Seizure detection devices are at a relatively early stage of development and as yet there are no large scale studies or studies that compare the effectiveness of one device against others. The issue of false positive detection rates is important as they are disruptive for both the patient and the carer. Nevertheless, the development of seizure detection devices offers great potential in the management of epilepsy.

An evidence based checklist identifying the major risk factors can help both clinicians and patients to focus on minimizing certain risk factors and promote safety by focusing on the modifiable factors and guide treatment. It can be a tool to open a person centered discussion with patients and to outline how individual behaviors could impact on risk.

Highlights The COVID-19 and Epilepsy (COV-E) global surveys launched in May 2020. UK respondents (n=463) report changes in seizure frequency, mental health and sleep. Discussion of risk, including of SUDEP, was infrequent even before the pandemic. COVID-19 is having far-reaching consequences on people with epilepsy. Our study exemplifies the importance of delivering optimal care to mitigate risk.

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This study is the first epidemiological study in England occurring in a whole population identifying systemically all deaths and the first large scale review in UK of SUDEP deaths since 2005. Being a community based study a key issue which was highlighted was that in the SUDEPs examined many might have been potentially preventable.