Young people's experiences using electric powered indoor – outdoor wheelchairs (EPIOCs): Potential for enhancing users' development?

Evans, Subhadra; Neophytou, Claudius; Souza, Lorraine De; Frank, Andrew

doi:10.1080/09638280600964406

Cited by 90 publications

(146 citation statements)

References 21 publications

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“…Therefore, they preferred their powered wheelchairs. This is similar to previous research that highlighted the positive effect of powered wheelchairs in terms of social activities and being able to engage in the environment without constant supervision and assistance from others (Evans, Neophytou, de Souza, & Frank, 2007). However, others thought their standing frame allowed them to participate more in activities such as cooking.…”

Section: Size-lack Of Spacesupporting

confidence: 77%

Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

Goodwin

Lecouturier

Crombie

et al. 2017

Child

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Section: Size-lack Of Spacesupporting

confidence: 77%

Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

Goodwin

Lecouturier

Crombie

et al. 2017

Child

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“…It is likely that the five users reporting fractures had undiagnosed osteoporosis. Osteoporosis is important for PwMS in view of the known risk of accidents such as tipping out of wheelchairs [6,19] or falls during standing or transfers [6]. These risks are additional to the risks of osteoporosis for PwMS relating to immobility, previous steroids and potential lack of vitamin D through being housebound [23].…”

Section: Features Of Disabilitymentioning

confidence: 99%

“…The benefits of independent powered mobility (PM) include education [6,19,20] or work [6,19,20], and a range of social activities such as shopping [6,19,20], church going [6,[19][20][21], socialising with family and friends [6,19,[21][22][23] and accessing healthcare facilities [6,21,22]. In addition, the increased mobility provided by PM enhances quality of life and well-being [23,24].…”

Section: Introductionmentioning

confidence: 99%

Problematic clinical features of powered wheelchair users with severely disabling multiple sclerosis

Souza

Frank

2014

Disability and Rehabilitation

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Purpose: The aim of this study is to describe the clinical features of powered wheelchair users with severely disabling multiple sclerosis (MS) and explore the problematic clinical features influencing prescription. Method: Retrospective review of electronic and case note records of recipients of electric-powered indoor/outdoor powered wheelchairs (EPIOCs) attending a specialist wheelchair service between June 2007 and September 2008. Records were reviewed by a consultant in rehabilitation medicine, data systematically extracted and entered into a computer database. Further data were entered from clinical records. Data were extracted under three themes; demographic, diagnostic, clinical and wheelchair factors. Results: Records of 28 men mean age 57 (range 37-78, SD 12) years and 63 women mean age 57 (range 35-81, SD 11) years with MS were reviewed a mean of 64 (range 0-131) months after receiving their wheelchair. Twenty two comorbidities, 11 features of MS and 8 features of disability were thought to influence wheelchair prescription. Fifteen users were provided with specialised seating and 46 with tilt-in-space seats. Conclusions: Our findings suggest that people with severe MS requiring an EPIOC benefit from a holistic assessment to identify problematic clinical features that influence the prescription of the EPIOC and further medical and therapeutic interventions. ä Implications for RehabilitationPeople with multiple sclerosis (MS), referred for an EPIOC, require a full clinical assessment to identify problematic clinical features that are potentially treatable and/or can be accommodated through specialised seating and tilt. The beneficial effects of TIS should be considered for all EPIOC users with MS and particularly for those with comorbidity Poorly controlled spasticity, when identified in people with MS, should be managed through positioning in the chair, pressure-relieving cushion and referral for medical management.

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“…By using powered wheelchairs, individuals can experience greater participation in activities such as education [1][2][3][4] or work [1][2][3]5 , and a range of social activities such as shopping 1-3;6;7;7;8 , church going 1;2;6;9 , socialising with family and friends 1;2;6;9;10 and accessing healthcare facilities 2;6;9;11 . In addition, the increased mobility provided by PM enhances quality of life and wellbeing 5;10;12 .…”

Section: MDmentioning

confidence: 99%

Recipients of Electric-Powered Indoor/Outdoor Wheelchairs Provided by a National Health Service: A Cross-Sectional Study

Frank¹,

Souza²

2013

Archives of Physical Medicine and Rehabilitation

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Initially presented as an abstract to the 4 th International Interdisciplinary Conference on Posture and Mobility, June 7-9 2010, Glasgow, UK.We did not receive any funding for this study Acknowledgements: Mike Pugh for technical assistance with identifying those with tilt-inspace wheelchairs and commenting on engineering aspects of this paper.We certify that no party having a direct interest in the results of the research supporting this article has or will confer a benefit on us or on any organization with which we are associated and we certify that all financial and material support for this research and work are clearly identified in the title page. The benefits of powered mobility (PM) for people with severe disabilities are now better understood. By using powered wheelchairs, individuals can experience greater participation in activities such as education 1-4 or work [1][2][3]5 , and a range of social activities such as shopping 1-3;6;7;7;8 , church going 1;2;6;9 , socialising with family and friends 1;2;6;9;10 and accessing healthcare facilities 2;6;9;11. In addition, the increased mobility provided by PM enhances quality of life and wellbeing 5;10;12 . Benefits to carers have also been reported 2;5;9;11 . However, it has been noted that there are problems associated with powered mobility (PM There is a need to capture data from greater numbers representative of the population of wheelchair users 17 . Whilst such populations have been described 18 , the diagnoses, age and gender of a large and specific population of powered wheelchair users is lacking. Objectively verified data are needed for these factors as declarative data gathered through self-report Potential users were referred from locally based NHS wheelchair services. Clinic records including assessment and wheelchair equipment of those provided with an EPIOC, and still using it, were reviewed in June 2007 and data were extracted. Average time from the initial assessment in clinic to the case note review was 72.4 (range 0-1166, sd 73.2) months.The data relevant to this study had been recorded by health professionals following a physical examination and assessment and consisted of:- Demographic data• age at initial assessment• gender Medical factors• Major diagnosis contributing to the need for a wheelchair as described previously 2 but with the addition of a category for inherited metabolic conditions.• Ventilator issues• Problematic pain -that needed intervention(s).• (Kypho)scoliosis Users with multiple sclerosis (MS), cerebral palsy (CP), muscular dystrophy (MD), cerebrovascular disease (CVD), other neurological conditions, spina bifida (SB), spinal cord injury (SCI) and polio were grouped together as having neurological or neuromuscular conditions (NNCs). Wheelchair factorsPowered wheelchair provision in the UK 8• Specialised seating (SS) -that which is needed by people who require a wheelchair but due to instability or deformity need additional support in order to function 21 , (similar to that of adaptive seating 22 )• Tilt-in-space (TIS)• ...

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Young people's experiences using electric powered indoor – outdoor wheelchairs (EPIOCs): Potential for enhancing users' development?

Cited by 90 publications

References 21 publications

Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

Problematic clinical features of powered wheelchair users with severely disabling multiple sclerosis

Recipients of Electric-Powered Indoor/Outdoor Wheelchairs Provided by a National Health Service: A Cross-Sectional Study

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