Use of Multicenter Data in a Large Cancer Registry for Evaluation of Outcome and Implementation of Novel Concepts

Abstract

Large clinical cancer registries (CCRs) in Germany shall be strengthened by the German Social Code Book V (SGB V) and implemented until the end of 2017. There are currently several large cancer registries that support clinical data for outcome analysis and knowledge acquisition. The various examples of the Munich Cancer Registry outlined in this paper present many-sided possibilities using and analyzing registry data. The main objective of population-based cancer registration within a defined area and the performance of outcomes research is to provide feedback regarding the results to the broad public, the reporting doctors, and the scientific community. These tasks determine principles of operation and data usage by CCRs. Each clinical department delivers its own findings and applied therapy. The compilation of these data in CCRs provides information on patient progress through the regional network of medical care and delivers meaningful information on the course of oncological diseases. Successful implementation of CCRs allows for presenting the statistical outcomes of health-care delivery, improving the quality of care within the region, accelerating the process of implementing innovative therapies, and generating new hypotheses as a stimulus for research activities.

A Database for Oncological Research and Quality Assurance: Implementation and first Experiences with the University Clinical Cancer Registry Regensburg

“…[9], [11], [12] High compatibility and interoperability of data can contribute to the success of internal and external research projects. One ongoing local project is the digitalization of genetic and molecular data used in oncology to gain insights into the course of diseases and potential prognoses [9]. There is a necessity for joint projects with interoperable (technically and content based) molecular pathological data items, not only locally but also among oncological centers [12], [17].…”

“…data organization and documentation on a daily basis but also improved quality in patient care through the complementation of data entries by means of already available information. [9], [11], [12] To further improve the quality of the database, implementation of a module for patient-reported outcome (PRO) is initiated and its expansion arranged. Relevant examples of questionnaires are palliative screening (i.e.…”

“…The interconnectivity of data together with clinical parameters not only results in tremendous opportunities for the treatment of patients in clinical routine but also for research. [9], [11], [12] High compatibility and interoperability of data can contribute to the success of internal and external research projects. One ongoing local project is the digitalization of genetic and molecular data used in oncology to gain insights into the course of diseases and potential prognoses [9].…”

“…This regulation also states that the transferal needs to be done electronically or at least in digital format. On top, Book V of the Social Insurance Code (SGB V) § 65c [7] article one indicates that the mandatory registration of cancer disease and its modules has to be done in form of the oncological basis dataset [8], [9].…”

Predictors of the regional variation of prostatectomy or radiotherapy: evidence from German cancer registries

“…German population-based, that is epidemiological, cancer registries cover almost all incident cancer cases among residents of their respective jurisdictions. They offer a unique possibility to compare regions in terms of the administered treatment on a population-based level (Schubert-Fritschle et al 2017). It is the objective of this study to identify treatment preferences in a population-based sample.…”