Young Adults' Experiences and Satisfaction With the Transfer of Care

Staa, AnneLoes van; Sattoe, Jane N. T.

doi:10.1016/j.jadohealth.2014.06.008

Cited by 69 publications

(47 citation statements)

References 37 publications

(65 reference statements)

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“…Furthermore, little information is provided about important elements of interventions used in transitional care, 10 32 and there is still little research into young people's and healthcare professionals' experiences with such interventions. 4 33 34 …”

Section: Introductionmentioning

confidence: 99%

Evaluating outpatient transition clinics: a mixed-methods study protocol

et al. 2016

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IntroductionTo support young people in their transition to adulthood and transfer to adult care, a number of interventions have been developed. One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in transition care for young people with chronic conditions, but little is known about TC models and effects. The proposed study aims to gain insight into the added value of a TC compared with usual care (without a TC).Methods and analysisWe propose a mixed-methods study with a retrospective controlled design consisting of semistructured interviews among healthcare professionals, observations of consultations with young people, chart reviews of young people transferred 2–4 years prior to data collection and questionnaires among the young people included in the chart reviews. Qualitative data will be analysed through thematic analysis and results will provide insights into structures and daily routines of TCs, and experienced barriers and facilitators in transitional care. Quantitatively, within-group differences on clinical outcomes and healthcare use will be studied over the four measurement moments. Subsequently, comparisons will be made between intervention and control groups on all outcomes at all measurement moments. Primary outcomes are ‘no-show after transfer’ (process outcome) and ‘experiences and satisfaction with the transfer’ (patient-reported outcome). Secondary outcomes consider clinical outcomes, healthcare usage, self-management outcomes and perceived quality of care.EthicsThe Medical Ethical Committee of the Erasmus Medical Centre approved the study protocol (MEC-2014-246).DisseminationStudy results will be disseminated through peer-reviewed journals and conferences. The study started in September 2014 and will continue until December 2016. The same study design will be used in a national study in 20 diabetes settings (2016–2018).

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Section: Introductionmentioning

confidence: 99%

Evaluating outpatient transition clinics: a mixed-methods study protocol

et al. 2016

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“…To improve services, policy-makers, and clinicians need to understand young people's approaches to their transitional care and what they view as important. Much of the evidence about young people's views on transition is specialty or condition specific [2,[12][13][14][15][16] with some notable exceptions [17][18][19]. Therefore, it is unclear what are the most important generic components of clinical services that should be provided during transition and at the point of transfer.…”

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confidence: 99%

Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

Hislop

Mason

Parr

et al. 2016

Journal of Adolescent Health

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Purpose-This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services.Methods-Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts).Results-Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition."Conclusions-Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, * Address correspondence to: Jenni Hislop, M.Sc., Newcastle University, Institute of Health and Society, Newcastle upon Tyne, United Kingdom. jenni.hislop@newcastle.ac.uk (J. Hislop). Conflicts of Interest:The authors have no conflicts of interest or financial disclosures to report. Disclaimer:The views expressed in this article are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health. Europe PMC Funders GroupAuthor Manuscript J Adolesc Health. Author manuscript; available in PMC 2017 January 19. Europe PMC Funders Author ManuscriptsEurope PMC Funders Author Manuscripts and more specifically the point of transfer, leading to effective and efficient engagement with adult care. KeywordsTransition; Q methodology; Chronic conditions; Shared viewpointsTransition is defined as "the purposeful, planned process that addresses the medical, psychosocial, educational, and vocational needs of adolescents and young adults with chronic medical and physical conditions as they move from child-centred to adult-oriented health care systems" [1]. Transfer is the event when responsibility for health care is passed from a pediatric to an adult provider. Some young people find transition difficult [2]. Suboptimal or needs-inappropriate transition are well documented nationally and internationally [3][4][5][6][7] and include poorer long-term health, social, and educational outcomes [8][9][10][11]. To improve services, policy-makers, and clinicians need to understand young people's approaches to their transitional care and what they view as important. Much of the evidence about young people's views on transition is specialty or co...

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“…Difficulty navigating new processes and services was also a concern, as was inadequate information about lifestyle and self-care. Many young people expressed concern about the lack of opportunity to meet the adult provider prior to transfer [54].…”

Section: Patient Levelmentioning

confidence: 99%

Improving the Transition to Adult Care for Young People with Chronic Kidney Disease

Foster

Bell

2015

Curr Pediatr Rep

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The transition from pediatric-to adult-oriented care typically occurs during emerging adulthood, a developmental stage during which the risks of poor treatment adherence and adverse outcomes are elevated. Inadequate support during this change in care environment may augment the risks. With a focus on chronic kidney disease, we will briefly review the evidence linking transition from pediatric-to adult-oriented care to adverse medical, social, and quality of life outcomes, and outline potential reasons for the associations between transition and adverse outcomes. Then we will summarize the recent literature on potential interventions to improve the transition from pediatric-to adult-oriented care. We will examine strategies to improve (1) preparation for transition (including positive youth development, peer mentoring, education, and self-care skill development), (2) the transition process itself (including different models of transition care), and (3) the care structures/systems available for emerging adults within the adult-oriented care environment (including expectations of young people and parents, adaptation of adult care to the emerging adult, and improved education of adult care providers in issues of importance to emerging adults). The perspectives of patients, parents, and healthcare providers will be considered throughout.

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Young Adults' Experiences and Satisfaction With the Transfer of Care

Abstract: The On Your Own Feet Transfer Experiences Scale is a useful instrument to measure transfer experiences. The importance young adults attach to good relations with their new provider stresses the necessity of early involvement of and good collaboration with adult care.

Cited by 69 publications

References 37 publications

Evaluating outpatient transition clinics: a mixed-methods study protocol

Evaluating outpatient transition clinics: a mixed-methods study protocol

Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

Improving the Transition to Adult Care for Young People with Chronic Kidney Disease

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