Validation of the Portuguese version of a questionnaire to measure Quality of Care Through the Eyes of Patients with Inflammatory Bowel Disease (QUOTE-IBD)

Soares, João; Nogueira, Mayara Cristina; Fernandes, Dália; Gonçalves, Bruno; Gonçalves, Raquel

doi:10.1097/meg.0000000000000485

Cited by 13 publications

(18 citation statements)

References 18 publications

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“…In the QOUTE-IBD, all questions on Importance had a question non-response rate between 1 and 6.5%, although for Performance, the question non-response rate was 27-40%. This is similar to the Portuguese validation study of the QOUTE-IBD, where 92% of the patients answered all questions on Importance, but only 59% completed all the questions in the QOUTE-IBD [33]. In our study, the high response rate in the QoC-Q indicates good acceptability.…”

Section: Variablesupporting

confidence: 87%

The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease

Katarina

Börjeson

Gunilla

et al. 2018

Scandinavian Journal of Gastroenterology

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Background and aims: Quality of care is important in lifelong illnesses such as inflammatory bowel disease (IBD). Valid, reliable and short questionnaires to measure quality of care among persons with IBD are needed. The aim of this study was to develop a patient-derived questionnaire measuring quality of care in persons with IBD. Methods and results: The development of the questionnaire The Quality of Care -Questionnaire (QoC-Q) was based on a literature review of studies measuring quality of care, and the results of two qualitative studies aiming to identify the knowledge need and perception of health care among persons with IBD. Further development and evaluation was done by focus groups, individual testing and cognitive interviews with persons with IBD, as well as evaluation by a group of professionals. After the development, the questionnaire was tested for validity and test-retest reliability in 294 persons with IBD. Conclusions: The QoC-Q is showing promising validity and reliability for measuring the subjective perception of quality of care. Further testing in clinical practice is suggested to assess if the QoC-Q can be used to evaluate care and areas of improvement in health care for persons living with IBD. ARTICLE HISTORY

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Section: Variablesupporting

confidence: 87%

The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease

Katarina

Börjeson

Gunilla

et al. 2018

Scandinavian Journal of Gastroenterology

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“…This was also seen in the Portuguese validation study of the QOUTE-IBD, where 69% of the patients answered all questions on Performance (89) and 64% of the patients answered all questions on Importance and Performance. This is similar to the Portuguese validation study were only 59% of the patients completed all the questions (89). Study III indicates that there are problems with the QOUTE-IBD in terms of acceptability, due to the low response rate in the performance questions.…”

Section: Drop Out and Question Non Response Study IVsupporting

confidence: 56%

“…In the Portuguese version of the QUOTE-IBD, it was concluded that there is no golden standard for the assessment of quality of care from the perspective of those living with IBD. The need for a shorter and more user-friendly questionnaire was also expressed (89).…”

Section: Assessing Quality Of Carementioning

confidence: 99%

Life situation among persons living with inflammatory bowel disease.

Lesnovska¹

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to describe the knowledge need, life situation and perception of HC among persons living with IBD, in order to develop a questionnaire to evaluate the quality of HC. This thesis is based on three studies that are presented in four papers. Qualitative methods were used to describe aspects of life situation in relation to the disease, whereas quantitative method was used to develop a questionnaire measuring quality of care. Study I and II have an inductive qualitative design. In study I, qualitative interviews with 30 people were performed to describe the knowledge need and experience of critical incidents in daily life while living with IBD. The interviews in study I were analyzed using content analysis (results presented in Paper I) and critical incident technique (results presented in Paper II). In study II, the perceptions of HC among persons living with IBD was explored in five focus group interviews and two individual interviews, in total n=26. Study III aimed to develop and evaluate a questionnaire, measuring quality of care among persons with IBD, including 318 persons with IBD and 8 professionals. The knowledge need among persons with IBD focused on managing symptoms and course of the disease and learning to assimilate the information in order to manage everyday life. Losing bowel control was of great concern for most of the informants in the study. Many of the informants said that “the bowel ruled their life” and that it influenced them to a great extent in their daily lives. The perception of HC among persons with IBD meant being met with respect and mutual trust, receiving information at the right time, shared decision-making, competence and communication, access to care, accommodation, continuity of care and the pros and cons of specialized care. The quality of care questionnaire QoC-IBD was constructed in five dimensions, building on the results from Study I and II. The dimensions were trust and respect, decision-making, information, continuity of care and access to care consisting of 21 questions in total. QoC-IBD is a short, self-administrated questionnaire that measures experiences of healthcare among persons with IBD with promising validity and reliability. To improve quality of care, HC is recommended to consider individual care needs and take the person’s daily life and social context into account. The QoC-IBD questionnaire measures the subjective experience of quality of care. Further testing in clinical practice...

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“…9 In dealing with this issue, Sixma et al demonstrated that a more reliable approach was to look at an algorithm of performance, importance and impact scores for the various aspects of healthcare. 1 Sixma's conceptual framework was based on the prior work of Zastowny et al 39 in the Patient Experience Survey (PES) and has influenced the development of instruments, such as the QUOTE [20][21][22][40][41][42][43][44] (Quality Of care Through the patient's Eyes) and CQI (Consumer Quality Index), 19,23,[45][46][47][48][49][50] for assessing patient-reported care quality across various disciplines. Dentistry is yet to develop a validated patient-reporting instrument of its own.…”

Section: 9%mentioning

confidence: 99%

Perceptions of quality and safety among dental patients

Obadan‐Udoh¹,

Ramoni

Berg-Cloete

et al. 2019

S. Afr. dent. j.

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From the perspective of patients, quality of care can be defined as the ability of healthcare products and services to satisfy their stated or implied needs. Dental professionals have a moral obligation to deliver the best quality care in today's increasingly informed, consumer-driven society. To jumpstart the discussion on assessing quality of dental care, using patient perceptions. A cross-sectional study of South African dental patients. Questionnaires were distributed to all non-emergency, adult patients at a teaching dental hospital in South Africa. The outcome variables were: a) Access to Care; b) Technical Quality; c) Structure and Facilities; d) Communication; e) Global Rating of Safety. Overall, 58.6% of the participants had a positive view about the quality of dental care in South Africa. Age, race, marital status, child status, employment status, household income and educational status were associated with higher quality ratings. The question: "The instrument used in treating me appeared clean" (97.6%) was rated highly, while the question "Whenever I was sent to a new dentist, I had to repeat the tests that I did at the previous dentist" rated very low (36.9%). The findings suggest that the dental profession still has challenges in meeting the expectations of patients. Healthcare quality, patient safety, patient-reported outcome measures, dental care. From the patient's perspective, quality of care can be defined as the ability of healthcare products and services to satisfy their stated or implied needs. 1 As defined by the Committee on Healthcare Quality in America, Institute of Medicine (IOM), one of the seven aims for healthcare quality is Patient-centered Care ("providing care that is respectful of and responsive to individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions"). 2 The committee further describes the core dimensions of patient-centered care as: 1) Respect for patient values, attention to patient preferences and expressed needs; 2) Coordination and integration of care; 3) Information, communication and education;

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Validation of the Portuguese version of a questionnaire to measure Quality of Care Through the Eyes of Patients with Inflammatory Bowel Disease (QUOTE-IBD)

Abstract: PT-QUOTE-IBD is acceptable, valid, and reliable in the assessment of Performance and Quality Impact of Total Care, but not of all dimensions of healthcare.

Cited by 13 publications

References 18 publications

The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease

The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease

Life situation among persons living with inflammatory bowel disease.

Perceptions of quality and safety among dental patients

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