What Factors Do People with Joint Pain Feel are Important in Designing and Developing Community Information-Based Self-Management Approaches? A Patient and Public Engagement Report

Adams, Jo; Whale, Elizabeth; Walker, Dawn‐Marie; Parsons, Luke; Wilson, Nicky

doi:10.1002/msc.1158

Cited by 4 publications

(10 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The health care information received by our participants did not support them in adopting self-management behaviors. It appears that patient education materials in use did not actively build patient knowledge, understanding, and confidence to act on information that is known to support people engaging with self-management approaches [43,44]. Here, lessons could be learned from commercial, for-profit, MSK websites that present information in clear, more patient friendly and persuasive ways than many other not for profit charitable and National Health Service sites in the UK [45].…”

Section: Discussionmentioning

confidence: 99%

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study

Adams

Lowe

Protheroe

et al. 2018

Disability and Rehabilitation

Self Cite

View full text Add to dashboard Cite

Background: This study recorded the functional health literacy levels of people with musculoskeletal (MSK) conditions from harder to reach groups and explored their experiences in engaging with health care professionals to self-manage their MSK condition.Methods: We recruited participants, identified by key health and social care contacts as likely to have lower health literacy levels, and used semi-structured interviews to collect data. Thematic analysis was used to identify the main key themes arising from the transcribed interviews.Results: Eighteen participants were identified and recruited from harder to reach community populations, 10 were scored as having inadequate functional health literacy on the Short Form Rapid Estimate of Adult Literacy Measure. Three themes were identified in relation to participants’ experiences of MSK self-management approaches: engaging with health care services; interpreting the health care providers’ message; and facilitating participation in MSK self-management.Conclusions: Our findings indicate that people with a MSK condition, from harder to reach groups, experience multi-morbidity, find health care systems complicated and hear from health care professionals that their MSK condition cannot be cured. People interpreted that a lack of cure meant that nothing could be done to help their MSK pain. Engaging with self-management strategies was not seen as a priority for our participants. Strategies to simplify health communication, more time to process health information and supportive social networks helped our participants to understand and manage their MSK health on a day-to-day basis. Implications for RehabilitationMSK conditions are long term and prevalent in the UK with substantial impact on people’s daily life.Currently self-management strategies for MSK conditions are poorly communicated and many patients believe that nothing can be done to help their MSK pain.Good clinician communication that supports self-management is needed so that key messages can be effectively understood and used by patients with a range of literacy skills.Health services need to be even more accessible to help all individuals from a range of backgrounds better self-manage their MSK conditions.

show abstract

Section: Discussionmentioning

confidence: 99%

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study

Adams

Lowe

Protheroe

et al. 2018

Disability and Rehabilitation

Self Cite

View full text Add to dashboard Cite

show abstract

“…Key search terms were developed in collaboration with PPI representatives with OA. As research partners rather than participants, 33 PPI representatives provided input to ensure the exploration incorporated lay perspectives and priorities to enhance the study design. Pain was identified by the PPI representatives as the principal motivation to seek information and advice online, and it was considered that the location of pain would form the basis of any internet search for self-help advice.…”

Section: Methodsmentioning

confidence: 99%

“…through video resources, are helpful factors to encourage engagement within selfmanagement approaches. 33 No research to date has investigated the accessibility of webpages offering selfmanagement support for people with OA. Lower readability levels of text, 25 and images and videos that support text, 23,32,33 can improve accessibility.…”

Section: Introductionmentioning

confidence: 99%

“…33 No research to date has investigated the accessibility of webpages offering selfmanagement support for people with OA. Lower readability levels of text, 25 and images and videos that support text, 23,32,33 can improve accessibility. The aim of this study was therefore to assess the accessibility of English language webpages providing self-management support for people with OA by considering readability, using two validated readability measures, and by establishing whether informative images and videos were included within these webpages.…”

Section: Introductionmentioning

confidence: 99%

“…through video resources, are helpful factors to encourage engagement within self-management approaches. 33…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Accessibility of online self-management support websites for people with osteoarthritis: A text content analysis

et al. 2017

Self Cite

View full text Add to dashboard Cite

Objectives This study assessed accessibility of online self-management support webpages for people with osteoarthritis by considering readability of text and inclusion of images and videos. Methods Eight key search terms developed and agreed with patient and public involvement representatives were entered into the Google search engine. Webpages from the first page of Google search results were identified. Readability of webpage text was assessed using two standardised readability indexes, and the number of images and videos included on each webpage was recorded. Results Forty-nine webpages met the inclusion criteria and were assessed. Only five of the webpages met the recommended reading level for health education literature. Almost half (44.9%) of webpages did not include any informative images to support written information. A minority of the webpages (6.12%) included relevant videos. Discussion Information provided on health webpages aiming to support patients to self-manage osteoarthritis may not be read, understood or used effectively by many people accessing it. Recommendations include using accessible language in health information, supplementing written information with visual resources and reviewing content and readability in collaboration with patient and public involvement representatives.

show abstract

Understanding peer mentorship in supporting self‐management of hip and knee osteoarthritis: A qualitative study of mentees' perspectives

Lavender

Anderson

Dusabe-Richards

et al. 2021

Musculoskeletal Care

View full text Add to dashboard Cite

Background Hip and knee osteoarthritis (OA) are common musculoskeletal conditions. Treatment is usually conservative, making self‐management a priority. We developed and trialled an OA peer mentorship intervention to support self‐management in older people. Our objectives were to gain understanding of the perceived challenges of living with OA and explore how a peer mentorship intervention can support tackling these challenges; and to explore mentees' experiences of receiving the intervention to understand how this affected their OA self‐management. Methods Qualitative semi‐structured interviews focussing on acceptability and feasibility of being in the study were conducted with mentees. Transcribed interviews were double coded and subject to framework analysis. To address the objectives of this paper, three main themes were subject to focused analysis: mentees' experiences of OA, experience of peer mentorship support and factors influencing self‐management. Results Seventeen mentees participated in an interview following completion of the peer support intervention. Themes emerging from focused analysis were the following: tackling the challenges of living with OA pre‐ and post‐intervention; and the interplay of the peer mentorship intervention and self‐management. Key elements of the latter theme are enabling factors provided by peer mentorship, and mentees' readiness to self‐manage. Conclusion To effectively support OA self‐management, peer mentorship interventions should include core educational components and focus on strategies that enhance key enablers of self‐management. Paying attention to the mentor–mentee relationship and timing of intervention engagement can maximise opportunities for older people to adjust and transition from supported to independent self‐management.

show abstract

What Factors Do People with Joint Pain Feel are Important in Designing and Developing Community Information-Based Self-Management Approaches? A Patient and Public Engagement Report

Cited by 4 publications

References 16 publications

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study

Accessibility of online self-management support websites for people with osteoarthritis: A text content analysis

Understanding peer mentorship in supporting self‐management of hip and knee osteoarthritis: A qualitative study of mentees' perspectives

Contact Info

Product

Resources

About