Valutare il rischio bio-psico-sociale in oncoematologia pediatrica. Riflessioni sull'applicazione del Percorso Diagnostico Terapeutico Assistenziale (PDTA) della Regione Piemonte in psicologia oncologica: risultati preliminari

Bertolotti, Marina; Roccia, Elvia; Zucchetti, Giulia; Peirolo, Claudia; Geuna, Tiziana; Bellini, Simona; Converso, Daniela

doi:10.3280/pds2017-001008

Cited by 4 publications

(3 citation statements)

References 14 publications

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“…Among oncology patients, infants and children are at higher risk for medical or psychological complications ( Bitsko et al, 2016 ; Brinkman et al, 2018 ). The psycho-evolutionary implications of antineoplastic treatments are well known ( Moore, 2005 ; Oppenheim, 2007 ; Miller et al, 2009 ; Brand et al, 2017 ; Stavinoha et al, 2018 ), in fact pediatric cancer patient is exposed to continuous events over time that can fall within the field of traumatic stress ( Bertolotti et al, 2017 ). Clinical experience in pediatric oncology shows that trauma can cause psychopathological conditions in survivors ( Stuber et al, 2010 ; Clerici et al, 2014 ) and also described in the literature ( Axia, 2004 ; Guarino, 2006 ; Bertolotti and Massaglia, 2011 ; Hildenbrand et al, 2011 ), framing pediatric cancer as a stressful and traumatic life cycle event ( Patenaude and Kupst, 2005 ; Phipps et al, 2005 ; Currier et al, 2009 ).…”

Section: Introductionmentioning

confidence: 99%

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

et al. 2021

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The changes and general alarm of the current COVID-19 pandemic have amplified the sense of precariousness and vulnerability for family members who, in addition to the emotional trauma of the cancer diagnosis, add the distress and fear of the risks associated with infection. The primary objectives of the present study were to investigate the psychological impact of the COVID-19 pandemic on the parents of pediatric cancer patients, and the level of stress, anxiety, and the child’s quality of life perceived by the parents during the COVID-19 epidemic. The parents of 45 consecutive children with solid and hematological tumors were enrolled. Four questionnaires (Impact of Event Scale-Revised – IES-R; Perceived Stress Scale – PSS; Spielberger State – Trait Anxiety Inventory – STAI-Y; Pediatric Quality of Life Inventory – PedsQL) were administered to the parents at the beginning of the pandemic lockdown. A 75% of parents exhibited remarkable levels of anxiety, with 60 subjects in state scale and 45 subjects in trait scale having scores that reached and exceeded the STAI-Y cut off. The bivariate matrix of correlation found a significant positive correlation between the IES-R and PSS scores (r = 0.55, P < 0.001). There was a positive correlation between the PSS and PedsQL (emotional needs) scale (P < 0.001) and a negative correlation between IES-R and STAI-Y (P < 0.001). The results confirm that parents of pediatric cancer patients have a high psychological risk for post-traumatic symptoms, high stress levels, and the presence of clinically significant levels of anxiety.

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Section: Introductionmentioning

confidence: 99%

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

et al. 2021

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“…Each score was discussed by the psychologists and was attributed only when a global consensus was reached. The tool has already been effective in examining the patient’s complexity over time in another study with the same population target 23 and in examining the biopsychosocial condition of childhood cancer survivors in the transition towards adult care. 24…”

Section: Methodsmentioning

confidence: 99%

Effects of a high-intensity psychosocial intervention among child–parent units in pediatric oncology

Zucchetti

Ambrogio²,

Bertolotti

et al. 2020

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Aim: To compare the efficacy of a high-intensity psychosocial intervention with standardized usual care in countering psychosocial complexity among child–parent units in a pediatric oncology setting. Methods: Two hundred pediatric oncology patients and their parents were recruited from Italian hospitals. A total of 81 child–parent units were assigned to the high-intensity psychosocial intervention and 119 child–parent units to standardized usual care. Psychosocial factors were assessed before and 1 year after intervention to measure efficacy. Results: More improvements over time were observed in the high-intensity intervention group of child–parent units compared to the standard intervention group. Conclusion: An intensive, structured, and tailored high-intensity intervention positively affects the psychosocial factors of child–parent units. Patients and families should have access to intensive psychosocial support throughout the cancer trajectory.

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“…As suggested by the standards of psychosocial care established by Wiener et al, 6 parents must receive a timely and ongoing assessment of their supportive care needs. The literature specifically highlights the most critical types of needs for parents of children with cancer: informational, 7–9 emotional, 10,11 practical, 12,13 psychosocial, 14,15 spiritual, and physical 16 . The early and ongoing identification of supportive care needs can support parents in providing optimal care to their child and thus reduce any immediate- and long-term adverse psychosocial effects 17–19 .…”

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confidence: 99%

Validation of a Tool to Assess the Multidimensional Needs of the Parents of Children With Cancer

et al. 2021

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Background: An assessment of the supportive care needs that parents whose children are suffering from cancer is crucial to providing maximum quality care in pediatric oncology.Objective: To examine the psychometric properties of the Cancer Patient Needs Questionnaire (CPNQ) and validate the revised version (rCPNQ) of this multidimensional tool that evaluates the needs of parents whose child has cancer. Methods: The original rCPNQ comprised 45 items and 6 dimensions of need. The original rCPNQ was first translated into Italian and then validated for use by performing an exploratory factor analysis with a subsequent reliability analysis for the entire scale and each factor found. Results: One hundred forty-nine parents completed the Italian version of the rCPNQ, where a preliminary correlation analysis revealed the need for different psychometric item properties in the Italian population, with 22 items being excluded in the final model. The results of an exploratory factor analysis indicated a structure encompassing 4 factors of needs: (1) child-related emotional, (2) functional, (3) healthcare-related, and (4) emotional. The final version showed satisfactory internal consistency (subscales' Cronbach's α all >.80) and stability. Conclusion: The Italian version of the rCPNQ is a shorter statistically validated version of the original scale and is a valid measure for professionals to use when assessing parents' supportive care requirements. Implications for Practice:The Italian version of rCPNQ can be used with professionals when assessing parents of children with cancer to assess their perceptions of their ill child's emotional, functional, and healthcare needs.

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Valutare il rischio bio-psico-sociale in oncoematologia pediatrica. Riflessioni sull'applicazione del Percorso Diagnostico Terapeutico Assistenziale (PDTA) della Regione Piemonte in psicologia oncologica: risultati preliminari

Cited by 4 publications

References 14 publications

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

Effects of a high-intensity psychosocial intervention among child–parent units in pediatric oncology

Validation of a Tool to Assess the Multidimensional Needs of the Parents of Children With Cancer

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