Werken hangt samen met de kwaliteit van leven bij mensen met multiple sclerose

Boot, Cécile R. L.; Lieshout, I. J. van den Broek-van; Gulden, J.W.J. van der

doi:10.1007/bf03081313

Cited by 3 publications

(2 citation statements)

References 13 publications

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“…Production loss (especially early retirement costs due to MS) covers almost half of the total annual MS-related costs in the Netherlands (45.8%) [4]. Research in a Dutch population suggests that unemployment in persons with MS is related to a lower quality of life and worse mental health [5].…”

Section: Introductionmentioning

confidence: 99%

A Dutch validation study of the Multiple Sclerosis Work Difficulties Questionnaire in relapsing remitting multiple sclerosis

Egmond

Gorp²,

Honan

et al. 2019

Disability and Rehabilitation

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Purpose: The current study aimed to evaluate the psychometric properties of the Dutch version of the Multiple Sclerosis Work Difficulties . Methods: Two hundred and thirty-nine employed persons with multiple sclerosis (MS) and 59 healthy controls completed the MSWDQ-23. To verify the factor structure, a confirmatory factor analysis was conducted. To assess construct validity, the MSWDQ-23 scores were correlated to measures of physical disability, fatigue, cognitive and neuropsychiatric problems, depression, health-related quality of life, and work-related variables. MSWDQ-23 scores were compared within different age groups, gender, education levels, and job types. Predictive validity was assessed using a logistic regression analysis to predict a deterioration in employment status after one year based on MSWDQ-23 scores. Results: The internal consistency of the MSWDQ-23 was acceptable (a ¼ 0.913, 95% CI ¼ 0.897-0.928) and the results indicated a fair fit. The MSWDQ-23 showed acceptable construct validity, confirming 94% of the hypotheses. The total scale and the psychological/cognitive subscale were able to predict a deterioration in employment status after one year (v 2 (1)¼18.164, p < 0.001). Conclusions: The Dutch version of the MSWDQ-23 is a valid and internally consistent instrument to measure self-reported work difficulties in persons with MS. ä IMPLICATIONS FOR REHABILITATIONThe Dutch version of the 23-item Multiple Sclerosis Work Difficulties Questionnaire (MSWDQ-23) is a reliable and valid tool to measure self-reported work difficulties in people with multiple sclerosis (MS). More psychological and cognitive work difficulties are predictive of a deteriorated employment status after one year. The MSWDQ-23 is a helpful tool for researchers and (occupational) health professionals to identify current work difficulties in persons with MS and identify persons at risk for a deterioration in employment one year later.

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Section: Introductionmentioning

confidence: 99%

A Dutch validation study of the Multiple Sclerosis Work Difficulties Questionnaire in relapsing remitting multiple sclerosis

Egmond

Gorp²,

Honan

et al. 2019

Disability and Rehabilitation

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“…In fact, in recent years the ability to work and being employed increasingly received attention within healthcare research. This is not surprising as work participation is a significant determinant of HRQoL in PwMS, independent of their experienced health [ 28 ]. The Dutch government encourage individuals with a chronic disease such as MS to self-manage and take control of their lives, including their work [ 29 ].…”

Section: Introductionmentioning

confidence: 99%

Don’t be late! Postponing cognitive decline and preventing early unemployment in people with multiple sclerosis: a study protocol

Aarts,

Saddal,

Bosmans

et al. 2024

BMC Neurol

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Background Up to 65% of people with multiple sclerosis (PwMS) develop cognitive deficits, which hampers their ability to work, participating in day-to-day life and ultimately reducing quality of life (QoL). Early cognitive symptoms are often less tangible to PwMS and their direct environment and are noticed only when symptoms and work functioning problems become more advanced, i.e., when (brain) damage is already advanced. Treatment of symptoms at a late stage can lead to cognitive impairment and unemployment, highlighting the need for preventative interventions in PwMS. Aims This study aims to evaluate the (cost-) effectiveness of two innovative preventative interventions, aimed at postponing cognitive decline and work functioning problems, compared to enhanced usual care in improving health-related QoL (HRQoL). Methods Randomised controlled trial including 270 PwMS with mild cognitive impairment, who have paid employment ≥ 12 h per week and are able to participate in physical exercise (Expanded Disability Status Scale < 6.0). Participants are randomised across three study arms: 1) ‘strengthening the brain’ – a lifestyle intervention combining personal fitness, mental coaching, dietary advice, and cognitive training; 2) ‘strengthening the mind’ – a work-focused intervention combining the capability approach and the participatory approach in one-on-one coaching by trained work coaches who have MS themselves; 3) Control group—receiving general information about cognitive impairment in MS and receiving care as usual. Intervention duration is four months, with short-term and long-term follow-up measurements at 10 and 16 months, respectively. The primary outcome measure of the Don’t be late! intervention study will be HRQoL as measured with the 36-item Short Form. Secondary outcomes include cognition, work related outcomes, physical functioning, structural and functional brain changes, psychological functioning, and societal costs. Semi-structured interviews and focus groups with stakeholders will be organised to qualitatively reflect on the process and outcome of the interventions. Discussion This study seeks to prevent (further) cognitive decline and job loss due to MS by introducing tailor-made interventions at an early stage of cognitive symptoms, thereby maintaining or improving HRQoL. Qualitative analyses will be performed to allow successful implementation into clinical practice. Trial registration Retrospectively registered at ClinicalTrials.gov with reference number NCT06068582 on 10 October 2023.

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Multiple sclerose en behoud van werk

Schaafsma

Hoving²

2016

TBV - Tijdschr Bedrijfs- en Verzekeringsgeneeskd

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Werken hangt samen met de kwaliteit van leven bij mensen met multiple sclerose

Cited by 3 publications

References 13 publications

A Dutch validation study of the Multiple Sclerosis Work Difficulties Questionnaire in relapsing remitting multiple sclerosis

A Dutch validation study of the Multiple Sclerosis Work Difficulties Questionnaire in relapsing remitting multiple sclerosis

Don’t be late! Postponing cognitive decline and preventing early unemployment in people with multiple sclerosis: a study protocol

Multiple sclerose en behoud van werk

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