Vivre le vieillir : autour du concept de déprise

Meidani, Anastasia; Cavalli, Stefano

doi:10.3917/gs1.155.0009

Cited by 23 publications

(8 citation statements)

References 15 publications

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“…The extension of this research will make it possible to confirm (or not) whether the patient typology presented in this study is identifiable for other cancers and for male patients, or if it is possible to identify others. Similarly, it would be relevant to identify the behaviour and attitude of patients during cancer recurrence or the development of another cancer than the one experienced by also integrating the question of age referring to works underlining the stoic attitude of older patients towards the disease [56].…”

Section: Limitations and Future Researchmentioning

confidence: 99%

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Chérif

Martin-Verdier

Rochette

2020

BMC Health Serv Res

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Background: Healthcare systems are facing many changes. Particularly, patients are more engaged in the care process. The medical perspective of the process is insufficient to provide patients with high quality care and service personalisation. This research presents an attempt to complete this medical perspective through an experiential perspective, especially for chronic diseases such as cancer. We investigated patients' experiences and profiles to reach a deeper understanding of their needs and expectations when they confront the disease. The objectives of this research were to model the key stages underling the patient pathway and to identify the challenging touch points of the interactions between patients and healthcare providers. Bringing together findings of patient experience, pathway, and profiles would help all the stakeholders involved to develop better practices for the healthcare process. Methods: A qualitative observational nethnography on a French specialized forum for breast cancer patients "les Impatientes" was conducted. A total of 967 reviews were collected over a complete year period from all over France. Thematic and lexicometric content analysis were performed according to the experience dimensions, the pathway stages and touch points, as well as the patients' profiles. Results: Data analysis shows that the healthcare pathway experienced by the patients is built around three stages. The discovery stage is closely related to the emotional dimension regarding the patient and physician relationship. The examination stage is characterized by a more technical and informational needs for the types of treatments. The follow-up and survivorship stage illustrates the patients' need to assess the treatments' effectiveness and the quality of the follow-up. Moreover, three profiles of patients were identified. The newcomers, the altruists and the autonomous are characterized by different attitudes depending on the stage of the healthcare pathway they were living. Conclusions: Our research presents an original modelling of the patient pathway and profiles beyond the medical process. It gives practical tracks to improve the healthcare pathway. Patients expect healthcare providers to integrate and strengthen several challenging touch points in order to create satisfactory patient experiences and high quality service.

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Section: Limitations and Future Researchmentioning

confidence: 99%

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Chérif

Martin-Verdier

Rochette

2020

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…The extension of this research will make it possible to con rm (or not) whether the patient typology presented in this study is identi able for other cancers and for male patients, or if it is possible to identify others. Similarly, it would be relevant to identify the behaviour and attitude of patients during cancer recurrence or the development of another cancer than the one experienced by also integrating the question of age referring to works underlining the stoic attitude of older patients towards the disease [56].…”

Section: Limitations and Future Researchmentioning

confidence: 99%

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Chérif¹,

Verdier

Rochette

2020

Preprint

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Background: Healthcare systems are facing many changes. Particularly, patients are more engaged in the care process. The medical perspective of the process is insufficient to provide patients with high quality care and service personalisation. This research presents an attempt to complete this medical perspective through an experiential perspective, especially for chronic diseases such as cancer. We investigated patients’ experiences and profiles to reach a deeper understanding of their needs and expectations when they confront the disease. The objectives of this research were to model the key stages underling the patient pathway and to identify the challenging touch points of the interactions between patients and healthcare providers. Bringing together findings of patient experience, pathway, and profiles would help all the stakeholders involved to develop better practices for the healthcare process. Methods: A qualitative observational nethnography on a French specialized forum for breast cancer patients “ les Impatientes” was conducted. A total of 967 reviews were collected over a complete year period from all over France. Thematic and lexicometric content analysis were performed according to the experience dimensions, the pathway stages and touch points, as well as the patients’ profiles. Results: Data analysis shows that the healthcare pathway experienced by the patients is built around three stages. The discovery stage is closely related to the emotional dimension regarding the patient and physician relationship. The examination stage is characterized by a more technical and informational needs for the types of treatments. The follow-up and survivorship stage illustrates the patients’ need to assess the treatments’ effectiveness and the quality of the follow-up. Moreover, three profiles of patients were identified. The newcomers, the altruists and the autonomous are characterized by different attitudes depending on the stage of the healthcare pathway they were living. Conclusions: Our research presents an original modelling of the patient pathway and profiles beyond the medical process. It gives practical tracks to improve the healthcare pathway. Patients expect healthcare providers to integrate and strengthen several challenging touch points in order to create satisfactory patient experiences and high quality service.

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“…Au-delà de l'école toulousaine, le paradigme sera accueilli avec enthousiasme par d'autres chercheurs français qui la reprendront Pennec et coll., 2001 ;Mallon, 2004). Récemment, un colloque international et interdisciplinaire a été organisé à Toulouse autour de cette question, et un numéro spécial lui a été dédié dans la revue Gérontologie et Société (Meidani, Cavalli, 2018).…”

Section: La Déprise : Un Outil D'analyse Des Expériences Du Vieillirunclassified

Figures du vieillir et formes de déprise

Meidani¹,

Cavalli²

2019

Figures Du Vieillir Et Formes De Déprise

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Table des matières Anastasia MEIDANI & Stefano CAVALLI : La déprise : un outil d'analyse des expériences du vieillir Première Partie : Entre autonomie et dépendance, fragilité et vulnérabilité Stefano CAVALLI et Christian LALIVE d'EPINAY : Faire face aux perturbations de la vie : déprise et reprise au grand âge Simone PENNEC : Déprise et trajectoires de santé : emprise, remise de soi et entreprise du souci d'autrui Éric GAGNON : Le temps, les soins, la déprise Julie BERNARD et Anastasia MEIDANI : Face à la déprise, la reprise : expériences de vieillissement et configurations d'aide formelle Deuxième Partie : Parcours de santé et déprise : autour de la démence Anastasia MEIDANI : Vivre avec la maladie d'Alzheimer en France, en Suède et en Grèce : Entre déprise, reprise et emprise Guillaume FERNANDEZ et Armelle GENTRIC : Entre continuité, ruptures et renégociations : quelles déprises après un diagnostic de maladie d'Alzheimer ? Vincent CARADEC et Aline CHAMAHIAN : Vieillir avec la maladie d'Alzheimer. Une analyse à la lumière des concepts de déprise et d'épreuve Jean Yves BOUSIGUE : Sur la déprise : une expérience en neurochirurgie. Perspectives et retours d'expériences Troisième Partie : Vieillir et se déprendre : une expérience corporelle genrée Monica ACETI, Gilles VIEILLE MARCHISET, Sandrine KNOBÉ, Elke GRIMMINGER : Emprise normative et déprise suggérée : des inégalités sociales dans l'injonction au vieillir actif en Europe Yves MORALES et Jean-Paul GENOLINI : Le réaménagement des activités physiques au fil du temps Michèle CHARPENTIER et Anne QUÉNIART (avec la collaboration de Jonathan GLENDENNING) : Vieillir au masculin. Entre déprise et emprise des normes de genre Arnaud ALESSANDRIN : Vieillir LGBT / Vieillir T. : la valeur heuristique du concept de la déprise

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Vivre le vieillir : autour du concept de déprise

Cited by 23 publications

References 15 publications

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

Figures du vieillir et formes de déprise

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