WebRehab: A Swedish database for quality control in rehabilitation

Sunnerhagen, Katharina S.; Flansbjer, Ulla-Britt; Lannsjö, Marianne; Tölli, Anna; Lundgren‐Nilsson, Åsa

doi:10.2340/16501977-1886

Cited by 7 publications

(9 citation statements)

References 14 publications

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“…It is not known whether these procedures have a negative influence on user involvement and self-efficacy. Only one center provided annual reports to a national data set, Web Rehab (27). This may reflect the paucity of guidelines and stakeholders' demands that exists on an international and national level for specialized rehabilitation (28).…”

Section: Discussionmentioning

confidence: 99%

Specialized Stroke Rehabilitation Services in Seven Countries

Langhammer

Becker

Sunnerhagen

et al. 2015

International Journal of Stroke

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This multinational study of specialized stroke rehabilitation centers shows that a universal definition of specialized rehabilitation is possible, even in quite different countries and settings, in terms of general principles. There were however differences in structures and procedures, which may influence patients' outcomes, indicating a need for refinement of the definitions to be globally applicable.

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Section: Discussionmentioning

confidence: 99%

Specialized Stroke Rehabilitation Services in Seven Countries

Langhammer

Becker

Sunnerhagen

et al. 2015

International Journal of Stroke

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“…Twenty-three rehabilitation units in Sweden contribute to the database, representing all 21 counties of Sweden. The rehabilitation units report data from the rehabilitation period, including admission and discharge, and from a 1-year follow-up 22. WebRehab is certified at level 2 which is the second highest certification level.…”

Section: Methodsmentioning

confidence: 99%

“…LiS is not reported in the national quality register for stroke care, Swedish Stroke Registry(Riks-stroke) 21. One registry in Sweden, WebRehab, offers the possibility to report level of consciousness and also report LiS 22. All the rehabilitation medicine clinics in Sweden participate in this quality register.…”

Section: Introductionmentioning

confidence: 99%

Locked-in syndrome in Sweden, an explorative study of persons who underwent rehabilitation: a cohort study

et al. 2019

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ObjectiveLocked-in syndrome (LiS) is a rare condition, characterised by a complete paresis except for vertical eye movements and blinking with cognitive functions intact, commonly caused by ischaemia in the ventral pons. Previous studies have indicated that persons with LiS can live on for many years and have a good quality of life (QoL). To our knowledge, LiS has never been studied in Sweden. The aim was to explore LiS in Sweden; describing population characteristics, living situation, mortality/cause of death and health-related QoL/impact on participation.DesignExplorative, nationwide study with two parts (quantitative and qualitative). Persons registered in the national quality register WebRehab during 2007–2014 were eligible.ParticipantsTen persons were identified in part 1, four participated in part 2. During part 1, data were collected from WebRehab, medical charts and registers, while questionnaires and interviews were used during part 2.ResultsSeven out of 10 were men, median age at onset was 49 years and the cause of LiS was in all cases stroke, 70% of which ischaemic. Three were deceased with a median time of survival of 1.9 years. Seven were still alive, with a median time elapsed since onset of 5.8 years. Three participants experienced good QoL. Information, respect from professionals and more specialised technical devices were three areas containing unfulfilled needs.ConclusionThis was the first study conducted in Sweden and the characteristics of this population were like those studied abroad. In this study, the persons with LiS who were interviewed expressed the need for proper care, appropriate technical aids and a supportive environment in order to have QoL. However, there is still much room for improvements.

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“…WebRehab Sweden is a quality register that collects data on brain-injured patients upon admission to hospital, at discharge from hospital, and at follow-up 1 year after the injury [38]. WebRehab Sweden started 1997 and covers 75% of the rehabilitation medicine clinics in Sweden [38]. Between 1 January 2007 and 15 January 2016 (the data collection period for the present study), the register included a total of 11,346 patients with ABI.…”

Section: Methodsmentioning

confidence: 99%

Risk Markers for Not Returning to Work Among Patients with Acquired Brain Injury: A Population-Based Register Study

2019

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Purpose The aim of this study is to investigate person-related, injury-related, activity-related and rehabilitation-related risk markers for not return to work among patients with acquired brain injury (ABI). Methods Retrospective data from the Quality register, WebRehab Sweden, on an ABI cohort of 2008 patients, was divided into two groups: those who had returned to work (n = 690) and those who had not returned to work (n = 1318) within a year of the injury. Results Risk ratio analyses showed that several factors were risk markers for not returning to work: personal factors, including being a woman, being born outside of Sweden, having a low education level, and not having children in the household; injury-related factors, including long hospital stay (over 2 months), aphasia, low motor function, low cognitive function, high pain/discomfort, and high anxiety/depression; activity-related factors, including low function in self-care, inability to perform usual activities, and not having a driver’s license; and rehabilitation-related factors, including being dissatisfied with the rehabilitation process and the attentiveness of the staff having limited influence over the rehabilitation plan, or not having a rehabilitation plan at all. Conclusion Several factors in different aspects of life were risk markers for not returning to work among patients with ABI. This suggests that rehabilitation and interventions need to address not only direct injury-related issues, but also person-related, activity-related, and rehabilitation-related factors in order to increase the patient’s opportunities to return to work.

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WebRehab: A Swedish database for quality control in rehabilitation

Abstract: A quality registry presents an opportunity to improve rehabilitation processes at participating units, provides data for use in benchmarking between units, and enables hospital management to utilize resources wisely.

Cited by 7 publications

References 14 publications

Specialized Stroke Rehabilitation Services in Seven Countries

Specialized Stroke Rehabilitation Services in Seven Countries

Locked-in syndrome in Sweden, an explorative study of persons who underwent rehabilitation: a cohort study

Risk Markers for Not Returning to Work Among Patients with Acquired Brain Injury: A Population-Based Register Study

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