Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Braithwaite, Tasanee; Wiegerinck, Nils; Petzold, Axel; Denniston, Alastair K

doi:10.1007/s40123-020-00247-9

Cited by 7 publications

(8 citation statements)

References 12 publications

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“…These groups are useful to share experiences and discuss helpful practices to manage conditions. 34 For patients undergoing surgery, online support groups can also help elucidate details of the peri-operative expectations, increase motivation, and help patients and caregivers feel understood. 35 Undoubtedly, multilingual patient education materials and support groups contribute heavily towards patient competence and health outcomes.…”

Section: Regionmentioning

confidence: 99%

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Sunkara

Powell

Quick

et al. 2023

The Cleft Palate Craniofacial Journal

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Objective The objective of this study is to evaluate online educational resources on cleft lip and palate teams. Design A Cross-Sectional Study. Setting An International, Multi-Institutional Study. Participants All American Cleft Palate and Craniofacial Association-approved teams with websites. Interventions None Main Outcome Measures Websites were assessed for patient education and support content. Affiliation between presence of materials and U.S. Newsweek Top 100 Hospitals was also assessed. Results 187 teams were included. Presence of educational videos were available in 29.4% of websites, educational infographics in 18.2%, written materials in 66.8%, perioperative instructions in 19.3%, diagnosis information in 34.8% and treatment information in 63.1%. Information on team members were available on 77.0% of websites, resources in languages other than English in 38.5%, and support group resources in 25.7%. Cleft lip and palate diagnosis information was significantly associated with geographic region, with the largest impact from the West region ( P = .03). There was a significant difference between teams affiliated with U.S. Newsweek Top 100 hospitals: Top 100 hospitals had a higher presence of educational infographics, perioperative instructions, definitions, diagnosis, and treatment ( P < .01). There was no significant difference between presence of educational videos ( P = .37). Conclusion While many websites had basic educational materials, very few included detailed information on peri-operative planning, as well as additional forms of information including videos, infographics, and non-English languages. Providing comprehensive patient education materials online is an important supplement for patients with cleft lip and palate and should be prioritized by cleft teams.

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Section: Regionmentioning

confidence: 99%

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Sunkara

Powell

Quick

et al. 2023

The Cleft Palate Craniofacial Journal

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“…The possibility to display images directly to the individuals and discuss changes has given them more confidence and insight in their care. 35 This good partnership has helped in working together to build trust, supporting treatment decisions and making OCT scans available for research. There is a need to maintain this mutual trust at a time where the immense amount of data accumulated now permit AI‐inspired projects on big data.…”

Section: The Patient Voicementioning

confidence: 99%

“…It is noninvasive, noncontact, quick, and provides instant feedback. The possibility to display images directly to the individuals and discuss changes has given them more confidence and insight in their care 35 . This good partnership has helped in working together to build trust, supporting treatment decisions and making OCT scans available for research.…”

Section: The Patient Voicementioning

confidence: 99%

Artificial intelligence extension of the OSCAR‐IB criteria

Petzold

Albrecht

Balcer

et al. 2021

Ann Clin Transl Neurol

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Artificial intelligence (AI)-based diagnostic algorithms have achieved ambitious aims through automated image pattern recognition. For neurological disorders, this includes neurodegeneration and inflammation. Scalable imaging technology for big data in neurology is optical coherence tomography (OCT). We highlight that OCT changes observed in the retina, as a window to the brain, are small, requiring rigorous quality control pipelines. There are existing tools for this purpose. Firstly, there are human-led validated consensus quality control criteria (OSCAR-IB) for OCT. Secondly, these criteria are embedded into OCT reporting guidelines (APOSTEL). The use of the described annotation of failed OCT scans advances machine learning. This is illustrated through the present review of the advantages and disadvantages of AI-based applications to OCT data. The neurological conditions reviewed here for the use of big data include Alzheimer disease, stroke, multiple sclerosis (MS), Parkinson disease, and epilepsy. It is noted that while big data is relevant for AI, ownership is complex. For this reason, we also reached out to involve representatives from patient organizations and the public domain in addition to clinical and research centers. The evidence reviewed can be grouped in a five-point expansion of the OSCAR-IB criteria to embrace AI (OSCAR-AI). The review concludes by specific recommendations on how this can be achieved practically and in compliance with existing guidelines.

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“…For example, visual impairment has been independently associated with several mental health conditions, including depression [4][5][6][7], anxiety [5,6,8], and posttraumatic stress disorder [9]. Several studies report that eye care patients experience degrees of emotional trauma and may require some form of mental health support [10,11] which should not be limited to patients with recent diagnoses of an eye condition [10,12,13]. In addition, it has been shown that anxiety is one of the main reasons for clinic non-attendance at eye clinics [14][15][16][17].…”

Section: Introductionmentioning

confidence: 99%

Mental health support across the sight loss pathway: a qualitative exploration of eye care patients, optometrists, and ECLOs

Trott

Driscoll

Bourne

et al. 2023

Eye

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Background The process of becoming visually impaired or blind is undoubtedly a highly emotional experience, requiring practical and psychological support. Information on mental health support provision in the UK across the sight-loss pathway, however, is largely unknown, especially amongst healthcare practitioners that are often sought after for advice: the referring optometrist and eye clinic liaison officer (ECLO). This study aims to ascertain the perceived accessibility and quality of mental health support across the sight-loss pathway. Methods Semi-structured individual interviews were conducted with patients with a diagnosed eye condition who had received care from a hospital eye service, referring optometrists, and ECLOs. Following interview transcription, results were synthesised in a narrative analysis. Results A total of 28 participants were included in the analysis, of which 17 were participants with various eye conditions, five were referring optometrists, and five were ECLOs. After analysis, three broad themes emerged: (1) The emotional trauma of diagnosis (2) Availability of mental health support; (3) The point where mental health support is most needed across the sight-loss pathway. Several patients reporting that they had received no offer of support nor were they signposted to any possible sources. Referring optometrists and ECLO’s agreed. Conclusion It is important that referring optometrists are aware of the need for mental health support services and can signpost to local support services including the third sector anytime during the referral process. Future large-scale, UK-wide research into referral practice and signposting for mental health support for patients is warranted, to identify how services can be improved in order to ensure that the wellbeing of patients is maintained.

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Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Cited by 7 publications

References 12 publications

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Artificial intelligence extension of the OSCAR‐IB criteria

Mental health support across the sight loss pathway: a qualitative exploration of eye care patients, optometrists, and ECLOs

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