1. Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines

Leadbeater, Bonnie J.; Riecken, Ted; Benoit, Cecilia; Banister, Elizabeth; Brunk, Conrad G.; Glass, Kathleen Cranley; Bannister, Elizabeth; Jansson, Mikael; Marshall, Ann

doi:10.3138/9781442674653-004

Cited by 9 publications

(13 citation statements)

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“…We have had the opportunity to organize or participate in two such workshops related to our Risky Business project, both of which involved active involvement of two of our community partners, CAFCA and the Victoria Youth Clinic. Results of one of the workshops have been written up into a chapter and included in an edited book examining ethical challenges when researching vulnerable youth populations (Leadbeater et al, 2006). The other workshop has resulted in the development of targeted health interventions for street-involved youth that are currently being implemented in the local area.…”

Section: Resultsmentioning

confidence: 99%

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In for the Long Haul: Knowledge Translation Between Academic and Nonprofit Organizations

Jansson¹,

Benoit

Casey

et al. 2009

Qual Health Res

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Although scientists are continually refining existing knowledge and producing new evidence to improve health care and health care delivery, far too little scientific output finds its way into the tool kits of practitioners. Likewise, the questions that clinicians would like to be answered all too rarely get taken up by researchers. In this article we focus on knowledge translation challenges accompanying a longitudinal research program with nonprofit organizations providing direct and indirect health and social services to disadvantaged groups in one region of Canada. Three essential factors influencing authentic and reciprocal knowledge transfer and utilization between nonprofit service providers and researchers are discussed: strong institutional partnerships, the use of skilled knowledge brokers, and the meaningful involvement of frontline personnel.

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Section: Resultsmentioning

confidence: 99%

“…To date, approximately 150 street youth are enrolled in the project. This third project has produced a number of peer-reviewed publications (Benoit, Jansson, & Anderson, 2007; Benoit, Jansson, Hallgrimsdottir, & Roth, 2008; Jansson & Benoit, 2006; Leadbeater et al, 2006). …”

Section: The Studiesmentioning

confidence: 99%

In for the Long Haul: Knowledge Translation Between Academic and Nonprofit Organizations

Jansson¹,

Benoit

Casey

et al. 2009

Qual Health Res

Self Cite

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“…Young people's capacity to make decisions about their lives is often conflated with age (Christensen and James, ; Mayall, ). In Canada, provincial and territorial governments determine the age of majority; age 18 is the age of majority in six jurisdictions and age 19 is the age of majority in seven jurisdictions (Chabot and others, ; Leadbeater and others, ). Yet as Leadbeater and others () illustrate, the age of consent varies from the age of majority concerning work, health care, marriage, and obtaining a driver's licence.…”

Section: Ethnographic Perspectives On Age and Capacitymentioning

confidence: 99%

“…In Canada, provincial and territorial governments determine the age of majority; age 18 is the age of majority in six jurisdictions and age 19 is the age of majority in seven jurisdictions (Chabot and others, ; Leadbeater and others, ). Yet as Leadbeater and others () illustrate, the age of consent varies from the age of majority concerning work, health care, marriage, and obtaining a driver's licence. Thus, while the age of majority may be significant in some legal situations, it is often recognised that young people under age 18 or 19 can make decisions concerning significant matters that impact themselves and others.…”

Section: Ethnographic Perspectives On Age and Capacitymentioning

confidence: 99%

“…The TCPS 2 goes on to recognise that the consent process ‘is not a static determination’ and that it ‘may change over time’ (ibid.). In spite of young people's right to participate and dynamic interpretations of their capacity to consent, REBs at times default by conservatively requiring parental consent for legal minors to participate in research (Chabot and others, ; Leadbeater and others, ).…”

Section: Ethnographic Perspectives On Age and Capacitymentioning

confidence: 99%

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Desiring Self‐Determination in Research and Beyond: Parental Consent Requirements and Situated Ethics for Migrant Young People Living amid Changing Family Dynamics

Shaw

2018

Children & Society

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How are procedural research ethics complicit in homogenising and paternalising young people? Through a youth-centred ethnographic study completed in Canada, I illustrate how migrant young people's complex experiences of family separation, responsibility, and autonomy sit in relation to parental consent requirements for research. By complicating notions of childhood and critically discussing capacity to consent, I elucidate how procedural ethics can negate diversity among young people and perpetuate the structural barriers some face in determining their lives. More flexible ethical procedures and responses could reduce barriers and better accommodate young people's inclusion by recognising their specific circumstances, desires and competencies through heightened contextual awareness.

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Ethical Challenges in Promoting the Implementation of Preventive Interventions: Report of the SPR Task Force

et al. 2018

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Prevention science researchers and practitioners are increasingly engaged in a wide range of activities and roles to promote evidence-based prevention practices in the community. Ethical concerns invariably arise in these activities and roles that may not be explicitly addressed by university or professional guidelines for ethical conduct. In 2015, the Society for Prevention Research (SPR) Board of Directors commissioned Irwin Sandler and Tom Dishion to organize a series of roundtables and establish a task force to identify salient ethical issues encountered by prevention scientists and community-based practitioners as they collaborate to implement evidence-based prevention practices. This article documents the process and findings of the SPR Ethics Task Force and aims to inform continued efforts to articulate ethical practice. Specifically, the SPR membership and task force identified prevention activities that commonly stemmed from implementation and scale-up efforts. This article presents examples that illustrate typical ethical dilemmas. We present principles and concepts that can be used to frame the discussion of ethical concerns that may be encountered in implementation and scale-up efforts. We summarize value statements that stemmed from our discussion. We also conclude that the field of prevention science in general would benefit from standards and guidelines to promote ethical behavior and social justice in the process of implementing evidence-based prevention practices in community settings. It is our hope that this article serves as an educational resource for students, investigators, and Human Subjects Review Board members regarding some of the complexity of issues of fairness, equality, diversity, and personal rights for implementation of preventive interventions.

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1. Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines

Cited by 9 publications

References 0 publications

In for the Long Haul: Knowledge Translation Between Academic and Nonprofit Organizations

In for the Long Haul: Knowledge Translation Between Academic and Nonprofit Organizations

Desiring Self‐Determination in Research and Beyond: Parental Consent Requirements and Situated Ethics for Migrant Young People Living amid Changing Family Dynamics

Ethical Challenges in Promoting the Implementation of Preventive Interventions: Report of the SPR Task Force

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