Validação da Versão Portuguesa do Questionário EHP-30 (The Endometriosis Health Profile-30)

Abstract

Introduction:Endometriosis Health Profile Questionnaire-30 is currently the most used questionnaire for quality of life measurement in women with endometriosis. The aim of this study is to evaluate the psychometric properties and to validate the Portuguese Endometriosis Health Profile Questionnaire-30 version. Material and Methods: A sequential sample of 152 patients with endometriosis, followed in a Portugal reference center, were asked to complete a questionnaire on social and demographic features, the Portuguese version of the Endometriosis Health Profile Questionnaire-30 and of the Short Form Health Survey 36 Item -version 2. Appropriate statistical analysis was performed using descriptive statistics, factor analysis, internal consistency, item-total correlation and convergent validity. Results: Factorial analysis confirmed the validity of the five-dimension structure of the Endometriosis Health Profile Questionnaire-30 core questionnaire, which explained 83.2% of the total variance. All item-total correlations presented acceptable results and high internal consistency, with Cronbach's alpha ranging between 0.876 and 0.981 for the core questionnaire and between 0.863 and 0.951 for the modular questionnaire. Significant negative associations between similar scales of Endometriosis Health Profile Questionnaire-30 and Short Form Health Survey 36 Item -version 2 were demonstrated. Data completeness achieved was high for all dimensions. The emotional well-being scale in the core questionnaire and the infertility scale in the modular section had the highest median scores, and therefore the most negative impact on the quality of life of participating women. Discussion: The test-retest reliability and responsiveness of the questionnaire should be evaluated in future studies. Conclusion:The present study demonstrates that the Portuguese version of the Endometriosis Health Profile Questionnaire-30 is a valid, reliable and acceptable tool for evaluating the health-related quality of life of Portuguese women with endometriosis.

Quality of Life Assessment by the Endometriosis Health Profile (EHP-30) Questionnaire Prior to Treatment for Ovarian Endometriosis in Brazilian Women

“…The EHP-30 has been extensively tested and validated in different cultural environments in the American, Australian, Dutch, Italian, Chinese, Iranian, Portugal and Brazilian Portuguese versions. [20][21][22][23][24][25][26] The use of these questionnaires allows for more complete assessments, and they are also important in evaluating the perception of women of disease impact and treatment effectiveness in clinical scenarios.…”

Effect of an Educational Intervention on Quality of Life and Sexual Function in Women with Endometriosis

“…Quality of life (QOL) is a multidimensional and dynamic concept that includes physical, social and mental aspects of health which is associated with a particular disease or its treatment (Silva et al 2015). Endometriosis has an adverse impact on physical, mental, and social well-being and therefore a negative impact on health-related quality of life (Moradi et al 2014).…”

Mulheres convivendo com endometriose: percepções sobre a doença

“…As mulheres que participaram desta pesquisa analisaram as mudanças que ocorreram em suas vidas, mesmo que indiretamente, e, esperançosas, demonstraram suas expectativas, imaginando como seriam suas vidas sem a doença. A maioria absoluta relatou que a endometriose só trouxe desvantagens às suas vidas através de lamentações e algumas vezes de Estes resultados corroboram com os achados de outras pesquisas que evidenciaram diminuição da qualidade de vida, alteração do humor e prejuízo no convívio e suas relações pessoais e profissionais 7,29 .…”

“…A taxa de prevalência de endometriose na população geral é desconhecida, porque o diagnóstico definitivo da condição é possível por cirurgia laparoscópica, portanto, muitos casos não são reconhecidos. No entanto, vários estudos relataram uma prevalência de 2-15% de endometriose entre as idades reprodutivas 6,7,8 . Além disso, estudos mostraram que 30 a 45% das mulheres com infertilidade ou dor sofrem de endometriose 8 .…”

“…Os sintomas dolorosos crônicos da endometriose e suas consequências negativas também podem reduzir severamente a qualidade de vida das mulheres afetadas. Estudos qualitativos documentaram os impactos negativos desta doença na vida diária; bem-estar físico, mental e social; saúde geral; interações interpessoais; produtividade e autoestima 7,8,12 . A endometriose afeta diferentes aspectos da vida das mulheres em idade reprodutiva.…”