What is important in supporting self-management in community stroke rehabilitation? A Q methodology study

Millar, Julie Duncan; Mason, Helen; Kidd, Lisa

doi:10.1080/09638288.2022.2087766

Cited by 6 publications

(3 citation statements)

References 28 publications

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“…Moreover, providing the triad with the opportunity to implement a collaborative goal-setting approach and set meaningful goals was pointed out by participants as highly useful in supporting self-management during the rehabilitation process. Previous findings also highlight the importance of focusing on meaningful goals and working in partnership with trusting, supportive relationships to contribute to building self-confidence and a sense of self-worth [ 65 , 66 , 67 ]. However, other Portuguese studies revealed difficulties in the involvement of both people with stroke and informal caregivers during the decision-making throughout rehabilitation [ 12 ], which emphasizes the importance of the development of the ComVida intervention.…”

Section: Discussionmentioning

confidence: 99%

Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

Mendes Pereira,

Matos,

Carvalho

et al. 2024

JCM

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Evidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, there are no known programs of this nature. This study aimed to develop a person-centered and tailored blended care program for post-stroke self-management, taking into account the existing evidence-informed interventions and the perspectives of Portuguese people with stroke, caregivers, and health professionals. An exploratory sequential mixed methods approach was used, including qualitative methods during stakeholder consultation (stage 1) and co-production (stage 2) and quantitative assessment during prototyping (stage 3). After ethical approval, recruitment occurred in three health units. Results from a literature search led to the adaptation of the Bridges Stroke Self-Management Program. In stage one, 47 participants were interviewed, with two themes emerging: (i) Personalized support and (ii) Building Bridges through small steps. In stage two, the ComVida program was developed, combining in-person and digital approaches, supported by a workbook and a mobile app. In stage three, 56 participants evaluated prototypes, demonstrating a strong level of quality. Understandability and actionability of the developed tools obtained high scores (91–100%). The app also showed good usability (A-grade) and high levels of recommendation (5 stars).

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Section: Discussionmentioning

confidence: 99%

Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

Mendes Pereira,

Matos,

Carvalho

et al. 2024

JCM

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“…The aim of all Q studies is to identify patterns of shared perspectives 40–42. In the context of realist methods this sits well with the goal of uncovering regularities in data 43. We will make use of this approach to unpack the mechanisms at work in different contexts 44.…”

Section: Methods and Analysismentioning

confidence: 99%

“…[40][41][42] In the context of realist methods this sits well with the goal of uncovering regularities in data. 43 We will make use of this approach to unpack the mechanisms at work in different contexts. 44 The Q set of statements will comprise of candidate mechanisms drawn from theory, interview and workshop data and hypotheses that emerge from preliminary analysis of context-outcome patterns in the questionnaire study.…”

Section: Q Methodology Studymentioning

confidence: 99%

Common health assets protocol: a mixed-methods, realist evaluation and economic appraisal of how community-led organisations (CLOs) impact on the health and well-being of people living in deprived areas

et al. 2023

Self Cite

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IntroductionThis research investigates how community-led organisations’ (CLOs’) use of assets-based approaches improves health and well-being, and how that might be different in different contexts. Assets-based approaches involve ‘doing with’ rather than ‘doing to’ and bring people in communities together to achieve positive change using their own knowledge, skills and experience. Some studies have shown that such approaches can have a positive effect on health and well-being. However, research is limited, and we know little about which approaches lead to which outcomes and how different contexts might affect success.Methods and analysisUsing a realist approach, we will work with 15 CLOs based in disadvantaged communities in England, Scotland and Northern Ireland. A realist synthesis of review papers, and a policy analysis in different contexts, precedes qualitative interviews and workshops with stakeholders, to find out how CLOs’ programmes work and identify existing data. We will explore participants’ experiences through: a Q methodology study; participatory photography workshops; qualitative interviews and measure outcomes using a longitudinal survey, with 225 CLO participants, to assess impact for people who connect with the CLOs. An economic analysis will estimate costs and benefits to participants, for different contexts and mechanisms. A ‘Lived Experience Panel’ of people connected with our CLOs as participants or volunteers, will ensure the appropriateness of the research, interpretation and reporting of findings.Ethics and disseminationThis project, research tools and consent processes have been approved by the Glasgow Caledonian University School of Health and Life Sciences Ethics Committee, and affirmed by Ethics Committees at Bournemouth University, Queen’s University Belfast and the University of East London. Common Health Assets does not involve any National Health Service sites, staff or patients.Findings will be presented through social media, project website, blogs, policy briefings, journal articles, conferences and visually in short digital stories, and photographic exhibitions.

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Laboratory Experiences with an Intelligent Robotic Crank for Arm Exercises

Sanz,

Russo,

Díaz

et al. 2024

Lecture Notes in Computer Science

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What is important in supporting self-management in community stroke rehabilitation? A Q methodology study

Cited by 6 publications

References 28 publications

Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

Common health assets protocol: a mixed-methods, realist evaluation and economic appraisal of how community-led organisations (CLOs) impact on the health and well-being of people living in deprived areas

Laboratory Experiences with an Intelligent Robotic Crank for Arm Exercises

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