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The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy

“…To date, previous studies on the topic of family needs of children with CP or disability have been conducted using a quantitative approach with the use of questionnaires [6][7][8][9][10][11][12][13]. This approach limits the retrieval of information from the parents as they are restricted in expressing their thoughts and opinion in a more detailed way.…”

The Political Arithmetic of Disability and the American Family: A Demographic Perspective

“…Casual inspection of the family support literature in disabilities yields a diverse array of services: all forms of specialist care, respite care, social support networks, information dissemination, specialized therapy and service coordination, logistical assistance, in-home personal care, home modifications, and specialized recreation and leisure activities, among others. Globally, the most common forms of support are the income maintenance programs in the form of social insurance, pensions, and disability benefits (Ellis et al, 2002;Jacobs, 1994;Kamerman & Gabel, 2010). The Family Needs Survey (FNS) developed by Bailey and Simeonsson (1988) has been adapted and validated across multiple different disability populations and provides a useful framework for conceptualizing needs at the population level.…”

“…The Family Needs Survey (FNS) developed by Bailey and Simeonsson (1988) has been adapted and validated across multiple different disability populations and provides a useful framework for conceptualizing needs at the population level. In a number of FNS survey evaluations (e.g., Ellis et al, 2002;Palisano et al, 2010) However framed and organized, formally defined supports designed specifically for families, with or without disabilities, are rare. Globally, the most common forms of support are the income maintenance programs in the form of social insurance, pensions, and disability benefits (Ellis et al, 2002;Jacobs, 1994;Kamerman & Gabel, 2010).…”

“…In a number of FNS survey evaluations (e.g., Ellis et al, 2002;Palisano et al, 2010) However framed and organized, formally defined supports designed specifically for families, with or without disabilities, are rare. Globally, the most common forms of support are the income maintenance programs in the form of social insurance, pensions, and disability benefits (Ellis et al, 2002;Jacobs, 1994;Kamerman & Gabel, 2010). Kamerman and Gabel (2006) described the range of social protection schemes around the world, finding the most extensive network of economic protections in the Organisation for Economic Co-operation and Development and EU countries.…”

Coherent emission

“…Maser growth applies only if the growth rate is less than the bandwidth of the growing waves. There are examples where fine structures are observed apparently inconsistent with this condition: fine structure in solar radio bursts (Ellis 1969), in S-bursts in DAM (Ellis 1973;Carr & Reyes 1999). In these examples the frequency tends to change with time, somewhat analogous to the narrow-band drifting structures in triggered VLF emissions (Helliwell 1967).…”