Workplace preparedness and recognition of the continued employment of employees with early onset dementia

Omote, Shizuko; Ishiwata, Tomoko; Okamoto, Rie; Ichimori, Akie; Morikawa, Yuko; Koyama, Yoshiko; Ikeuchi, Satomi; Okuno, Takami; Takahashi, Yutaro; Kido, Teruhiko

doi:10.1539/sangyoeisei.2018-043-e

Cited by 3 publications

(3 citation statements)

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“…[2][3][4] For this reason, the onset of EOD has particularly serious impacts on their social lives and that of their families. 4 Appropriate services addressing workplace, 3,[5][6][7][8] families, [9][10][11][12][13][14] and meaningful social activities and participation should be planned in the context of national and local dementia measures. [2][3][4]15 However, these remain insufficient and people living with EOD and their families often have unmet needs.…”

Section: Introductionmentioning

confidence: 99%

Prevalence and subtype distribution of early‐onset dementia in Japan

et al. 2020

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Aim: People living with early-onset dementia (EOD) have specific social needs. Epidemiological studies are needed to obtain current information and provide appropriate service planning. This study aimed to clarify the current prevalence and subtype distribution of EOD, as well as the services frequently used by individuals with EOD. Methods: A multisite, population-based, two-step study was conducted. Questionnaires were sent to 26 416 candidate facilities in 12 areas with a target population of 11 630 322 to inquire whether any individuals with EOD had sought services or stayed during the last 12 months (step 1). When "yes" responses were received, additional questionnaires were sent to the facilities both to complete and to distribute to the target individuals with EOD to obtain more detailed information, including the dementia subtype (step 2). Results: In step 1, valid responses were obtained from 16 848 facilities (63.8%), and 4077 cases were identified. In step 2, detailed information was obtained for 1614 cases (39.6%) from the facilities and 530 cases (13.0%) from the individuals. The national EOD prevalence rate was estimated to be 50.9/100 000 population at risk (95% confidence interval: 43.9-57.9; age range, 18-64 years). The number of individuals with EOD was estimated to be 35 700 as of 2018. Alzheimer-type dementia (52.6%) was the most frequent subtype, followed by vascular dementia (17.1%), frontotemporal dementia (9.4%), dementia due to traumatic brain injury (4.2%), dementia with Lewy bodies/Parkinson's disease dementia (4.1%), and dementia due to alcohol-related disorders (2.8%). Individuals with EOD were most frequently identified at medical centers for dementia. Conclusion: The prevalence rate estimated in this study was comparable to those in previous studies in Japan. However, the subtype distribution differed, with Alzheimer-type dementia being the most prominent. Based on the case identification frequencies, medical centers for dementia are expected to continue to function as the primary special health service by providing quality diagnosis and post-diagnostic support for individuals with EOD.

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Section: Introductionmentioning

confidence: 99%

Prevalence and subtype distribution of early‐onset dementia in Japan

et al. 2020

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“…We identified 10 individuals with YOD from eight workplaces in the Tohoku, Hokuriku, and Kyushu/Okinawa areas of Japan and interviewed their supervisors or occupational health staff with their employers’ consent ( n = 10). In a previous study, Omote et al asked human resource managers of the subject workplaces if they were willing to participate in an interview regarding their support for individuals with YOD [ 19 ]. Two of the seven facilities identified by Omote had employees willing to participate in interviews [ 19 ].…”

Section: Methodsmentioning

confidence: 99%

“…In a previous study, Omote et al asked human resource managers of the subject workplaces if they were willing to participate in an interview regarding their support for individuals with YOD [ 19 ]. Two of the seven facilities identified by Omote had employees willing to participate in interviews [ 19 ]. It was difficult to find workplaces with experience in providing employment support to employees with YOD.…”

Section: Methodsmentioning

confidence: 99%

Experience with Support at Workplaces for People with Young Onset Dementia: A Qualitative Evaluation of Being Open about Dementia

Omote

Ikeuchi

Okamoto

et al. 2023

IJERPH

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Young-onset dementia (YOD) occurs at <65 years of age. Individuals with YOD experience social and psychological disturbances, including a loss of employment. This economic toll affects them, their families, and their caregivers. Employers have an increasing role in supporting affected employees in remaining employed, an important component of the “fight for their dignity”. This study aims to clarify the workplace support experiences of employees with YOD. To assess the experiences of employers with at least one affected employee, we interviewed personnel from eight facilities for qualitative analysis. We identified 5 unique categories and 14 subcategories encompassing the following aspects: confusion at the workplace stemming from the uncertainty of the disease, sensitivity when recommending consultation and diagnosis, creating a system that considers safety and security, building consensus among employers, supporting employees with YOD and their families, and assisting the individual with YOD with activities of daily living. Employers should be open to addressing dementia-related issues in the workplace, including obtaining information from employees’ physicians so that appropriate support can be provided. Appropriate support can include work accommodations, needs-based support, and meetings with families to build consensus for continued employment. This information can facilitate the creation of new training materials for employers.

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