Background The COVID-19 pandemic and subsequent mandates upended community participation in the United States. People with disabilities were often more vulnerable to the adverse effects of the pandemic. Some areas of community participation affected for this population include employment, access to transportation, and social engagement and connection to others. Objectives The purpose of this study was to explore the effects of the COVID-19 pandemic for people with mobility disabilities across a variety of topics related to community engagement including social interactions with family and friends, and access to caregivers, groceries, transportation, and employment. Methods A survey was administered to participants with mobility disabilities (N = 39). Participants were asked to elaborate on topic areas that they identified as being affected by the COVID-19 pandemic. Data analysis included descriptive statistics and a content analysis in search of themes from open-ended responses. Results Results indicate that access to family and friends was the most negatively affected topic related to participation, followed by access to food and groceries, transportation, employment, living independently, caring for others, and participating in the community in general. In response to these pandemic-related challenges, participants reported utilizing technology to connect with others and to get essential items delivered. Conclusions Findings from this rapid research emphasize the need for emergency preparedness strategies, accessible and reliable resources related to technology use (e.g., Internet), and continued access to services for people with disabilities to maintain various aspects of community participation throughout the COVID-19 pandemic and in the future.
The Affordable Care Act mandated data collection standards to identify people with disabilities in federal surveys to better understand and address health disparities within this population. Most federal surveys use six questions from the American Community Survey (ACS-6) to identify people with disabilities, whereas many international surveys use the six-item Washington Group Short Set (WG-SS). The National Survey on Health and Disability (NSHD), which focuses on working-age adults ages 18–64, uses both question sets and contains other disability questions. We compared ACS-6 and WG-SS responses with self-reported disability types. The ACS-6 and WG-SS failed to identify 20 percent and 43 percent, respectively, of respondents who reported disabilities in response to other NSHD questions (a broader WG-SS version missed 4.4 percent of respondents). The ACS-6 and the WG-SS performed especially poorly in capturing respondents with psychiatric disabilities or chronic health conditions. Researchers and policy makers must augment or strengthen federal disability questions to improve the accuracy of disability prevalence counts, understanding of health disparities, and planning of appropriate services for a diverse and growing population.
In a series of recent studies, Hanley and colleagues have evaluated the efficacy of an FA methodology termed the Interview Informed Synthesized Contingency Analyses (IISCA; Hanley, Jin, Vanselow, & Hanratty, 2014), which involves conducting (a) an open-ended interview to determine potential antecedents, consequences, and precursors to target problem behavior; (b) a brief observation based on the interview results; and (c) test and control conditions that involve synthesized contingencies (as determined by interview and observation). However, it is unknown whether synthesis of contingencies is necessary for determining a functional relation between problem behavior and environmental events. We extended Fisher, Greer, Romani, Zangrillo, and Owen (2016) and Slaton, Hanley, and Raferty (2017) by comparing the outcomes of FAs that involved isolated versus synthesized contingencies while controlling for other differences across the FAs for problem behavior of five young children. Next, we compared the effects of function-based interventions based on isolated and synthesized functional variables for each participant. Results showed that synthesized contingencies were not necessary to show functional relations between problem behavior and environmental events, and function-based treatments based on isolated contingencies were equally effective to those based on synthesized contingencies.
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