“What do you mean ‘what's wrong with her?’”: stigma and the lives of families of children with disabilities

Negotiating blame and responsibility in the context of a “de novo” mutation

“…Stigma is a process whereby particular characteristics of a person or group are distinguished and 'discredited'. Examples of stigmatised illness include epilepsy or HIV, which might involve practices of concealment and restricted disclosure (Schneider and Conrad, 1980;Green, 2003). Whereas stigma is often associated with the reactions of 'outsiders' (Green, 2003), here 22q11 deletion syndrome appears to be stigmatised from within the family.…”

Promoting Prosocial Beliefs and Behavior Toward People with Disabilities in Nepal through a Children’s Entertainment-Education Program

“…Defining disability is a complex task, since the concept of disablement is socially constructed and culturally determined (Dalal, 2001;Green, 2003). The International Classification of Functioning Disability and Health (ICF) of the World Health Organization (WHO) provides a comprehensive classification scheme for defining the world's people with disabilities (World Health Organization, 2001).…”

A maternidade em mães de crianças com doenças neurológicas crônicas: um estudo sobre a sobrecarga e a qualidade de vida

“…A literatura destaca o interesse pela sobrecarga não somente na área da saúde mental, mas também nos cuidados decorrentes de várias outras populações: idosos com demência (CERQUEIRA; OLIVEIRA, 2002;ALMEIDA, 1999;MENEZES, 2004;GORT et al, 2007); pacientes com doenças crônicas (BOCCHI, 2004;FIGVED et al, 2007;HALEY, 2003;MEDEIROS, 1998;SCHRAG et al, 2006;FLORIANI;SCHRAMM, 2006;WESTPHAL et al, 2005) e pacientes com deficiências (BREHAUT et al, 2007;GREEN, 2006GREEN, , 2007RAINA et al, 2007).…”