232 Evaluating the Rheumatology Transitional Care Service for Young Adults with Juvenile Idiopathic Arthritis in Newcastle upon Tyne

Lee, Martin A; Tiffin, Lesley; Lea, E.J.A.

doi:10.1093/rheumatology/kew183.001

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“…Lack of integration among various silos and inadequate communication between providers causes delays in delivering appropriate health care services to these vulnerable patients and their caregivers, diminishing positive health outcomes and driving costs ever higher (Clarke et al, 2017). Mortality and morbidity rise after an insufficient transition from paediatrics to adult services (Conti et al, 2018). Young patients are predominantly susceptible and can experience worsening of their disease.…”

Section: Literature Findingsmentioning

confidence: 99%

Growing Up and Moving on - Insights From the Health Care Professionals and Adolescents’ Perspectives on the Issues and Barriers in the Transfer of Care From Paediatrics to Adult Care

et al. 2021

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The aim of this research is to report the finding from the perspective of the Healthcare Professionals and the adolescents and young adults (AYA's) to identify issues and barriers to a successful transition for adolescents with Juvenile Idiopathic Arthritis (JIA) as they move from Paediatric Healthcare setting to Adult Healthcare.Healthcare services that fail to adequately meet the needs of young people and their families at this time of considerable change may result in a decline in their health status that can have a negative long-term impact. Through a user-centered research design (UCD) and Universal Design, the needs of all participants and stakeholders will be assessed. This paper applies the most appropriate proposed methods for the development of a solution to mitigate against some of the issues in tangent with the needs and feedback identified during the research process.

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Section: Literature Findingsmentioning

confidence: 99%