Validation of the Chinese version of the Pediatric Quality of Life InventoryTM (PedsQLTM) Cancer Module

Abstract

The psychometric properties of the patient and parent versions of the Chinese PedsQL Cancer Module were found acceptable.

Quality of life among children with cancer: agreement between child and parent reports

“…This evidence is found in several other studies 2,7,10 and justified by the parents' tendency to project their HRQoL onto their children. Although they reported a better HRQoL than their parents, it is lower than that found in other studies 3,6,7 . This aspect should receive special attention from those who care for these children and families.…”

Mala oclusión, caries dentales y gingivitis como factores asociados a la verguenza de sonreír en pacientes pediátricos oncológicos

“…Outros estudos também sugerem que o sexo masculino é o mais acometido nas amostras de pacientes portadores de câncer infantil [8][9][10][11] . A vergonha de sorrir nos últimos seis meses foi relatada por 14 pacientes (26,9%), 3 (21,4%) na idade de 12 anos e 11 (28,9%) na faixa etária de 15 a 19 anos, percentuais estes maiores do que os apontados nos dados nacionais 12 , nos quais, 12,8% aos 12 anos na região nordeste e o mesmo percentual no Brasil apresentaram o sentimento de vergonha de sorrir.…”

Quality of life of children and adolescents with cancer: revision of studies literature that used the Pediatric Quality of Life InventoryTM

“…The small size of sample may limit the power of statistic analysis 2,16,18,19,22 might justify not find significant differences between different application times, 19 age, race, 15 sex, 5,8,9,15,16,24 and in with or without treatment 11 , and in home cares and standard treatment in reports of children. 23 Nevertheless, the QoL had statistically meaningful differences in the variants, age of the child diagnosis, 9,11 guardian age 9 , child and adolescent without treatment.…”

“…23 Nevertheless, the QoL had statistically meaningful differences in the variants, age of the child diagnosis, 9,11 guardian age 9 , child and adolescent without treatment. ≤12 months and >12 months, [4][5][6]21, cancer diagnosis and epilepsy, 3 for nutrition condition, 18 death in less than six months and over six months after interview. 25 The studies that collected the reports of children and adolescents reinforce the importance of giving voice to children and adolescents, and knowing what they think of the illness and the treatment 26 and it is suggested as a limitation having used just the parents´s reports.…”

“…It´s a matter of an instrument already validated and adapted across cultures, and it also verifies the psichometric proprieties in several languages. [2][3][4][5][6][7][8][9][10][11] It is a multidimensional instrument comprised by 27 items distributed in eight dimensions: pain and hurt (2 items), nausea (5 items), treatment anxiety (3 items) procedure anxiety (3 items), worry (3 items), cognitive problem (5 items), perception physical appearance (3 items), and communication (3 items). It presents two versions, one for the child or the adolescente reports divided by age group 5-7, 8-12, and 13-18 years old and an other for the parent reports from 2-4, 5-7, 8-12, and 13-18 years old.…”