1397 Alport syndrome in children: a 15-year single centre experience

Abstract

The device was used within an individualised care plan to assess acute or routine review with a member of the team from home.3. Feedback on the usability, workflow and key outcomes was gathered at various stages of the project: a. A feedback survey completed by the healthcare professional after each consult.b. Data was collected via the TytoCare system for each consultation.c. End of pilot surveys were completed by staff and families. Results 48 consultations were undertaken using TytoCare during the pilot. We had healthcare professional feedback for 46 of them reporting the following impact: 100% of consultations felt to provide reassurance to families, 98% had a positive impact on the CYP. Two hospital assessments, 3 inpatient admissions, 13 face to face clinic appointments, 4 home visits, 23 face to face physiotherapy reviews and approximately 329 miles travelled were saved. Conclusions In this pilot the TytoCare device was found to be easy to use by professionals and carers and to be reliable and effective in providing safe and quality care for a select group of CYP at home. The pilot highlighted the impact technology can have in reducing the burden of chronic illness for families. It also demonstrated that technology could be used successfully to improve access to care for some of our most vulnerable families.