Understanding Disability Discrimination Law through Geography

Vellani, Fayyaz

doi:10.4324/9781315549224

Cited by 2 publications

(2 citation statements)

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“…Social support programs 3 are critical components of the institutional apparatus by which caregiving in the United States takes place. Vellani (2016) argues that institutions' what, who, how, and where matter. The family caregiving experiences in my research provide specific examples of how institutional policies are shaped and formed in practice and reflect broader assemblages of procedures, policies, ideologies, and inequities (McNeil, 1993; Tremain, 2006).…”

Section: Home‐based Carementioning

confidence: 99%

Beyond the institution versus home care dichotomy: Lessons from a feeding‐tube medical home

Loftus

2023

Gender Work & Organization

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Decades of rights‐based advocacy for people with disabilities have transitioned long‐term care in the United States from institutional settings to home‐based care provided by interdependent care networks. This paper argues that policies and practices within these home‐based care systems unintentionally produce and often perpetuate unrecognized structural violence on the recipients of care and the caregivers. Understanding the caregivers' experiences through a case study of a Facebook feeding tube family support group exposes the geographic realities and ableist underpinnings of the home‐based care model that undergird this violence. Further, I illustrate the contradictions of “home is best” ideology by focusing on three interwoven themes: structural dependency on unpaid mother‐experts, spatio‐temporal erasure through decentralization, and invasive surveillance structures. This research attends to how home‐based care, as a practice and a place, reflects broader patriarchal, gendered, and neoliberal concepts of autonomy and individual rights as expressed through policies like “person‐centered” care and the medical home model. While this analysis has theoretical, methodological, and policy implications, more important is the contextualization of family experiences that sometimes impacts life and death.

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Section: Home‐based Carementioning

confidence: 99%

Beyond the institution versus home care dichotomy: Lessons from a feeding‐tube medical home

Loftus

2023

Gender Work & Organization

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“…We accept that disability can be explained both medically and socially or environmentally. By recognizing the role of legal geography in shaping "social and material realities" [43], we will try to bring insight into how structural injustice can be caused by the physical world, and how geoinformation can be used to eliminate injustice and enable disability rights.…”

Section: Disability: a Difficult Concept To Definementioning

confidence: 99%

Improvement of Disability Rights via Geographic Information Science

Kocaman

Özdemir

2020

Sustainability

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Rights, legal regulations, and practices often arise from societal and scientific developments, and societal transformations may originate from new legal regulations as well. Basic rights can be re-defined with advancements in science and technology. In such an evolutional loop, where mutual supply is obvious, combined legal and technological frameworks should be exercised and developed for practicing human rights. The main aim of this article is to propose a conceptual and methodological framework for the improvement of disability rights in the light of recent advancements in geographic information science (GIScience), in particular for those with motor disabilities, for whom questions related to “where” are essential. The concept of disability is discussed, considering different aspects, and a new methodological framework is proposed in which Geographic Information Systems (GIS), volunteered geographic information (VGI) and citizen science are at the core. In order to implement the framework at the national and international levels, a spatial data model should be developed first. The new data collection and interpretation approaches based on VGI, citizen science, and machine learning methods may help to realize equal rights for people with motor disabilities, by enabling improved access to education, health, and travel.

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Understanding Disability Discrimination Law through Geography

Cited by 2 publications

References 0 publications

Beyond the institution versus home care dichotomy: Lessons from a feeding‐tube medical home

Beyond the institution versus home care dichotomy: Lessons from a feeding‐tube medical home

Improvement of Disability Rights via Geographic Information Science

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