Using the Patient Generated Index to Evaluate Response Shift Post-stroke

Ahmed, Sara; Mayo, Nancy E.; Wood-Dauphinée, Sharon; Hanley, James A.; Cohen, S. Robin

doi:10.1007/s11136-005-8118-4

Cited by 53 publications

(49 citation statements)

References 27 publications

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“…These approaches can be grouped into retrospective ratings, individualized methods, direct questioning, vignettes, and questionnaires, all of which can be considered time consuming for the individuals involved [14,26].…”

Section: Study Design To Address Response Shiftmentioning

confidence: 99%

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Response shift: a brief overview and proposed research priorities

2009

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Section: Study Design To Address Response Shiftmentioning

confidence: 99%

“…Using a variety of methods to identify response shift, 28%, 60%, and 78% of individuals at 6 months post stroke demonstrated response shift [3,25,26]. Reconceptualization response shift was suggested in 81% of individuals post denture treatment [5].…”

Section: Introductionmentioning

confidence: 99%

Response shift: a brief overview and proposed research priorities

2009

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“…A major issue is that these methods are burdensome for both respondents and interviewers, affecting the cost and feasibility of a study. In addition, to yield meaningful information, these tests require a high degree of cognitive engagement on the part of the respondent [9][10][11].…”

Section: Introductionmentioning

confidence: 99%

Identifying response shift statistically at the individual level

et al. 2008

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“…Over the last 14 years the SEIQoL (and its shorter version, the SEIQoL-DW) and the PGI have been subjected to extensive testing across a range of clinical conditions in the UK, Australia and North America [28]. Psychometric properties of validity, reliability and responsiveness have been assessed for both instruments with variable results, although in general the findings have supported their use in clinical evaluations of health care interventions [1,10,27,34]. Neither instrument is appropriate for QoL assessment in a developing country and measures are mainly used in research, or occasionally planning and evaluating development interventions.…”

Section: Introductionmentioning

confidence: 99%

“…The Wellbeing in Developing Countries ESRC Research Group (WeD) is exploring the social and cultural construction of wellbeing in four developing countries (see http://www.welldev.org.uk for further information), which provided an opportunity to develop and validate the GPGI in a sizeable sample of respondents across three WeD countries (Ethiopia, Bangladesh, and Thailand) at differing stages of economic development 1 . The respondents were a representative selection of men and women of different ages, socio-economic statuses, and religions from urban, rural, and peri-urban areas.…”

Section: Introductionmentioning

confidence: 99%

‘Translation is not enough’: using the Global Person Generated Index (GPGI) to assess individual quality of life in Bangladesh, Thailand, and Ethiopia

Camfield

Ruta

2007

Qual Life Res

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Currently few subjective measures of Quality of Life (QoL) are available for use in developing countries, which limits their theoretical, methodological, and practical contribution (for example, exploring the relationship between economic development and QoL, and ensuring effective and equitable service provision). One reason for this is the difficulty of ensuring that translated measures preserve conceptual, item, semantic, operational, measurement; and functional equivalence (Herdman, M., FoxRushby, J., & Badia, X. (1998). Quality of Life Research, 7, 331), which is illustrated by an account of the translation, pre-piloting, and administration of a new individualised QoL measure, the Global Person Generated Index or 'GPGI'. The GPGI is based on the widely used Patient Generated Index (Ruta, Camfield, & Martin, (2004) Quality of Life Research, 13, 1545.) and offers many of the advantages of the participatory approaches commonly used in developing countries, with added methodological rigour, and quantitative outcomes. It was successfully validated in Bangladesh, Thailand, and Ethiopia, using quantitative and qualitative methods-open-ended, semi-structured interviews (SSIs), conducted immediately post-administration. Both the measure and method of 'qualitative validation' described later in the paper offer an exciting alternative for future researchers and practitioners in this field. The quantitative results suggest the GPGI shows cultural sensitivity, and is able to capture both the areas that are important to respondents, and aspects of life one would expect to impact on QoL in developing countries. There were strong correlation between scores from the GPGI and SSIs for the area of health, and moderate correlations for 'material wellbeing' (MWB)('Material wellbeing' refers to respondents' perceptions of their achievement in the areas of farming, debt reduction, assets, crops, livestock, job, land, property, and agriculture) and children. Weak to moderate correlations were observed between the Satisfaction with Life Scale and the GPGI; however, the highest coefficient was between the GPGI and the most conceptually similar item. Statistically significant differences were seen in GPGI scores between rich and poor, urban and rural respondents, and different countries. Health and material wellbeing scores, derived from the SSIs, also showed a linear relationship with GPGI scores, with a suggestion of curvilinearity at the higher levels, as predicted by a general QoL causal model. In conclusion, the GPGI has great potential for use in this area, especially when supported by extensive interviewer training, and supplemented with a cognitive appraisal schedule.

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Using the Patient Generated Index to Evaluate Response Shift Post-stroke

Abstract: The PGI provides valuable information regarding changes in person's conceptualization of HRQL and values, but the feasibility of using an individualized measure during the first six months post-stroke is limited by the added complexity of completing and interpreting such a measure.

Cited by 53 publications

References 27 publications

Response shift: a brief overview and proposed research priorities

Response shift: a brief overview and proposed research priorities

Identifying response shift statistically at the individual level

‘Translation is not enough’: using the Global Person Generated Index (GPGI) to assess individual quality of life in Bangladesh, Thailand, and Ethiopia

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