Using Research Electronic Data Capture for Longitudinal Assessment Among Older Adults With Diabetes Enhances Real-Time Data Collection

Abstract

The aim of this study was to provide evidence on the application of Research Electronic Data Capture for collecting repeated data during a 7-day period among older adults. Fifty-seven adults (≥50 years) with type 2 diabetes were recruited. Participants completed one sleep diary upon awaking and one self-care diary before going to bed each day for 7 days. The diaries were administered via the Research Electronic Data Capture Web-based system and were completed via participants' own electronic devices. Objective compliance rate, time used to complete each diary, and participant experience were described. Approximately 80% (n = 45) of the participants used Research Electronic Data Capture. Among these participants, the noncompliance rate ranged between 0% and 8.9% for the sleep diary and 0% and 13.1% for the self-care diary. Participants spent 4.2 to 8.7 minutes on the sleep diary and 3.5 to 7.1 minutes on the self-care diary. It took the participants a longer time to complete the diaries during the first day than during the following 6 days. Few participants reported technical issues or felt inconvenient or stressful with completing the Research Electronic Data Capture diaries. Overall, the compliance rates were high. Completing the diaries was not time-consuming and participants were largely satisfied with the Research Electronic Data Capture data collection. Research Electronic Data Capture has aided the longitudinal data collection. With adequate training, Research Electronic Data Capture is an efficient tool to collect repeated data among older adults and thus is recommended for future research.

Care biography: A concept analysis

“…For example, in a study by Sabzghabaee et al (2012), a self‐care diary was used as a resource to ‘educate the patient about their asthma and its management’ (p. 67). In a study by Zhu et al (2021), patients with T2D were provided with a self‐care diary that ‘consisted of items assessing the three main components of self‐care among patients with T2D: physical activity, eating behaviour, and medication compliance’ (p. 33). In a study by Linden et al (2018), pregnant women and young mothers with T1D were given a self‐care diary ‘for self‐reported monitoring of blood glucose, insulin doses, diet, activities and daily mood measures’ (p. 233).…”

“…In a study by Zhu et al (2021), patients with T2D were provided with a self-care diary that 'consisted of items assessing the three main components of self-care among patients with T2D: physical activity, eating behaviour, and medication compliance ' (p. 33). In a study by Linden et al (2018), pregnant women and young mothers with T1D…”

The impact of electronic versus paper-based data capture on data collection logistics and on missing scores in thyroid cancer patients

“…However, there are also disadvantages of this mode of data capture: costs and time involved to develop and set up the information technology (IT) infrastructure [ 8 ], increased workload for the health care professionals [ 9 , 10 ], challenges with data security [ 11 ] or digital exclusion [ 12 ]. There are also reports that electronic assessments may be more challenging for some patients [ 13 ], although other studies found that most patients prefer electronic symptom monitoring [ 14 , 15 ]. Generally, it seems that patients agree to report on their symptoms electronically but they want to talk to a person about their problems as soon as there is something of concern [ 16 , 17 ].…”