews were conducted with key stakeholders. Transcripts were analysed using the initial coding framework, and findings were used to further develop the conceptual map. The resulting conceptual map describes that patient empowerment can be conceived as a state ranging across a spectrum from low to high levels of patient empowerment, with the level of patient empowerment potentially measurable using a set of indicators. Five key components of the conceptual map were identified: underpinning ethos, moderators, interventions, indicators and outcomes. Relationships with other constructs such as health literacy, self-management and shared decision-making are illustrated in the conceptual map.ConclusionA novel conceptual map of patient empowerment grounded in published definitions of patient empowerment and qualitative interviews with UK stakeholders is described, that may be useful to healthcare providers and researchers designing, implementing and evaluating interventions to promote patient empowerment.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-015-0907-z) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%