Using Quality of Life to Assess Performance of Agencies Assisting People with Intellectual Disabilities

Kober, Ralph; Eggleton, Ian R.C.

doi:10.1007/978-90-481-9650-0_5

Cited by 3 publications

(5 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This search was limited to the keywords in the title and abstract, English language, and period between years 2000 and 2013, and included peer-reviewed journal articles, literature reviews, book chapters, and conference papers. Article searches were also done using Google Scholar, citation tracking of key articles, key organizational website searches, key textbooks (Kober, 2010; Phillips, 2006; Seed & Lloyd, 1997), correspondence with key authors, and linking in with existing networks and organizations. It is beyond the scope of this review to address parental stress and depression specifically, although it is important to acknowledge the critical role these factors often play in FQOL.…”

Section: Methodsmentioning

confidence: 99%

“…It is dynamic because it can change in response to significant events such as moving homes, loss of a family member, or having a child with disability. The theories foundational to FQOL have been addressed in previously published literature (Kober, 2010; Zuna et al, 2014). According to the unified theory of FQOL, families adapt to events as they arise and continue to adjust until they reach a state of homeostasis or balance (Zuna et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Family Quality of Life

Bhopti

Brown

Lentin

2016

Journal of Early Intervention

View full text Add to dashboard Cite

A scoping review was conducted to identify factors influencing the quality of life of families of children with disability. The review also explored the scales used to measure family quality of life (FQOL) as an outcome in early childhood intervention services (ECIS). Multiple databases were searched from 2000 to 2013 to include studies pertinent to ECIS. Results were charted and summarized based on scoping methodology. Eighteen articles were chosen for the review based on the selection criteria. Results were summarized as five factors that affect FQOL, namely, (a) disability-related support, (b) family interactions/family relationships, (c) overall well-being, (d) support from services, and (e) severity and type of disability. The review also identified two FQOL scales that were used most frequently within ECIS: (a) the Beach Center Family Quality of Life Survey, and (b) Family Quality of Life Survey: Main Caregivers of People With Intellectual or Developmental Disabilities. It is recommended that those responsible for evaluation decisions within ECIS programs should consider using a FQOL scale to measure family outcomes. Furthermore, professionals working with families within ECIS should consider the factors affecting FQOL to further enhance their service provision.

show abstract

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Family Quality of Life

Bhopti

Brown

Lentin

2016

Journal of Early Intervention

View full text Add to dashboard Cite

show abstract

“…Many people with ID need support in everyday life and QoL is typically used as a framework for services and support and quality outcomes (Kober & Eggleton, ; Schalock, ). Traditional measures of QoL are quantitative and focus on living conditions.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life Is to Experience Adult Social Status

Carlsson

Adolfsson

2018

Policy Practice Intel Disabi

View full text Add to dashboard Cite

Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well‐being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users´ perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organized, rather the interrelation between them is emphasized.

show abstract

“…QoL is a complex concept with as many as 44 definitions (Brown and Brown, 2005; Hughes et al , 1995) with some key areas of agreement in the literature (Kober, 2010). First, QoL is a global, overarching concept that should be viewed using a multi-dimensional model.…”

Section: Introductionmentioning

confidence: 99%

“…Kober (2010) identified (in order of frequency of mention) a range of domains of QoL: interpersonal relations, social inclusion, personal development, physical wellbeing, self-determination, material wellbeing, emotional wellbeing, rights, family, recreation and leisure, and safety and security. Perceptions may vary in these different domains at given times, meaning that any measure would have to be nuanced to measure across these domains rather than assume that an overall measure presented an accurate picture.…”

Section: Introductionmentioning

confidence: 99%

Thinking differently? Autism and quality of life

Smith

Powell

Summers

et al. 2019

Tizard Learning Disability Rev

View full text Add to dashboard Cite

This study explores perceptions of Quality of Life (QOL) of people with a learning disability and autism to facilitate a better understanding for clinical practice. Design/Methodology/Approach Mixed methods were used to gain perceptions of QOL from 20 individuals referred to their local diagnostic service. Individuals completed questionnaires which were compared with previous studies and participated in in-depth interviews which were thematically analysed. All data was contextualised in case examples. Findings Subjective wellbeing scores were lower than found in previous research. Social communication was raised extensively describing both positive and negative perceptions. Consistent themes around the need for tailored social support and the value autonomy over environment were raised. Research Limitations/Implications The study was small in scale and limited to subjects who has been referred for a diagnostic service. The study identified the need for further study and particularly in relation to the social communication domain of QoL and impact of stress and anxiety on QoL Originality/Value This study demonstrated that it is possible to access views from this group and that these views are nuanced. It suggests differences between reported QoL in people with learning disabilities who are and who are not autistic. Service design and individual approaches could be improved by a better understanding of different QoL perceptions of this group

show abstract

Using Quality of Life to Assess Performance of Agencies Assisting People with Intellectual Disabilities

Cited by 3 publications

References 15 publications

Family Quality of Life

Family Quality of Life

Quality of Life Is to Experience Adult Social Status

Thinking differently? Autism and quality of life

Contact Info

Product

Resources

About